Hi Vanessa, wanted to wish you the very best of luck. Many of us have
been where you are now andlife has gone on, usually vastly improved.
You sound very positive about your situation. Good luck I'm sure
anyone who has read your letter will be with you. Keep in touch and
let us know how things go for you.
Stewart/globey

--- In ukostomysupport@yahoogroups.com, "♥ Vanessa ♥ "
<kismetz_angel@...> wrote:
>
>
>
>        
> My name's Vanessa altho' I answer to all variations of it - Ness,
Nessa,
> Nessie etc. :) I live in the UK.
>
> I was told a couple of months ago that surgery would be my only
option. I
> have had UC (pancolitis) for 18 months and am, unfortunately,
> steroid-dependant. I chose not to take steroids while I waited for
surgery.
> I'm still taking 125 mgs Imuran and 3 grams Pentasa daily.
Originally I had
> an appt. to see a surgeon next month but it was brought fwd
suddenly to
> Monday (yesterday) and now I am being admitted to hosp. on Thursday
and
> having the op. sometime this weekend. Due to complications, and
specifically
> risk of a blood clot (which I had one in Dec - both lungs - that
possibly
> travelled from my leg), the surgeon told me I'm in "that grey area"
between
> elective surgery and emergency surgery. Initially I had thought to
try for
> the J-Pouch surgery if offered but I'm too ill, there is a 4 month
waiting
> list and my surgeon and Dr's are sure I would have a clot by then
and not
> last w/out needing an emergency op. However, this can still be an
option for
> me in the future but for now I will have the ileostomy and might
even opt to
> keep it permanently. We'll see! I was told the surgeon usually does
this
> surgery "keyhole" but that since he didn't mention it to me, I have
to
> assume I'm too ill for that and will have the full cut so he can
uh, well,
> go in, get it and get out" I suppose. (That's how I grocery shop!
*G*) The
> stoma nurse made him sound like Zorro with a scalpel. :)
>
> I'm quite positive. I'm wearing a "baggy" around the house today
and feel
> fortunate to have some say in where my stoma will be positioned.
Truth is,
> there is only one place it feels right in so I guess that's the
spot!
>
> Well that's my rambling intro. I guess I will be back post-surgery.
I am
> supposed to be having root canal work on my tooth (due to steroid
damage)
> tomorrow but guess it will be a temp. filling now. I also have a
head cold
> and so I'm like that saying - "I only have one other speed and it's
slower".
> But I'm too tired to be anything other than calm and calm is good.
Naturally
> I'm not worried about leaving my teenage son in charge of our
home... I
> mean, I will have morphine, right? =oP
>
> Hope you are all safe and well. See you online soon/soonish. :)
>
> ~Hugs~
> Vanessa
>