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Hello - having ileostomy at weekend!   Message List  
Reply | Forward Message #8033 of 8105 |
 
 
       
My name's Vanessa altho' I answer to all variations of it - Ness, Nessa, Nessie etc. :) I live in the UK.
 
I was told a couple of months ago that surgery would be my only option. I have had UC (pancolitis) for 18 months and am, unfortunately, steroid-dependant. I chose not to take steroids while I waited for surgery. I'm still taking 125 mgs Imuran and 3 grams Pentasa daily. Originally I had an appt. to see a surgeon next month but it was brought fwd suddenly to Monday (yesterday) and now I am being admitted to hosp. on Thursday and having the op. sometime this weekend. Due to complications, and specifically risk of a blood clot (which I had one in Dec - both lungs - that possibly travelled from my leg), the surgeon told me I'm in "that grey area" between elective surgery and emergency surgery. Initially I had thought to try for the J-Pouch surgery if offered but I'm too ill, there is a 4 month waiting list and my surgeon and Dr's are sure I would have a clot by then and not last w/out needing an emergency op. However, this can still be an option for me in the future but for now I will have the ileostomy and might even opt to keep it permanently. We'll see! I was told the surgeon usually does this surgery "keyhole" but that since he didn't mention it to me, I have to assume I'm too ill for that and will have the full cut so he can uh, well, "go in, get it and get out" I suppose. (That's how I grocery shop! *G*) The stoma nurse made him sound like Zorro with a scalpel. :)
 
I'm quite positive. I'm wearing a "baggy" around the house today and feel fortunate to have some say in where my stoma will be positioned. Truth is, there is only one place it feels right in so I guess that's the spot!
 
Well that's my rambling intro. I guess I will be back post-surgery. I am supposed to be having root canal work on my tooth (due to steroid damage) tomorrow but guess it will be a temp. filling now. I also have a head cold and so I'm like that saying - "I only have one other speed and it's slower". But I'm too tired to be anything other than calm and calm is good. Naturally, I'm not worried about leaving my teenage son in charge of our home... I mean, I will have morphine, right? =oP
 
Hope you are all safe and well. See you online soon/soonish. :)
 
   ~Hugs~
  
Vanessa

 
 
 


Tue Jun 17, 2008 6:38 pm

kismetz_angel
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Message #8033 of 8105 |
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        My name's Vanessa altho' I answer to all variations of it - Ness, Nessa, Nessie etc. :) I live in the UK. I was told a couple...
♥ Vanessa ♥
kismetz_angel
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Jun 17, 2008
6:38 pm

You sound so calm about it all, I can only send you hugs and lots of love and best wishes that all goes well at the weekend. I will be praying that all goes...
Sheila Davis
sheilamdavis18
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Jun 17, 2008
8:24 pm

Hi Vanessa, wanted to wish you the very best of luck. Many of us have been where you are now andlife has gone on, usually vastly improved. You sound very...
Stewart
globetrotteruk
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Jun 17, 2008
9:10 pm

What more can I say except Good Luck and keep your chin up, there always seem to be people worst off than you.       ... From: ♥ Vanessa ♥...
Norman Dale
norman.dale
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Jun 18, 2008
8:03 am

Hi Vanessa Just wanted to wish you well for your surgery. It's good to be positive about these situations and at least you know there is always someone at the...
kim maudsley
bag_lady2002...
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Jun 18, 2008
6:55 pm

Hi nessa I dont have an ostomy but my husband does. Please if your son would like to talk to someone in the same position as himself may be I can help . There...
rachel622650
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Jun 19, 2008
9:35 pm

If you are having this done in the UK then I wish you all the luck in the world and then some........ Andre...
Andre
andre_du_bois
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Jun 19, 2008
10:01 pm
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