Ditto from Tina in Kansas - USA

----- Original Message -----
From: "Kim" <forlight@...>
To: <ukostomysupport@yahoogroups.com>
Sent: Monday, September 18, 2006 9:16 PM
Subject: [UK Ostomy Support ] Re:For Shay


> Okay I'll bite.. I would be interested in seeing ernies list if he
> wouldnt mind posting it. I have had a total colectomy due to UC
> about 15 yrs ago and since I also have MS they and I felt a reversal
> would be risky. My stoma has given me little to no trouble but I am
> always ready to learn something new. Maybe ernies list has a
> treasure for me.
> thanks Kim
>
> --- In ukostomysupport@yahoogroups.com, Helen Garratt <babeof71@...>
> wrote:
>>
>> Hi Kim
>> Enrie has a list of 'Do's and Don'ts!. It's great
>> advice collected from lots of people which realates to
>> everything from what to eat to slow down output to
>> dealing with sore skin with or without a bag.
>> I know for sure he'll send it to you if u ask.
>> Hope all is well with you.
>> Happy to help.
>> Helen
>> --- Kim <forlight@...> wrote:
>>
>> >
>> > Hi all, Sorry to butt in but what is ernies list? I
>> > have had a
>> > total colectomy w/o the option of reversal and am
>> > curious.. I havent
>> > heard of ernies list. It probably doesnt apply to
>> > me but being the
>> > curious person I am I gotta ask...
>> > Kim
>> > --- In ukostomysupport@yahoogroups.com, Helen
>> > Garratt <babeof71@>
>> > wrote:
>> > >
>> > > Hi Shay
>> > > Don't worry, the output will be much kinder when
>> > you
>> > > are connected. I had a Chicken Biryani for tea
>> > last
>> > > night and cos i put cream on every time i "go"
>> > > (sudocrem works for me if i'm sore, i use vaseline
>> > in
>> > > between) I had no problems. The output is thicker
>> > > (just avoid fruit juice, Salad and too much sugar)
>> > > Some days my waste is almost formed! My loop
>> > ileostomy
>> > > was a nightmare, I had some of my worst ever days
>> > with
>> > > it. Your confidence will grow, the first few days
>> > are
>> > > interesting but after that it just kept getting
>> > > better.
>> > >
>> > > My past seems like a nightmare now and I try to
>> > > remember every day how lucky I am. Just wait til
>> > you
>> > > put your clothes on again after the op and have no
>> > bag
>> > > it's fantastic.
>> > >
>> > > I took ernies list into hospital with me and
>> > refered
>> > > to it regularly. Its a huge help. Watch what the
>> > > nurses try to give u to eat, I had my first op and
>> > > went onto the colorectal unit in Oxford but the
>> > second
>> > > time it was a smaller op and I was put onto the
>> > > vasculr ward, the nurses had no idea!
>> > >
>> > > Keep in touch, I'm happy to help.
>> > >
>> > > Love
>> > > Helen x
>> > > --- shaybe68 <shaybe68@> wrote:
>> > >
>> > > >
>> > > > Dear Helen,
>> > > >
>> > > > Many thanks for your mail about the reconnection
>> > and
>> > > > for your
>> > > > advice. I was switched to a convex pouch about 3
>> > > > weeks ago but the
>> > > > damage has already been done. It hasn't become
>> > any
>> > > > worse but hasn't
>> > > > become any better either! I'll put up with it
>> > for
>> > > > another week or
>> > > > two and if the operation goes ahead then will be
>> > > > worth the hassle.
>> > > >
>> > > > I'm delighted that your last operation was such
>> > a
>> > > > success and I hope
>> > > > mine goes as well as yours. Good to hear from
>> > > > someone who has been
>> > > > through it and not just reading the information
>> > > > booklets. If you
>> > > > don't mind, I would like to ask you another
>> > > > question? Is there a
>> > > > noticable difference between the output from the
>> > > > stoma and the
>> > > > output from the reconnection? I am hoping that,
>> > with
>> > > > the extra bowel
>> > > > re-attached, and it becomming a bit longer, that
>> > I
>> > > > don't have the
>> > > > same output and it's not as 'corrosive' if you
>> > know
>> > > > what I mean.
>> > > >
>> > > > Thanks once again for your message and it was
>> > really
>> > > > encouraging to
>> > > > hear from someone on the other side of the
>> > > > operation.
>> > > >
>> > > > Take care,
>> > > >
>> > > > Shay
>> > > >
>> > > >
>> > > >
>> > > >
>> > > >
>> > >
>> > >
>> > >
>> > >
>> > >
>> >
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