Okay I'll bite.. I would be interested in seeing ernies list if he
wouldnt mind posting it. I have had a total colectomy due to UC
about 15 yrs ago and since I also have MS they and I felt a reversal
would be risky. My stoma has given me little to no trouble but I am
always ready to learn something new. Maybe ernies list has a
treasure for me.
thanks Kim

--- In ukostomysupport@yahoogroups.com, Helen Garratt <babeof71@...>
wrote:
>
> Hi Kim
> Enrie has a list of 'Do's and Don'ts!. It's great
> advice collected from lots of people which realates to
> everything from what to eat to slow down output to
> dealing with sore skin with or without a bag.
> I know for sure he'll send it to you if u ask.
> Hope all is well with you.
> Happy to help.
> Helen
> --- Kim <forlight@...> wrote:
>
> >
> > Hi all, Sorry to butt in but what is ernies list? I
> > have had a
> > total colectomy w/o the option of reversal and am
> > curious.. I havent
> > heard of ernies list. It probably doesnt apply to
> > me but being the
> > curious person I am I gotta ask...
> > Kim
> > --- In ukostomysupport@yahoogroups.com, Helen
> > Garratt <babeof71@>
> > wrote:
> > >
> > > Hi Shay
> > > Don't worry, the output will be much kinder when
> > you
> > > are connected. I had a Chicken Biryani for tea
> > last
> > > night and cos i put cream on every time i "go"
> > > (sudocrem works for me if i'm sore, i use vaseline
> > in
> > > between) I had no problems. The output is thicker
> > > (just avoid fruit juice, Salad and too much sugar)
> > > Some days my waste is almost formed! My loop
> > ileostomy
> > > was a nightmare, I had some of my worst ever days
> > with
> > > it. Your confidence will grow, the first few days
> > are
> > > interesting but after that it just kept getting
> > > better.
> > >
> > > My past seems like a nightmare now and I try to
> > > remember every day how lucky I am. Just wait til
> > you
> > > put your clothes on again after the op and have no
> > bag
> > > it's fantastic.
> > >
> > > I took ernies list into hospital with me and
> > refered
> > > to it regularly. Its a huge help. Watch what the
> > > nurses try to give u to eat, I had my first op and
> > > went onto the colorectal unit in Oxford but the
> > second
> > > time it was a smaller op and I was put onto the
> > > vasculr ward, the nurses had no idea!
> > >
> > > Keep in touch, I'm happy to help.
> > >
> > > Love
> > > Helen x
> > > --- shaybe68 <shaybe68@> wrote:
> > >
> > > >
> > > > Dear Helen,
> > > >
> > > > Many thanks for your mail about the reconnection
> > and
> > > > for your
> > > > advice. I was switched to a convex pouch about 3
> > > > weeks ago but the
> > > > damage has already been done. It hasn't become
> > any
> > > > worse but hasn't
> > > > become any better either! I'll put up with it
> > for
> > > > another week or
> > > > two and if the operation goes ahead then will be
> > > > worth the hassle.
> > > >
> > > > I'm delighted that your last operation was such
> > a
> > > > success and I hope
> > > > mine goes as well as yours. Good to hear from
> > > > someone who has been
> > > > through it and not just reading the information
> > > > booklets. If you
> > > > don't mind, I would like to ask you another
> > > > question? Is there a
> > > > noticable difference between the output from the
> > > > stoma and the
> > > > output from the reconnection? I am hoping that,
> > with
> > > > the extra bowel
> > > > re-attached, and it becomming a bit longer, that
> > I
> > > > don't have the
> > > > same output and it's not as 'corrosive' if you
> > know
> > > > what I mean.
> > > >
> > > > Thanks once again for your message and it was
> > really
> > > > encouraging to
> > > > hear from someone on the other side of the
> > > > operation.
> > > >
> > > > Take care,
> > > >
> > > > Shay
> > > >
> > > >
> > > >
> > > >
> > > >
> > >
> > >
> > >
> > >
> > >
> >
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