Hi Kim
Enrie has a list of 'Do's and Don'ts!. It's great
advice collected from lots of people which realates to
everything from what to eat to slow down output to
dealing with sore skin with or without a bag.
I know for sure he'll send it to you if u ask.
Hope all is well with you.
Happy to help.
Helen
--- Kim <forlight@...> wrote:

>
> Hi all, Sorry to butt in but what is ernies list? I
> have had a
> total colectomy w/o the option of reversal and am
> curious.. I havent
> heard of ernies list. It probably doesnt apply to
> me but being the
> curious person I am I gotta ask...
> Kim
> --- In ukostomysupport@yahoogroups.com, Helen
> Garratt <babeof71@...>
> wrote:
> >
> > Hi Shay
> > Don't worry, the output will be much kinder when
> you
> > are connected. I had a Chicken Biryani for tea
> last
> > night and cos i put cream on every time i "go"
> > (sudocrem works for me if i'm sore, i use vaseline
> in
> > between) I had no problems. The output is thicker
> > (just avoid fruit juice, Salad and too much sugar)
> > Some days my waste is almost formed! My loop
> ileostomy
> > was a nightmare, I had some of my worst ever days
> with
> > it. Your confidence will grow, the first few days
> are
> > interesting but after that it just kept getting
> > better.
> >
> > My past seems like a nightmare now and I try to
> > remember every day how lucky I am. Just wait til
> you
> > put your clothes on again after the op and have no
> bag
> > it's fantastic.
> >
> > I took ernies list into hospital with me and
> refered
> > to it regularly. Its a huge help. Watch what the
> > nurses try to give u to eat, I had my first op and
> > went onto the colorectal unit in Oxford but the
> second
> > time it was a smaller op and I was put onto the
> > vasculr ward, the nurses had no idea!
> >
> > Keep in touch, I'm happy to help.
> >
> > Love
> > Helen x
> > --- shaybe68 <shaybe68@...> wrote:
> >
> > >
> > > Dear Helen,
> > >
> > > Many thanks for your mail about the reconnection
> and
> > > for your
> > > advice. I was switched to a convex pouch about 3
> > > weeks ago but the
> > > damage has already been done. It hasn't become
> any
> > > worse but hasn't
> > > become any better either! I'll put up with it
> for
> > > another week or
> > > two and if the operation goes ahead then will be
> > > worth the hassle.
> > >
> > > I'm delighted that your last operation was such
> a
> > > success and I hope
> > > mine goes as well as yours. Good to hear from
> > > someone who has been
> > > through it and not just reading the information
> > > booklets. If you
> > > don't mind, I would like to ask you another
> > > question? Is there a
> > > noticable difference between the output from the
> > > stoma and the
> > > output from the reconnection? I am hoping that,
> with
> > > the extra bowel
> > > re-attached, and it becomming a bit longer, that
> I
> > > don't have the
> > > same output and it's not as 'corrosive' if you
> know
> > > what I mean.
> > >
> > > Thanks once again for your message and it was
> really
> > > encouraging to
> > > hear from someone on the other side of the
> > > operation.
> > >
> > > Take care,
> > >
> > > Shay
> > >
> > >
> > >
> > >
> > >
> >
> >
> >
> >
> >
>
___________________________________________________________
>
> > Copy addresses and emails from any email account
> to Yahoo! Mail -
> quick, easy and free.
> http://uk.docs.yahoo.com/trueswitch2.html
> >
>
>
>
>
>
>






___________________________________________________________
All new Yahoo! Mail "The new Interface is stunning in its simplicity and ease of
use." - PC Magazine
http://uk.docs.yahoo.com/nowyoucan.html