Hi all, Sorry to butt in but what is ernies list? I have had a
total colectomy w/o the option of reversal and am curious.. I havent
heard of ernies list. It probably doesnt apply to me but being the
curious person I am I gotta ask...
Kim
--- In ukostomysupport@yahoogroups.com, Helen Garratt <babeof71@...>
wrote:
>
> Hi Shay
> Don't worry, the output will be much kinder when you
> are connected. I had a Chicken Biryani for tea last
> night and cos i put cream on every time i "go"
> (sudocrem works for me if i'm sore, i use vaseline in
> between) I had no problems. The output is thicker
> (just avoid fruit juice, Salad and too much sugar)
> Some days my waste is almost formed! My loop ileostomy
> was a nightmare, I had some of my worst ever days with
> it. Your confidence will grow, the first few days are
> interesting but after that it just kept getting
> better.
>
> My past seems like a nightmare now and I try to
> remember every day how lucky I am. Just wait til you
> put your clothes on again after the op and have no bag
> it's fantastic.
>
> I took ernies list into hospital with me and refered
> to it regularly. Its a huge help. Watch what the
> nurses try to give u to eat, I had my first op and
> went onto the colorectal unit in Oxford but the second
> time it was a smaller op and I was put onto the
> vasculr ward, the nurses had no idea!
>
> Keep in touch, I'm happy to help.
>
> Love
> Helen x
> --- shaybe68 <shaybe68@...> wrote:
>
> >
> > Dear Helen,
> >
> > Many thanks for your mail about the reconnection and
> > for your
> > advice. I was switched to a convex pouch about 3
> > weeks ago but the
> > damage has already been done. It hasn't become any
> > worse but hasn't
> > become any better either! I'll put up with it for
> > another week or
> > two and if the operation goes ahead then will be
> > worth the hassle.
> >
> > I'm delighted that your last operation was such a
> > success and I hope
> > mine goes as well as yours. Good to hear from
> > someone who has been
> > through it and not just reading the information
> > booklets. If you
> > don't mind, I would like to ask you another
> > question? Is there a
> > noticable difference between the output from the
> > stoma and the
> > output from the reconnection? I am hoping that, with
> > the extra bowel
> > re-attached, and it becomming a bit longer, that I
> > don't have the
> > same output and it's not as 'corrosive' if you know
> > what I mean.
> >
> > Thanks once again for your message and it was really
> > encouraging to
> > hear from someone on the other side of the
> > operation.
> >
> > Take care,
> >
> > Shay
> >
> >
> >
> >
> >
>
>
>
>
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