Hi Shay
I had my ileo reversed in November after nearly 4
years with a bag and several ops. The problem you have
I believe is that you need convex pouches to push your
stoma out and away from the skin. I had the same
problem and the itching and soreness drove me mad. The
convex pouches had a raised centre designed to improve
the seal and position of your stoma.
I was really worried about the reconnection but it
really was the easiest surgery I ahd and also the
happiest. Yes I went to the toilet every hour for the
first 4/5 days but with perseverance I was improving
every day. Now on a good day I go 5/6 times depending
on what I eat. Just follow the advice on Ernies diet
sheet and you'll do really well. I have a bowl of
porridge (with honey not sugar) and 3 digestive
biscuits with a cup of tea for my breakfast every
morning, I swear this sets me up for a good day.
Hope this helps
Love
Helen
--- Shay Watts <shaybe68@...> wrote:
> Hi. I have just joined the group and I am hoping
> that other members may be able to offer me some
> advice. I have recently had a temporary ileostomy
> procedure after the removal of my large bowel
> following a diagnosis for FAP. I am now 7 weeks
> post-op and although the surgeon did a very good job
> and is happy to follow on with the closure of the
> loop and connection of the pouch, he was planning to
> do it after 12 - 16 weeks. The problem is the stoma
> opening has turned nearly under the skin with the
> result that the surrounding skin has been badly
> damaged and now has a wonderful ulcer attached to
> the side. The surgeon has been forced to undertake
> the reversal in about 2 weeks time and, after x-rays
> next week, will try and go ahead the week after -
> (If i can get a bed!) - With the wonderful Irish
> health sysyem, I could be waiting about 6 - 9 months
> so it's not a bad thing to happen really and will
> get it reversed a lot quicker than some other
> people.
>
> Sorry for going on so long but if anyone has had a
> loop closed off and reversed, then I would really
> appreciate any advice and what problems I can
> expect. It's arrived a bit quicker than expected and
> information is a bit thin on the ground. Also any
> advice or help on protecting my already damaged skin
> around the stoma would be greatly appreciated. I
> have a really nice stoma nurse in the hospital, but
> her best advice is take the top part of the bag off,
> bung in the powder and the paste and hope it doesn't
> get any worse! I have to change the flange once or
> twice a day and it burns and stings a lot so any
> advice would be a help.
>
> Thanks,
>
> Shay
>
>
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