Group Information- Members: 158
- Category: Ataxia
- Founded: Aug 14, 2005
- Language: English
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Description
Hello friends. My name is Christopher and I'm a 38 year old Ataxian (SCA2) from Chicago, Illinois.
I feel that our condition is so rare, and our lives have been altered to such a devastating level, that we have a very unique bond with one another. We should exploit this fact, and bring ourselves together. We Ataxians are all brothers and sisters, both in mind, and in spirit. I truly believe this.
I think support groups are truly a Godsend. I head up my own support group here in the city. I also attend the other Chicago Ataxia Support Group get together in the suburbs without fail, that meets on opposing months, and I totally love it. These are some of the best people on the planet, and I have the best time there. You definitely feel a strong connection with people who have the same illness you do. My wish and my desire is to make it more accessible for all Ataxians in this country, and the world, to share in my joy and the camaraderie I've developed over the years.
I am interested in the sincere innermost thoughts and feelings of my fellow Ataxians. I tend to keep my personal feelings to myself usually, because the majority of my ablebodied friends and relatives can only sympathize with my plight, but my brothers and sisters with this illness can truly empathize.
I want to read your story, your concerns, your thoughts, your fears, etc. No topic is out of bounds. I encourage you to open up, and leave your most honest thoughts and feelings on the page.
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Posted - Sun Nov 22, 2009 6:18 pm
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Robin Viland
anmllvr61
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Re: peeing problem
why don't you just use tena pads or poise or even depends if you need to. peeing on yourself sucks! Jen/38/SCA2/OH
Posted - Sat Nov 21, 2009 10:36 pm
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Jennifer Mueller
jenmu
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Re: peeing problem
I completely understand your frustration because I deal with same problem. Even though I can take myself to the bathroom it takes four times longer to get
Posted - Sat Nov 21, 2009 6:41 pm
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STEPHANIE KILGORE
srkilgore...
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peeing problem
Actually I am just really angry at my body! It is just so annoying especially since I don't like to sit doing nothing for 10 minutes. I wonder if this is
Posted - Sat Nov 21, 2009 5:52 pm
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Pinky Patel
pinkdreams_1
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Re: Progression...
I am 27 and I was diagnosed with FA in 1992 but the doctors began searching for a diagnosis in the middle of 1987. I guess the process of finding a diagnosis
Posted - Sat Nov 21, 2009 5:19 pm
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Pinky Patel
pinkdreams_1
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