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u_r_notalone · Ataxia Friends and Support

Group Information

  • Members: 156
  • Category: Ataxia
  • Founded: Aug 14, 2005
  • Language: English
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Activity within 7 days:

3 New Members - 93 New Messages - New Questions

Description

Hello friends. My name is Christopher and I'm a 38 year old Ataxian (SCA2) from Chicago, Illinois.

I feel that our condition is so rare, and our lives have been altered to such a devastating level, that we have a very unique bond with one another. We should exploit this fact, and bring ourselves together. We Ataxians are all brothers and sisters, both in mind, and in spirit. I truly believe this.

I think support groups are truly a Godsend. I head up my own support group here in the city. I also attend the other Chicago Ataxia Support Group get together in the suburbs without fail, that meets on opposing months, and I totally love it. These are some of the best people on the planet, and I have the best time there. You definitely feel a strong connection with people who have the same illness you do. My wish and my desire is to make it more accessible for all Ataxians in this country, and the world, to share in my joy and the camaraderie I've developed over the years.

I am interested in the sincere innermost thoughts and feelings of my fellow Ataxians. I tend to keep my personal feelings to myself usually, because the majority of my ablebodied friends and relatives can only sympathize with my plight, but my brothers and sisters with this illness can truly empathize.

I want to read your story, your concerns, your thoughts, your fears, etc. No topic is out of bounds. I encourage you to open up, and leave your most honest thoughts and feelings on the page.

Most Recent Messages

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Re: doctors answer
if you were to take any medicine for any symptoms of ataxia, the symptoms may be alleviated, but the ataxia still progresses. so I don't understand your
Posted - Sun Nov 8, 2009 3:06 pm
Jennifer Mueller
jenmu
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Re: doctors answer
thats precisely y i hate going to all this docs my parents want me to go. i dun need 5,6,7 opinions to tell me theres no cure for this. it actually breaks down
Posted - Sun Nov 8, 2009 7:20 am
Tan Alfred
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Re: doctors answer
Exactly right.   all of that.  so Tammy, y would you want to get rid of THIS doc?  he didn't really say anything wrong.  he didn't say anything that any
Posted - Sun Nov 8, 2009 4:19 am
Chris Marsh
crocketttr512
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Re: doctors answer
hi tammy i don't want to speak for us all, but i think most of us know more about ataxia than our doctor does - i do, anyway. do you like this dr.?  you have
Posted - Sun Nov 8, 2009 4:05 am
Chris F.
igoeek38
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doctors answer
I have a doctor and when discussing ataxia about medicine or to that nature,tells me there is no cure and can take anything for ataxia but I know it. I thought
Posted - Sun Nov 8, 2009 3:53 am
TammyK
iceteezz
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 423 251 281 440 513 367 273 638 353 450 96
2008 250 224 262 299 285 172 360 345 364 443 226 144
2007 215 170 179 231 264 350 449 309 246 377 311 223
2006 234 219 87 146 203 183 250 223 156 89 141 140
2005 215 315 348 93 109
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