Hello, I just wondered if any one besides me is watching this group. I would like for this to become a good functioning group. Karen Pope mom to 2 kids with...
Karen Pope
kpope0921@...
Aug 16, 2001 7:35 pm
8
Hello, Thank you for making this group. Our eight month old daughter was born premature on July 9 of this past year and diagnosed a month later as having...
I have been looking for others with children that have 9q and have had a hard time finding anyone. I was beginning to think that my child was the only one....
Hi LP, You are not alone. I have three children (of which one is deceased) that have an unbalanced chromosome translocation resulting in 1p36 deletion and...
Amen sister! This is outstanding. This lady tells it like it is. Last week, the Shelby County Alabama Legislative Delegation hosted a "Stand Up for America...
My daughter Tyler was born 10/30/1997. Before she was born, she was diagnosed as a mosaic trisomy 9. They told me she would never be able to function on her...
My baby daughter has a Trisomy. Her Trisomy was 12. I had a difficult time finding information on the Trisomy she has because,it is rare. She was born with...
My baby daughter has a Trisomy. Her Trisomy was 12. I had a difficult time finding information on the Trisomy she has because,it is rare. She was born with...
Carol, I can not begin to understand how hard it has been for you to loose your young daughter. I have received your E-mail, and have read it over and over...
My baby brother was born with Trisomy 9 mosaicism back in 1981, he died at the age of two. When I became pregnant with my daughter I was terrified that she...
Hello Teresa, I do not mind the question at all. I would like to help as many people as I can if possible. When I got the news my baby daughter had a...
Hi, I'm a mom of three great kids. Lauren 13, Mathew 5 and Andrew (who would be 15) deceased at 3 mos. Lauren and Mathew have been confirmed to have an...
Thank you for your letter. I'm sorry for the loss of your Andrew too. I think I will run all of this by my doctor and see what he thinks of it. Maybe things...
Hello everyone. My name is Ceci Dunn. I've joined this list to ask if any of you would like to share your stories with me. I am writing a book on Trisomy and...
Hello, my name is cyndy and i just finished reading the messages posted and reminded of the heartache of news our baby was diagnosed with trisomy 9. i am new...
Hello Cyndy, My daughter had a trisomy. She had many heart defects and she lived 6 months. Her passing away was harder on us than the news she had a...
Hi Carol, I'm very sorry for the loss of your daughter. Did she have medical conditions the entire time? Hanna does not have any "major" medical problems,...
Hello Cyndy, Welcome to the group. My name is Ceci, I don't have any children with trisomic disorders, but I work with children who do. It sounds like you have...
Hello My Name is Megan, My son was diagnosed with Trisomy 9Q34 and 22Q13 deletion. I am looking for other parents gowing/ or gone threw the same or similar. He...
Hello Megan, Congatulations on your little boy (Cole?). How are you and he doing? I know it is frustrating because ther is hardly any information out there....
Hello, my name is Cindy, and I have a little girl who is 2 named Eleora she has a partial trisomy 13 with a partial deletion of 9. I know how hard it is to...
Nice to meet you! Wow its just alot to take in. We live in San Diego Ca, I am from Ohio and my husband Pat is from up state NY, we are both in the navy. Cole...
Megan My daughter Lauren 13 and my son Mathew 6 both have an unbalanced translocation of chr. 1:9 Resulting in 1p36 deletion (monosomy) AND 9q34 duplication...
Hi Megan, Looking at the response you recieved it is clear that you are not alone in your struggles. I know how frustrating it is not knowing what the future...
The flu would set him back even further than a cold would. I give my daughter the shot every year. Cindy ... From: Coles Mom [mailto:shyygrl411@...] ...
Our daughter is coming up to 5 Months and has been diagnosed with trisomy 9q - i notice from the dates in this group that there has been little activity... is...
My name is Cynthia toomey my daughter has a partial trisomy 13 with partial deletion of 9 but I spoke to someone recently whose son has a full trisomy 9 ...
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