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Messages 35 - 64 of 123   Oldest  |  < Older  |  Newer >  |  Newest
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35
Our daughter is coming up to 5 Months and has been diagnosed with trisomy 9q - i notice from the dates in this group that there has been little activity... is...
mickybill28
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Jun 16, 2005
7:24 am
36
My name is Cynthia toomey my daughter has a partial trisomy 13 with partial deletion of 9 but I spoke to someone recently whose son has a full trisomy 9 ...
toomey
cindytoomey2002
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Jun 16, 2005
12:37 pm
37
Hi, my name is Cyndy and my 18 month old, Hanna, has trisomy 9 mosaic. I'm glad you got my e-mail. If you want to talk or have questions feel free to write...
Cyndy Krietsch
tynty
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Jun 16, 2005
3:47 pm
38
Hi, Both my children have unbalanced translocation resulting in 1p36 deletion (monosomy) and 9q34 duplication (trisomy). I feel my children have strong ...
Karen Cook
kpope0921
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Jun 16, 2005
5:53 pm
39
Hello My name is Megan, My son Cole who is 14mos old has trisomy 9, and deletion 22Q13. We are still out here, I promise!! Cole was diagnosed when he was4 mos...
Coles Mom
shyygrl411
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Jun 16, 2005
6:37 pm
40
Hi! My name is Lois. I have a 5 year old daughter, Sophie, with an addition to the long arm of chromosome 9. She is starting to walk independently for a few...
Tim and Lois Pettman
pettmantl
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Jun 23, 2005
6:43 pm
41
I have had to change our email address due to spamming. Could all contact regarding emily grace please go to this address. It is good to know that people are...
stokesfamily21
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Jul 4, 2005
10:51 am
42
No new activety in a while, I hope everyone is doing well. Cole is doing well had a minor set back due to seziures, but is coming back full speed. We are...
Coles Mom
shyygrl411
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Sep 29, 2005
5:37 pm
43
Hi. I'm autistic also. Does your son have an unusual appearance, birth defects, etc as well as autism? If so, he may well have some kind of syndrome, possibly...
ettinashee
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Oct 26, 2005
1:09 am
44
You have given me wonderful information. My baby brother did have complete mosaicism, he was not supposed to have lived as long as he did. My son does not...
shanley teresa
shanley_n_te...
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Oct 26, 2005
1:35 am
45
I think it's a good idea not to pay too much attention to the MR label in autistics. Not all autistics have MR, but many with communication difficulties are...
ettinashee
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Oct 31, 2005
1:05 am
46
My name is Kimberly and I'm the mother of Lindsey, who is 20 and has Trisomy 9q with monosomy of xq. I was surprised to come across this group. When my...
Kimberly
pilateskim
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Nov 13, 2005
1:43 am
47
Hi Kimberly, my name is Cyndy and I am the mother of Hanna, 2yrs old, and am curious if Lindsey has/had any delays or effects of the trisomy 9? thanks ... ...
Cyndy Krietsch
tynty
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Nov 13, 2005
3:12 pm
48
In a message dated 11/13/2005 10:12:55 A.M. US Eastern Standard Time, Hi Cyndy, Lindsey was born with five holes in her heart. Four closed on their own and ...
pilateskim@...
pilateskim
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Nov 13, 2005
3:32 pm
49
Hi my name is Cindy also. My daughter is a partial trisomy 13 with a partial Deletion of 9. The doctors are not sure that the deleted portion of 9 caries any...
toomey
cindytoomey2002
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Nov 13, 2005
7:16 pm
50
My 9 yesr old son Trent was just diagnosed with Partial Trisomy for the Long arm Subtelomere Region of Chromosome 9 After researching other trisomy 9 disorders...
jinxgrd
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Dec 9, 2005
4:17 am
51
Yeah I know, I never really thought this stuff would work either, but honestly I stand totally corrected. This place http://www.meetthemonlinenow.info/pleh is...
kendra.mackey9198@...
Send Email
Jan 9, 2006
1:41 pm
52
Yeah I know, I never really thought this stuff would work either, but honestly I stand totally corrected. This place http://www.theonlineparty.info/cuum is...
kendra.mackey9198@...
Send Email
Jan 18, 2006
12:53 pm
53
This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
HPVfriend7@...
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Feb 3, 2006
12:20 am
54
Hi I'm Venita I have a 17 year old bother with Trisomy 9. I would like to get in contact with other families with children with Trisomy 9....
venitakay
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Feb 8, 2006
9:58 pm
55
http://www.trisomy9.com http://www.trisomy9.org http://www.trisomy9.org/9tips.htm All three of those might help. What's your brother like, by the way? Ettina ...
ettinashee
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Feb 9, 2006
6:50 pm
56
found this cool place, actually, not even sure I want to share my secret source hehe. But you know what, Im a generous guy so i guess ill help you out, plenty...
diva-bensley795@...
Send Email
Mar 2, 2006
12:44 pm
57
Wow, what a blast, what a trip actually. was kind of getting bored with the net, was gonna get rid of my broadband and go back to 56k because i hardly used the...
diva-bensley795@...
Send Email
Mar 12, 2006
9:43 am
58
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help peoplethose who are suffering...
disease_curezone
disease_cure...
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Mar 23, 2006
8:08 pm
59
check out this place guys, its great, my new homepage lol! http://www.haveagreattime.info/qqzl i only got on there about 2 hours ago, but already loving the...
diva-bensley795@...
Send Email
Mar 24, 2006
2:34 am
60
I am now to be referred to as Dr. Jenkins haha ;) Took me about a month to get fully certified, but after ringing these ppl 1 770 621-2634 they...
savanna-terk308@...
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Apr 29, 2007
4:03 pm
61
Just got my BS and i wasnt even required to turn up! Just called these people 770-621-2634, filled out a few forms and a bit of paperwork and was...
savanna-terk308@...
Send Email
May 1, 2007
7:33 am
62
Just got my masters in Science and didnt even have to turn up to class... how good is that? Just phoned these fellows 770 621-2634 and they got me fully ...
savanna-terk308@...
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May 2, 2007
6:38 pm
63
Handsome and Cool Bikers looking for fun! Chat with them here: http://coolbiker0195.googlepages.com/bikerboyz.htm...
bikerguy1957
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May 21, 2007
5:03 pm
64
SexyJoy has added you as a friend. Check SexyJoy's profile here: http://sexyjoytrfriend.googlepages.com/sexyjoy.htm...
sexyjoy3622
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Jun 1, 2007
10:26 am
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