Hello, my name is cyndy and i just finished reading the messages posted and reminded of the heartache of news our baby was diagnosed with trisomy 9. i am new...
Hello Cyndy, My daughter had a trisomy. She had many heart defects and she lived 6 months. Her passing away was harder on us than the news she had a...
Hi Carol, I'm very sorry for the loss of your daughter. Did she have medical conditions the entire time? Hanna does not have any "major" medical problems,...
Hello Cyndy, Welcome to the group. My name is Ceci, I don't have any children with trisomic disorders, but I work with children who do. It sounds like you have...
Hello My Name is Megan, My son was diagnosed with Trisomy 9Q34 and 22Q13 deletion. I am looking for other parents gowing/ or gone threw the same or similar. He...
Hello Megan, Congatulations on your little boy (Cole?). How are you and he doing? I know it is frustrating because ther is hardly any information out there....
Hello, my name is Cindy, and I have a little girl who is 2 named Eleora she has a partial trisomy 13 with a partial deletion of 9. I know how hard it is to...
Nice to meet you! Wow its just alot to take in. We live in San Diego Ca, I am from Ohio and my husband Pat is from up state NY, we are both in the navy. Cole...
Megan My daughter Lauren 13 and my son Mathew 6 both have an unbalanced translocation of chr. 1:9 Resulting in 1p36 deletion (monosomy) AND 9q34 duplication...
Hi Megan, Looking at the response you recieved it is clear that you are not alone in your struggles. I know how frustrating it is not knowing what the future...
The flu would set him back even further than a cold would. I give my daughter the shot every year. Cindy ... From: Coles Mom [mailto:shyygrl411@...] ...
Our daughter is coming up to 5 Months and has been diagnosed with trisomy 9q - i notice from the dates in this group that there has been little activity... is...
My name is Cynthia toomey my daughter has a partial trisomy 13 with partial deletion of 9 but I spoke to someone recently whose son has a full trisomy 9 ...
Hi, my name is Cyndy and my 18 month old, Hanna, has trisomy 9 mosaic. I'm glad you got my e-mail. If you want to talk or have questions feel free to write...
Hi, Both my children have unbalanced translocation resulting in 1p36 deletion (monosomy) and 9q34 duplication (trisomy). I feel my children have strong ...
Hello My name is Megan, My son Cole who is 14mos old has trisomy 9, and deletion 22Q13. We are still out here, I promise!! Cole was diagnosed when he was4 mos...
Hi! My name is Lois. I have a 5 year old daughter, Sophie, with an addition to the long arm of chromosome 9. She is starting to walk independently for a few...
I have had to change our email address due to spamming. Could all contact regarding emily grace please go to this address. It is good to know that people are...
No new activety in a while, I hope everyone is doing well. Cole is doing well had a minor set back due to seziures, but is coming back full speed. We are...
Hi. I'm autistic also. Does your son have an unusual appearance, birth defects, etc as well as autism? If so, he may well have some kind of syndrome, possibly...
You have given me wonderful information. My baby brother did have complete mosaicism, he was not supposed to have lived as long as he did. My son does not...
I think it's a good idea not to pay too much attention to the MR label in autistics. Not all autistics have MR, but many with communication difficulties are...
My name is Kimberly and I'm the mother of Lindsey, who is 20 and has Trisomy 9q with monosomy of xq. I was surprised to come across this group. When my...
Hi Kimberly, my name is Cyndy and I am the mother of Hanna, 2yrs old, and am curious if Lindsey has/had any delays or effects of the trisomy 9? thanks ... ...
In a message dated 11/13/2005 10:12:55 A.M. US Eastern Standard Time, Hi Cyndy, Lindsey was born with five holes in her heart. Four closed on their own and ...
Hi my name is Cindy also. My daughter is a partial trisomy 13 with a partial Deletion of 9. The doctors are not sure that the deleted portion of 9 caries any...
My 9 yesr old son Trent was just diagnosed with Partial Trisomy for the Long arm Subtelomere Region of Chromosome 9 After researching other trisomy 9 disorders...
Yeah I know, I never really thought this stuff would work either, but honestly I stand totally corrected. This place http://www.meetthemonlinenow.info/pleh is...
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