Carol, I can not begin to understand how hard it has been for you to loose your young daughter. I have received your E-mail, and have read it over and over...
My baby brother was born with Trisomy 9 mosaicism back in 1981, he died at the age of two. When I became pregnant with my daughter I was terrified that she...
Hello Teresa, I do not mind the question at all. I would like to help as many people as I can if possible. When I got the news my baby daughter had a...
Hi, I'm a mom of three great kids. Lauren 13, Mathew 5 and Andrew (who would be 15) deceased at 3 mos. Lauren and Mathew have been confirmed to have an...
Thank you for your letter. I'm sorry for the loss of your Andrew too. I think I will run all of this by my doctor and see what he thinks of it. Maybe things...
Hello everyone. My name is Ceci Dunn. I've joined this list to ask if any of you would like to share your stories with me. I am writing a book on Trisomy and...
Hello, my name is cyndy and i just finished reading the messages posted and reminded of the heartache of news our baby was diagnosed with trisomy 9. i am new...
Hello Cyndy, My daughter had a trisomy. She had many heart defects and she lived 6 months. Her passing away was harder on us than the news she had a...
Hi Carol, I'm very sorry for the loss of your daughter. Did she have medical conditions the entire time? Hanna does not have any "major" medical problems,...
Hello Cyndy, Welcome to the group. My name is Ceci, I don't have any children with trisomic disorders, but I work with children who do. It sounds like you have...
Hello My Name is Megan, My son was diagnosed with Trisomy 9Q34 and 22Q13 deletion. I am looking for other parents gowing/ or gone threw the same or similar. He...
Hello Megan, Congatulations on your little boy (Cole?). How are you and he doing? I know it is frustrating because ther is hardly any information out there....
Hello, my name is Cindy, and I have a little girl who is 2 named Eleora she has a partial trisomy 13 with a partial deletion of 9. I know how hard it is to...
Nice to meet you! Wow its just alot to take in. We live in San Diego Ca, I am from Ohio and my husband Pat is from up state NY, we are both in the navy. Cole...
Megan My daughter Lauren 13 and my son Mathew 6 both have an unbalanced translocation of chr. 1:9 Resulting in 1p36 deletion (monosomy) AND 9q34 duplication...
Hi Megan, Looking at the response you recieved it is clear that you are not alone in your struggles. I know how frustrating it is not knowing what the future...
The flu would set him back even further than a cold would. I give my daughter the shot every year. Cindy ... From: Coles Mom [mailto:shyygrl411@...] ...
Our daughter is coming up to 5 Months and has been diagnosed with trisomy 9q - i notice from the dates in this group that there has been little activity... is...
My name is Cynthia toomey my daughter has a partial trisomy 13 with partial deletion of 9 but I spoke to someone recently whose son has a full trisomy 9 ...
Hi, my name is Cyndy and my 18 month old, Hanna, has trisomy 9 mosaic. I'm glad you got my e-mail. If you want to talk or have questions feel free to write...
Hi, Both my children have unbalanced translocation resulting in 1p36 deletion (monosomy) and 9q34 duplication (trisomy). I feel my children have strong ...
Hello My name is Megan, My son Cole who is 14mos old has trisomy 9, and deletion 22Q13. We are still out here, I promise!! Cole was diagnosed when he was4 mos...
Hi! My name is Lois. I have a 5 year old daughter, Sophie, with an addition to the long arm of chromosome 9. She is starting to walk independently for a few...
I have had to change our email address due to spamming. Could all contact regarding emily grace please go to this address. It is good to know that people are...
No new activety in a while, I hope everyone is doing well. Cole is doing well had a minor set back due to seziures, but is coming back full speed. We are...
Hi. I'm autistic also. Does your son have an unusual appearance, birth defects, etc as well as autism? If so, he may well have some kind of syndrome, possibly...
You have given me wonderful information. My baby brother did have complete mosaicism, he was not supposed to have lived as long as he did. My son does not...
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