--- In trisomy_9q@yahoogroups.com, "becksmail306" <becksmail306@...>
wrote:
>
> Hi, I just joined the group. It appears that this group is
inactive.
> My daughter was recently diagnosed with a 9q34 duplication. She is
2.
> I was wondering if anyone else was out there with the same
chromosomal
> abnormality or any info for me? thanks
>
> Becky



>
Hi Becky,
My name is Christy. My son who is 11 yrs. old was diagnosed with
partial trisomy q28;q34.3. I also have the same duplication. I have
not recieved any info from this group on Trisomy 9 but I have gotten
some strange e-mails from here so I do not know much about this group
myself.
My son also has been diagnosed with Asperger's Syndrome. We have been
told that the chromosome defect that we have is very rare and you
really can't find information on it. I have had 6 family members
tested and he and I are the only ones that have it. My husband and I
joined a support group in the United Kingdom because we haven't found
one in the U.S. They can't find anyone with the same defect that we
have either. If you have any questions send me an e-mail I will try
to help if I can.

Christy
jinxgrd@...