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Hi! My name is Lois. I have a 5 year old daughter, Sophie, with an addition to the long arm of chromosome 9. She is starting to walk independently for a few steps in a row. She is excited about potty training. She is learning to communicat with pictures (PECS). This year starts Kindergarten - what a big step for her.
We are still out here and love to hear what is happening with your children.
Coles Mom <shyygrl411@...> wrote:
Coles Mom <shyygrl411@...> wrote:
Hello My name is Megan,
My son Cole who is 14mos old has trisomy 9, and deletion 22Q13.
We are still out here, I promise!! Cole was diagnosed when he was4 mos
old. Please if you need anything let us know!
Megan
--- In trisomy_9q@yahoogroups.com, "mickybill28" <mickybill28@y...>
wrote:
> Our daughter is coming up to 5 Months and has been diagnosed with
> trisomy 9q - i notice from the dates in this group that there has
been
> little activity... is there anyone out there still active??
>
> I hope so
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