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My name is Cynthia toomey my daughter has a partial trisomy 13 with partial deletion of 9 but I spoke to someone recently whose son has a full trisomy 9 actually I have 2 email addresses for you.
I hope this helps.
Cindy
-----Original Message-----
From: trisomy_9q@yahoogroups.com
[mailto:trisomy_9q@yahoogroups.com] On Behalf
Of mickybill28
Sent: Thursday, June 16, 2005 3:25
AM
To: trisomy_9q@yahoogroups.com
Subject: [trisomy_9q] Emily Grace
Our daughter is coming up to 5 Months and has been
diagnosed with
trisomy 9q - i notice from the dates in this group
that there has been
little activity... is there anyone out there still
active??
I hope so
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