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Looking for support   Message List  
Reply | Forward Message #30 of 124 |
Looking for support

Megan

My daughter Lauren 13 and my son Mathew 6 both have an unbalanced
translocation of chr. 1:9
Resulting in 1p36 deletion (monosomy) AND 9q34 duplication (trisomy). I
believe my kids are more affected by the 1p36 deletion than the 9q34
duplication however if I can be of any help to you please let me know. We
can always compare notes!
Congrats on you new bundle of love!

Have a great day
Karen Cook
Tue Nov 9, 2004 3:03 pm

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kpope0921
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Forward 		Message #30 of 124 |
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Hello My Name is Megan, My son was diagnosed with Trisomy 9Q34 and 22Q13 deletion. I am looking for other parents gowing/ or gone threw the same or similar. He... 		Coles Mom
shyygrl411
Offline Send Email 		Nov 8, 2004
1:22 am

Hello Megan, Congatulations on your little boy (Cole?). How are you and he doing? I know it is frustrating because ther is hardly any information out there....
Cyndy Krietsch
tynty
Offline Send Email 		Nov 8, 2004
2:54 pm

Nice to meet you! Wow its just alot to take in. We live in San Diego Ca, I am from Ohio and my husband Pat is from up state NY, we are both in the navy. Cole...
meg lowery
shyygrl411
Offline Send Email 		Nov 8, 2004
6:03 pm

Hello, my name is Cindy, and I have a little girl who is 2 named Eleora she has a partial trisomy 13 with a partial deletion of 9. I know how hard it is to...
toomey
cindytoomey2002
Offline Send Email 		Nov 8, 2004
3:26 pm

Megan My daughter Lauren 13 and my son Mathew 6 both have an unbalanced translocation of chr. 1:9 Resulting in 1p36 deletion (monosomy) AND 9q34 duplication...
Karen Pope
kpope0921
Offline Send Email 		Nov 9, 2004
4:05 pm

Hi Megan, Looking at the response you recieved it is clear that you are not alone in your struggles. I know how frustrating it is not knowing what the future...
Tim and Lois Pettman
pettmantl
Offline Send Email 		Nov 9, 2004
5:32 pm
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