Hello Megan,
Congatulations on your little boy (Cole?). How are
you and he doing? I know it is frustrating because
ther is hardly any information out there. My daughter,
Hanna, has mosaic trisomy 9 with a balanced
translocation (9,16). We were given a very bad
prognosis and decided to induce early. Hanna was 6
weeks early and to this point has not shown any overt
physical signs of trisomy. Hanna has a minor kidney
problem and is hitting milestones around 3-4 months
late but other than that, she is a happy baby.

Have you tried www.trisomy9.org? I think it is a very
hopefull website.

I look forward to hearing from you soon. Thanks again
for writing.

Cyndy
--- Coles Mom <shyygrl411@...> wrote:

>
> Hello My Name is Megan,
> My son was diagnosed with Trisomy 9Q34 and 22Q13
> deletion.
> I am looking for other parents gowing/ or gone threw
> the same or
> similar. He is our first child and is only 7 mos
> old.
>
>
>
>




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