Hi Carol, I'm very sorry for the loss of your
daughter. Did she have medical conditions the entire
time? Hanna does not have any "major" medical
problems, but can I expect to see some shortly? I
don't want to let my guard down so I expect the worst
and hope for the best. Thank you for your willingness
to talk and share about your daughter. By the way, if
you don't mind, what was your daughter's name. I pray
for you and your family and of coarse your angel.
cyndy
--- Carol L <cl_70ok@...> wrote:
> Hello Cyndy, My daughter had a trisomy. She had
> many heart defects and she lived 6 months. Her
> passing away was harder on us than the news she had
> a trisomy.We loved her no matter what and we wanted
> her to live to be with her family.We miss her so
> much.She was loving and had a darlin personality.
> If you like any more information on the medical
> problems please write back.I tried to send this
> e-mail earlier but,I do not think it went through
> because,my PC shut down. God Bless,Carol.
>
> tynty <tynty@...> wrote:Hello,
>
> my name is cyndy and i just finished reading the
> messages posted and
> reminded of the heartache of news our baby was
> diagnosed with
> trisomy 9. i am new to the genetics thing and i
> will admit i do not
> understand some of the abbreviations used (ie. 9q,
> 1p26). my
> daughter, hanna, was diagnosed with mosaic trisomy 9
> with complete
> translocation of 9 and 16. we were told she would
> probably not make
> it to term or live long after birth. she has just
> turned 7 months
> old and does not appear to have any delays or
> problems (knock on
> wood). hanna is slightly delayed in hitting her
> milestone but she
> is hitting them. she has no medical problems except
> a duplicated
> right kidney and has bilateral cholesteatomas. she
> is a delightful,
> smiling, petite little girl. has anyone heard of a
> functioning
> trisomy 9 kids? can i let myself not worry? or are
> there delays and
> troubles ahead? thank you. my thoughts and prayers
> are with all.
>
>
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