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Reply | Forward Message #22 of 124 |
Hello,

my name is cyndy and i just finished reading the messages posted and
reminded of the heartache of news our baby was diagnosed with
trisomy 9. i am new to the genetics thing and i will admit i do not
understand some of the abbreviations used (ie. 9q, 1p26). my
daughter, hanna, was diagnosed with mosaic trisomy 9 with complete
translocation of 9 and 16. we were told she would probably not make
it to term or live long after birth. she has just turned 7 months
old and does not appear to have any delays or problems (knock on
wood). hanna is slightly delayed in hitting her milestone but she
is hitting them. she has no medical problems except a duplicated
right kidney and has bilateral cholesteatomas. she is a delightful,
smiling, petite little girl. has anyone heard of a functioning
trisomy 9 kids? can i let myself not worry? or are there delays and
troubles ahead? thank you. my thoughts and prayers are with all.




Sat Jul 3, 2004 3:54 am

tynty
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Message #22 of 124 |
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Hello, my name is cyndy and i just finished reading the messages posted and reminded of the heartache of news our baby was diagnosed with trisomy 9. i am new...
tynty
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Jul 3, 2004
3:54 am

Hello Cyndy, My daughter had a trisomy. She had many heart defects and she lived 6 months. Her passing away was harder on us than the news she had a...
Carol L
cl_70ok
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Jul 4, 2004
5:55 pm

Hi Carol, I'm very sorry for the loss of your daughter. Did she have medical conditions the entire time? Hanna does not have any "major" medical problems,...
Cyndy Krietsch
tynty
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Jul 5, 2004
2:17 pm
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