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Hello Teresa, I do not mind the question at all. I would like to help as many people as I can if possible. When I got the news my baby daughter had a Trisomy it was rough. The doctors did not have an answer to my questions and I really only knew about Trisomy 21 at the time. I was determind to find a answer so,I research as much information as I could. Me and my husband were tested to see if we had a Chromosome defect and the test came back normal.We had no family members with Trisomy. Since our Chromosomes were fine they said,it was De Nova which means my daughter Chromosome defect just happened. It is frustrating to hear that news. She was my only daughter and we loved her so much. It hurts that our precious girl got the Trisomy and all the medical problems that came with
it. Usaully Trisomy and other Chromosome defects are more likely to happen with women pregnant after 35 years old. The older the women the higher the risk. I was 32 years old when this happened to our daughter. Sometimes,women of any age miscarriage because,the baby might of had a Chromosome defect and could not survive. Only way to know for sure is test the infant who miscarried. Trisomy is just one of the many Chromosome defects that can happen. A deletion of a Chromosome can also be bad medically for a baby. Some babies survive and have little medical problems while others have fatal medical problems. Our situtation with our daughter we were surgically trying to repair her
body which was damage from the Trisomy.We loved her and wanted her with us. The large VSD (hole in septal of heart)they(doctor) wanted to repair when she was older and stronger. My baby daughter passed away because,of her heart problem. If I did not help with your question I am sorry. I hope I gave you some information to help. I will tell you everything I know and my experience with Trisomy. Take care,Carol.
shanley_n_teresa <shanley_n_teresa@...> wrote:
shanley_n_teresa <shanley_n_teresa@...> wrote:
My baby brother was born with Trisomy 9 mosaicism back in 1981, he
died at the age of two. When I became pregnant with my daughter I
was terrified that she might too have it, so I went to a genetic
doctor who said that no, my probability of having a child with
trisomy 9 was almost impossible as it is not hereditary. I did
notice that at least one of you have two children with trisomy 9.
How can that be if it's not a hereditary issue.
I have a 3 year old son who has been diagnosed with autism. Now I'm
really curious to know if he may, in fact, have a trisomy of some
sort.
Forgive me for being so ignorant...I was very young and the disease
was practically unheard of at the time I dealt with it.
Teresa
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