My baby daughter has a Trisomy. Her Trisomy was 12. I had a
difficult time finding information on the Trisomy she has because,it
is rare. She was born with Congenital Heart
Defects,Omphalocele,Cloacal Extrophy,and other medical problems. She
had a beautiful face and her face looked like other normal,healthy
babies. She had personality and I loved hearing her voice. She
would hold your hand and look into your eyes. My daughter lived
almost 6 months before she passed away. I hurt everyday missing
her. I wanted her to be repaired surgically so,she could continue to
live and be with her family. She loved her family very much. We are
grieving for our baby girl and suffer daily wanting to hold her
again.She was a fighter and we hope she would continue to live. Is
there anyone else out there grieving a Trisomy baby who could share
advice with me? I am depressed from missing my daughter.