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#20 From: "Amy" <aloftis@...>
Date: Sun Feb 24, 2008 8:03 pm
Subject: Down Syndrome BElongs
tri21mom
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Here's a video sent by Andrea. Thanks! Copy and paste the link below in
the address toolbar.

http://www.onetruemedia.com/otm_site/view_shared?
p=50a08d8c72399d9fd791c7&sk

#19 From: "Amy" <aloftis@...>
Date: Thu Feb 21, 2008 12:50 am
Subject: Down Syndrome and nutrition
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Does anyone know of any resources about Down Syndrome and nutrition?
Thanks!
Amy

#17 From: Delyssa Huffman <buds.program@...>
Date: Sat Nov 10, 2007 10:21 am
Subject: Pics From Buddy Walk 2007
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Hello! I was just wondering if you were going to update the site with pics from the Buddy Walk. I have lots of them!! Just let me know and I will send them your way:)
 
Delyssa

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#15 From: trisomy21wv@yahoogroups.com
Date: Thu Oct 11, 2007 1:57 pm
Subject: Buddy Walk 2007, 10/13/2007, 10:00 am
trisomy21wv@yahoogroups.com
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Reminder from:   trisomy21wv Yahoo! Group
 
Title:   Buddy Walk 2007
 
Date:   Saturday October 13, 2007
Time:   10:00 am - 2:00 pm
Location:   Charleston Capital Complex
Notes:   The Charleston, WV Buddy Walk attracts at least 500 participants from the tri-state area and across the region. People with Down syndrome, families, and friends walk a one-mile course and also enjoy concessions and entertainment. Our guest speaker, Sujeet Desai, will be leading the 2007 Buddy Walk.
 
Copyright © 2007  Yahoo! Inc. All Rights Reserved | Terms of Service | Privacy Policy

#14 From: trisomy21wv@yahoogroups.com
Date: Wed Oct 3, 2007 1:57 pm
Subject: Buddy Walk 2007, 10/13/2007, 10:00 am
trisomy21wv@yahoogroups.com
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Reminder from:   trisomy21wv Yahoo! Group
 
Title:   Buddy Walk 2007
 
Date:   Saturday October 13, 2007
Time:   10:00 am - 2:00 pm
Next reminder:   The next reminder for this event will be sent in 8 days, 3 minutes.
Location:   Charleston Capital Complex
Notes:   The Charleston, WV Buddy Walk attracts at least 500 participants from the tri-state area and across the region. People with Down syndrome, families, and friends walk a one-mile course and also enjoy concessions and entertainment. Our guest speaker, Sujeet Desai, will be leading the 2007 Buddy Walk.
 
Copyright © 2007  Yahoo! Inc. All Rights Reserved | Terms of Service | Privacy Policy

#13 From: "Amy" <aloftis@...>
Date: Sun Sep 30, 2007 10:04 pm
Subject: Oops! Yahoo Group
tri21mom
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Sorry! I meant to send the following message to a new member! Sent it
to everyone instead.
Amy

Thanks for joining! My name is Amy and I am the mother of Adam. I'm new
to the group. Adam was 1 year old in August. We live in St. Albans.
Hope you can come to the Buddy Walk.
Amy Loftis

#11 From: "Amy" <aloftis@...>
Date: Thu Sep 27, 2007 10:12 pm
Subject: The 29-year-old Portlander with Down syndrome swims across the nation's second-d
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Karen Gaffney conquers Lake Tahoe
"Everest of sorts" - The 29-year-old Portlander with Down syndrome
swims across the nation's second-deepest lake
Wednesday, September 26, 2007
KATY MULDOON
The Oregonian Staff
Celebratory air-horn blasts punctuated the high-Sierra afternoon
Tuesday as Karen Gaffney approached Lake Tahoe's shore and another
landmark accomplishment for those with disabilities.

When she emerged from the water shortly after noon, the 29-year-old
Portlander became the first person with Down syndrome to swim the
nine-mile distance across the nation's second-deepest lake. Her time:
six hours, 15 minutes.

"It felt great out there," Gaffney said by telephone a couple of
hours later. "But I'm happy it's over."
Gaffney first made a name for herself in July 2001, when she became
the first person with Down syndrome to swim the English Channel on a
relay team. She's tackled other open-water challenges since,
including the swim portion of the rigorous Escape From Alcatraz
triathlon in the San Francisco Bay.

The Tahoe swim was her father, Jim's, idea. He'd vacationed there as
a child and knew that for swimmers, it was an Everest of sorts.

The family spent the past two weeks at Tahoe so Gaffney could train
at altitude; the 1,645-foot-deep lake sits at 6,225 feet in the heart
of the Sierra Nevada range. It's clarity is legendary: Swimmers can
see 70 feet down, and it feels, said Ken Harmon, "like you're
swimming on top of a skyscraper."

Harmon, a 47-year-old Californian, claims the record for swimming the
farthest, lengthwise, across Tahoe. The family enlisted his advice to
help Karen Gaffney train and to keep her company, along with a
handful of other swimmers, Tuesday.

Training the past two weeks was tough. Windy weather lathered up
whitecaps on the lake, often forcing Gaffney to move her workout to
nearby pools.

But when they awoke hours before dawn Tuesday, Jim Gaffney said, "it
was one of those Dover days." The day his daughter swam the English
Channel, the usually churning sea between Dover, England, and France
was mirror-smooth.

In the night, the wind had vanished, and Tahoe had flattened. But
balmy, it wasn't
When the family arrived at 4:30 a.m. in Homewood, on the California
shore, they had to tread cautiously along docks and a boat deck iced
with frost. The air temperature shivered at 38 degrees as they
motored across the lake. By the time they got to the put-in at
Deadman Point on the Nevada side, Karen's 4-foot-10-inch, 95-pound
body shook with cold.

Harmon knew it would be warmer in the water, 59 degrees.

It took some persuading, he said, particularly because Karen was
nervous about swimming in the dark. But when Harmon jumped in a
stone's throw from the shoreline cliff at about 6:15 a.m., Gaffney
did, too.

When the family arrived at 4:30 a.m. in Homewood, on the California
shore, they had to tread cautiously along docks and a boat deck iced
with frost. The air temperature shivered at 38 degrees as they
motored across the lake. By the time they got to the put-in at
Deadman Point on the Nevada side, Karen's 4-foot-10-inch, 95-pound
body shook with cold.

Harmon knew it would be warmer in the water, 59 degrees.

It took some persuading, he said, particularly because Karen was
nervous about swimming in the dark. But when Harmon jumped in a
stone's throw from the shoreline cliff at about 6:15 a.m., Gaffney
did, too.

She wore a wet suit and neoprene hood, topped with a swim cap bearing
the logo of the Multnomah Athletic Club, where she typically swims
two miles, six or seven days each week. The routine has helped
alleviate problems associated with her misshapen hips and legs that
splay awkwardly, hallmarks of Down syndrome, a chromosomal
abnormality.

She and Harmon also wore glow sticks on their swim caps so that in
the pitch-black water, they could see each other and the flotilla of
accompanying boats before the sun came up.

Once Gaffney found her rhythm, Harmon said, she never missed a beat
as they swam west across the lake.

Karen stopped every 30 minutes so her uncle, Bill Gaffney of Lake
Oswego, who paddled a kayak, could hand her water, Gatorade, bananas,
Fig Newtons and energy bars.

In addition to Harmon, three others took turns swimming with Gaffney
throughout the morning.

When they were a mile or more from the California shore, Harmon said,
they could see the sandy lake bottom beneath, which made it seem as
if they were almost home. Those waiting on the beach at Homewood
blasted air horns and hollered encouragement.

"All that really carried her," Jim Gaffney said.

Finally, just after 12:30 p.m., Gaffney climbed out of the lake,
greeted by cheers, a bouquet of pink balloons and a bank of TV
cameras.

Someone placed a flower lei around her neck, Harmon said, and a smile
nearly as big as Tahoe crossed the woman's face.

Katy Muldoon: 503-221-8526; katymuldoon@...

#10 From: "Amy" <aloftis@...>
Date: Thu Sep 27, 2007 12:04 am
Subject: Down Syndrome awareness on NBC
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This Friday, September 28th at 9:22 am (EST) NBC's 'The Today Show'
will broadcast a LIVE 4-minute segment featuring NDSS National Buddy
Walk Spokesman John C. McGinley, and NDSS Goodwill Ambassador Chris
Burke in honor of Down syndrome awareness.

The segment will discuss their involvement with NDSS and the Down
syndrome community, as well as highlight the Buddy Walk program and
National Down Syndrome Awareness Month, October.

Please be sure to tune-in to your local NBC station at 9:22 am.

#9 From: "Amy" <aloftis@...>
Date: Fri Sep 21, 2007 12:16 am
Subject: NBC complaint
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Last night on Last Comic Standing.  One of the Comedianne's, Tammy
Pescatelli told the eventual winner that he "Had as much sex appeal
as Corky From Life Goes On"  Last Season, on My Name Is Earl, the
character Joy called Earl's brother Corky.  I realize that one of the
stars of the NBC show Scrubs has a child with down syndrome.
However, there is now a pattern of NBC having shows on which it has
been considered appropriate to make fun of people with down syndrome
by taking pot shots of the character Corky.  I went to the link below
and voiced my disappointment in these two instances and invited NBC
to promote the National Down Syndrome Society or to have a "Now You
Know" segment about it.  One voice will probably be ignored.  Please
feel free to pass this e-mail on.  I will also try to find other
physical addresses and e-mail addresses for us to voice concerns.



http://www.nbc.com/Footer/Contact_Us/



I will also try to find other physical addresses and e-mail addresses
for us to voice concerns.

#8 From: "Amy" <aloftis@...>
Date: Tue Sep 4, 2007 10:17 pm
Subject: Website link
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http://www.cmdss.org/PDF/ParentGuide.pdf


You may have already visited this site but I thought it had a lot of
useful info.

Becky Jack

#7 From: "Amy" <aloftis@...>
Date: Wed Aug 22, 2007 2:00 am
Subject: Research in Denver
tri21mom
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Here's the link to a news story that broke yesterday on some research
happening here in Denver (although you've all probably see the info
already).   Dr. Costa is a true friend of Mile High Down Syndrome
Association, and we have been working closely with him for several
years.

http://www.9news.com/rss/article.aspx?storyid=75828


This is from an e-mail sent from Christy.

#6 From: "Amy" <aloftis@...>
Date: Sat Aug 18, 2007 12:06 am
Subject: DSNWV Website
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The website has been updated with all the new Buddy Walk information.
We will be adding more to the site as we get better at it and think of
new things to add. Check it out:

http://www.dsnwv.org/

If you have any suggestions, please send them my way. Thanks!
Amy

#5 From: "Amy" <aloftis@...>
Date: Fri Aug 17, 2007 4:01 am
Subject: Neat article
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Someone told me that the actor who plays Dr. Cox (John McGinley) has a
son with Down syndrome. I found a neat article about him. Here it is...

http://celebrityparents.com/movie/05060021.php

Amy

#4 From: "Amy" <aloftis@...>
Date: Fri Aug 17, 2007 12:41 am
Subject: Pictures
tri21mom
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Send me an e-mail picture of your child and I can post it in the photo
album.
Thanks,
Amy

#3 From: "Amy" <aloftis@...>
Date: Wed Aug 1, 2007 9:30 pm
Subject: Sujeet Dasai
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Here is a link to the guest speaker, Sujeet Dasai's, website. I am
excited to see him in person at the 2007 Buddy Walk.

http://www.sujeet.com/index.html

#2 From: "Amy" <aloftis@...>
Date: Wed Jul 25, 2007 12:33 am
Subject: Buddy Walk
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Get ready, everybody! The Buddy Walk is coming soon! Mark on your
calendar Saturday, October 13 at the Charleston Capitol Complex. The
Buddy Reception will be the previous night, Friday, October 12 at
Little Creek Country Club in South Charleston. Our guest speaker is
Sujeet Dasai. We will be adding more information as we plan it. We look
forward to seeing you there!

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