Has anyone here or knows of someone who has Geniculate Neuralgia? The symptoms of the severe pain deep in the ear, etc. sounds pretty close to what I've been...
Found this on Neuro site, University of Pittsburgh I think It sounds like TN but a different nerve. Geniculate Neuralgia Geniculate neuralgia may be related to...
Thanks but I already did research on TN and other diseases. I just wanted to know if anyone here has/had these symptoms, and if so, what method did they use to...
I have found these sites. Some do list geniculate but it seems to be lumped, for the most part, with the facial neuralgia resources. There are tons of posts...
Thanks for the info...much appreciated. I checked those sites the other day, and I only found two or three people that had this disease and their surgery was...
I am sry the neurontin isnt helping, there are a bunch of other anticonvulsants out there. I have had benefit from tegretol but not dilantin, for instance so...
Mysteries eh! My last mailing on this site was due to a thought that my daughter, Nikki, may have TN. After having seen local doctors, ENT specialists (NHS +...
That location is the Tempro-mandibular joint TMJ. There is probably a nerve very close to the surface there. (I don't know that for sure.) Years ago, I fell...
Stop the presses! What news! Well, I bet IL-6 is just one of a dozen culprits. *********** BEGIN FORWARDED MESSAGE *********** Janice K. Kiecolt-Glaser,...
Quite intriguing. Here's an idea. If I understand correctly, the opposite nerves in the face can't both work well simultaneously. I am quite serious in...
Dr. Mom & Steve, just a little input about the trigeminal nerve and TMJ. A doctor in Dallas showed me (with a skull in his office) where the trigeminal nerve...
The theory of a vessel pushing against the trigeminal nerve is a theory. There has never been a definite cause found for TN. That is one of the reasons the...
Finally thought we'd found a solution to this relentless TN pain, Trileptol and Baclofen but the Baclofen is tearing my stomach apart. I'm carrying Immodium...
JLEE, you are right, there are many causes of TN, however, "CLASSIC" in the context that the Neurosurgeon at Mayo Clinic was using the term is that of being...
Is that listed as a side effect from Baclofen? Are you sure you didn't start something else around the same time? That reaction is what happens to me if I...
Susan, on this forum we don't consider discussing our pain and medical treatment for our common affliction of TN as whining. It is horrible to feel alone and...
Sherlene: Yep, we're guinea pigs! The two neurologists I've seen both admitted that my ATN was hard to treat and trying "regular" TN meds might or might not...
Every doc has their own descriptions. My concern is information that one procedure is better than another. I have talked with many neurosurgeons who feel that...
I have the pressure thing behind my left eye. It occurred to me the other day to try Vicks mentholated in the nostril and clear out that side. No one had ever...
Dear Susan, I am a registered nurse and I try to work as many full time hours as I posibly can but with this it is not always possilbe. I am not able to take...
Lisa, I am glad you are able to continue to work. I have been disabled by mine since 1976. I still harbor the hope that the answer will be found and I can...
I go to work and on most days I am not even sure how I get through the day but I try so hard not to let this demon get to me even though most days he wins. The...
I am amazed by your tenacity and strength.. (I do not work now, because the constant and triggered Pains are no longer there, thank God, literally. I have eye...
LeeJ, You mentioned that some neurologists say that MVD is not the preferred surgery. Did they say what they thought was, and why? I am ready to investigate...
Sherlene, the heck with anyone who tells you than something other than, or opposite of, what you do that helps, is not the right thing. Whatever helps, is the...
Sherlene, just wanted to add to what leej had to say about the ear issue. I have popping sound in my ears quite often and it has developed over the years of my...
Leej You said that you go to Jefferson hospital. Is that the Jefferson Hospital in Philadelphia. If so who do you see? I live in Philadelphia and am looking...
I see Dr. Barolat at jeff, in Phila. I liove in montgomery county but even when I lived in NYC I came bask here for the med care and surgeries. I would...
None of my xrays, including arteriograms and an MRI when it was still very new (I cant have one now because of the implant) showed any problems. It was only...
