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Messages 815 - 844 of 16608   Oldest  |  < Older  |  Newer >  |  Newest
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815
Hello! My name is Ginger and I am writing on behalf of my mother-in- law, Jeannie, who suffers from trigeminal neuralgia. I do not know a whole lot about...
grimmymommy
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Jun 2, 2003
2:22 am
816
I am sorry that her pain has returned and to this level. I have had many surgeries myself as have many others here. I like to recommend the following sites to...
leejcaroll@...
leejcaroll
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Jun 2, 2003
12:28 pm
817
Why Not???!!! Note: forwarded message attached. ... Do you Yahoo!? Free online calendar with sync to Outlook(TM). Note: forwarded message attached ... Do you...
DaTazMama@...
Send Email
Jun 2, 2003
7:04 pm
818
My mother sent this to me..... READ THE STORY FIRST: THEN LOOK AT PHOTO A picture began circulating in November. It should be "The Picture of the Year," or...
DaTazMama@...
Send Email
Jun 3, 2003
4:36 pm
819
That is incredible. It is amazing what a 5 month plus fetus , maybe 6 plus since the time of conception is not usually definitive, can do. Thanks for the pic....
leejcaroll@...
leejcaroll
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Jun 3, 2003
4:52 pm
820
Hi there, I have had this condition for only 1 year and am only at the early stages of understanding what it is all about. I live over the pond in the uk and...
peacelily100
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Jun 3, 2003
10:35 pm
821
I am glad the meds are working. I like to recommend the following sites <A HREF="http://neurosurgery.mgh.harvard.edu/guest/tn-hfs/guest.htm">Click here:...
leejcaroll@...
leejcaroll
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Jun 3, 2003
11:10 pm
822
There is no email group over here (I'm in the UK also) but there is a UK TN association - have you tried them? Tina xx...
Tina Rimmer
tina2rimmer
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Jun 4, 2003
1:23 pm
823
I had an MVD in August 2002. Lost the hearing in my left ear as a result. The pain started to return about 6 weeks ago. Am now taking Lamictal for about the...
Deb
scrollnsew
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Jun 4, 2003
3:29 pm
824
Peter Jannetta did an MVD on me in 1979. The left side of my face was paralyzed as a result. He said that was not possible without injury to my hearing as...
leejcaroll@...
leejcaroll
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Jun 4, 2003
5:01 pm
825
I also like to recommend these sites; you may find more info there re a hearing loss and the stabbing pains. <A...
leejcaroll@...
leejcaroll
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Jun 4, 2003
5:46 pm
826
Are any of you members of support groups where you are locally? Has it helped you to deal with this emotionally? Or if not, what have you done to be able to...
Pamela D. Leonard, AIA
elagirlarch
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Jun 5, 2003
2:21 pm
827
wake ... taking ... few ... ring aid during the day. Went to ... Hi Debbie Had the same type/location of this pain. I was told that this was the scar tissue...
mickjonsmith
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Jun 5, 2003
4:03 pm
828
... over ... Neurontin ... is ... to ... work ... Hi Peacelily. Have a look at the TNA-UK site as theres lots of very good info there. I haven't found a UK...
mickjonsmith
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Jun 5, 2003
4:05 pm
829
Gee Mick, Thanks I needed to hear some explaination...my neurologist, neurosurgeon, Ear doctor and GP are all mystified by it. I just went for blood test this...
Deb
scrollnsew
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Jun 5, 2003
7:06 pm
830
The information I received on MVD mentioned hearing loss - it's difficult to avoid as the hearing nerve is right next to the trigeminal nerve. It can be...
Tina Rimmer
tina2rimmer
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Jun 5, 2003
9:06 pm
831
Gee Mick, Thanks I needed to hear some explaination...my neurologist, neurosurgeon, Ear doctor and GP are all mystified by it. I just went for blood test this...
Deb
scrollnsew
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Jun 5, 2003
11:17 pm
832
Tina, I have had TN for 6 yrs. At one time I was unable to eat because of the effects of too much medication. I was sick at my stomach most of the time. I...
Striddle2@...
striddle2
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Jun 6, 2003
5:37 am
833
For those of you who have not tried Lamictal, I just realized it has been 3 days since I have hugged my heating pad. The pain is not fully gone yet, I am at...
Deb
scrollnsew
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Jun 6, 2003
1:13 pm
834
I am so glad to hear you are having such good benefits. Is Lamictal an anti-convulsant? (I know what you mean about the movies ((*_*)) )...
leejcaroll@...
leejcaroll
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Jun 6, 2003
1:50 pm
835
Hope you don't mind my sending this but all you need to do is click into the site and the sponsors of the site respond by giving, food, money, mammograms, etc....
leejcaroll@...
leejcaroll
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Jun 6, 2003
1:52 pm
836
Yes it is an anti-convulsant but in the drug book I have it specifically mentions TN. I have taken no other drug that does mention it in the reasons to...
Deb
scrollnsew
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Jun 6, 2003
3:06 pm
837
Thnks, not sure if I have tried it or not. Will ask my doc if I haven't thnks, again...
leejcaroll@...
leejcaroll
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Jun 6, 2003
3:28 pm
838
Hmm - looks like one of us might have to bite the bullet and set one of these up in the UK! Although I like sharing info from across the pond. Pamela - I've...
Tina Rimmer
tina2rimmer
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Jun 6, 2003
6:14 pm
839
Hi Everyone, I just joined this group looking for some information to pass on to my mother in law. She has trigeminal neuralgia, has had it for many many...
CristinaKathy
sfyelm
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Jun 6, 2003
8:00 pm
840
I was just at the Mayo Clinic. They told me I wasn't old enough at 66 to get the glycerol shot. They had no problem with my age to have MVD, which is what...
Striddle2@...
striddle2
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Jun 6, 2003
9:50 pm
841
My pain the actual tic and unable to touch area, was in V1,V2. I am able to touch now (because of a Miracle. I won't go into that now because that is not why...
leejcaroll@...
leejcaroll
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Jun 7, 2003
4:03 pm
842
I like to recommend these sites. You can get info and tons of personal postingas. <A HREF="http://neurosurgery.mgh.harvard.edu/guest/tn-hfs/guest.htm">Click...
leejcaroll@...
leejcaroll
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Jun 7, 2003
4:05 pm
843
I'll try to make a long story as short as possible. I had been on Tegretol for 2 years (with varying degrees of pain control) but went off of it in December...
Mary Ann
mom2three_hmb
Online Now Send Email
Jun 8, 2003
6:51 pm
844
I I would definitely get a second opinion so that you can feel comfortable that the advice regarding surg and the blood thinner. I notice you wrote that you...
leejcaroll@...
leejcaroll
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Jun 8, 2003
9:26 pm
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