Hi Lori I too was just recently diagnosed. I have had swelling on my left side of my face (jaw area) for quite a long time. We always thought it was gum...
Hello again! I haven't had the chance to check the group in a while; I returned to work full time after being out for almost a month (I took medical leave) and...
I hope everyone is doing well. Easier said than done I know. I've been a busy lady this past week, trying to have a normal life despite this TN and the drugs...
We have a line of severe weather working its way through our part of Missouri this afternoon/evening. It's wreaking havoc on my poor brain. I hurt so badly I...
I had Chiari surgery in 2002 and now I am getting all these pains in my face. This is along with the other pain that I have in my head from the Chiari. I...
Hi My name is Christine, I have a typical TN and TMJ and it is affecting both sides of my face and is currently non-responsive to medication. I too experience...
BlankHi Everyone, My name is Melissa, I am 35 years old, married with two children. I recently had sinus surgery last year in March. I had really bad...
Hey Melissa!!!!! Welcome to the WONDERFUL LAND OF TN VICTIMS! It is NOT hereditary. I do not have a tumor or lesion, my symptoms came on much like yours....
Sorry, but I have to point out that in some cases it is indeed hereditary. Mine is. My grandmother had it and so do my sister and cousins. Hope everyone is...
CHARLOTTE FROM ACROSS THE POND!!!!!!!!!!!!!!!!!!!!!!!!!!!! How are you these days??????? I guess with every thing there are always going to conflicting...
... trigeminal_neuralgia@yahoo groups.com, "rykcharlotte" ... point out that in some cases it is indeed hereditary. Mine is. My grandmother had it and so do my...
Hello. I am better than I have been since before Christmas. Not just with the tn, but mentally. After being housebound with this vile, horrid condition, for...
In a message dated 4/3/2006 6:10:32 P.M. Eastern Standard Time, rykcharlotte@... writes: The Cure OH MY GAWD you saw them, I love them Robert Smith is...
I have been a fan since I was 12 and this was only the second time I have seen them. The most amazing night ever. Robert Smith just gets better and better. It...
Im sorry you have this but very glad you found this site, and that you have a doc who could diagnose and know one of the meds for it. Many of the drugs do take...
I am so glad to read this. Terrific!! Mine is not in the V3 area so I have bot had to deal with the eating issue but many have written about using straws....
Ask your neuro about Trileptal. Works wonders for my wife. Gary Melissa Wallach <melissawallach@...> wrote:Blank BODY { MARGIN-TOP: 25px; FONT-SIZE:...
Hi Melissa, I too have been recently diagnosed with TN. I also went the dentist, ENT route before I was seen by a neurologist. I have pain on my left side of...
Having TN is bad enough but add to it the fear of MS and that can be overwhelming. The stats on MS/TN are below: Carol _Click here: Your Complete Guide to...
A straw causes pain for me. Kathi I am so glad to read this. Terrific!! Mine is not in the V3 area so I have bot had to deal with the eating issue but many...
Hi, Stephanie Thank you so much for your warm welcome to the group. I am so thankful their is a group for this. I am not a diabetic but also newly diagnosed...
Hi, Carol Thank you so much for your post, you are so helpful. To tell you the truth I have never heard of TN before. I am a critical care R.N but not neuro,...
BlankHi, Gary Thank you so much, I did research the drug at work. If my doctor does decide to put me on an anti-seizure med I will inquire about this. My...
Oh wow Lexi you sound just like me with what you have gone through and what doctors you have seen. Lyrika is supposed to be the new Neurontin from what my...
I am so glad to have found you all, I ws just diagnosed this morning,9actually that would be yesterday morning) with TN and now am trying to figure out what...
i am sure i cannot say welcome but i can say hi varun __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the...
Hi, Jennine Welcome, I am new also.. it must be a husband thing. My husband down plays everything he is now shocked at what I have. My doctor ended up calling...
Hi Meliss: I'm an RN, too, and I have ATN, occipital neuralgia, and allodynia in addition to having had chronic migraines since I was 16. I can't work. I'm...
