Greetings!

For those of you who have taken the time and effort to fill out the first
questionnaire, a tremendous thank you and a word to say that we are half way
home! For those of you who are reading this for the first time, welcome. We
received 128 responses to the pilot survey. At first pass, it is clear that
there is a reasonable diversity regarding the actual health of the children.
However, as regards the quality of life, it is striking how unified the
responses have been in describing both the quality of life for the affected
child as well as for the care-giver. This gives true importance to the
survey. What we have done is made several changes that became apparent as we
reviewed the answers. We also added several extra demographic questions to
target the responses more appropriately.

If your child has been decannulated, we would still like your input. Please
fill the questions out from the time point of when your child had a trach.

The final version is now available. PLEASE TAKE THE TIME TO COMPLETE THIS
FINAL VERSION. It may seem very similar as a whole, but it is CRITICAL that
you complete the entire survey in order for us to be able to draw meaningful
conclusions. Once we have the final answers tabulated, we will summarize our
conclusions for all to see.

Again, a word of thanks. If you have any questions, please feel free to
contact us.

Questionnaire: http://www.twinenterprises.com/trach/questions/

Christopher Hartnick MD
Department of Pediatric Otolaryngology
Children's Hospital Medical Center
Cincinnati, Ohio 45229
Email: harq4k@...

Cynthia Bissell, RN
Email: cmbissell@...
Aaron's Tracheostomy Page
www.tracheostomy.com