Hi Mary, Thanks for asking. I am doing really good. Finished my last pherisis on Friday. Platetelts are up to 326K yesterday so I am just hoping they all hold...
Mike, I am proud to say that I did catch this darn thing before it hit me hard this time. I have my blood drawn every 2 weeks and have my labs faxed directly...
Hi all, it's been a few weeks since I checked in with news of my MIL so I thought you might want an update. She continues with her therapy in the rehab...
Sharon I am glad you caut it.God willing you will go into remission soon. If I could I would take all this from you and anyone else. I hahe delt with it so...
I don't know if I'm even in the right spot but after searching the web for answers to my mother's death it seems like you folks might have some good...
Gand... am so sorry to hear of your loss!. You will be in our thoughts and prayers here for sure. I know it is easier said than done, but know in your heart...
Thank you for your support and pushing me to go on.I told you I maybe should go To local ER and I did and it took 1,5 hour to get there and 3 hours to tell the...
Hi Cara, I'm doing fine but haven't been getting on-line as much as I should, and when I do, I have tons of catching up to do---I'm reading everyone's posts...
Hi Ellen, I too am on Cyclosporine for a second time since my relapse last month. My doctor only gives it to me for 6 months after each relapse which has...
I thought I would let everyone know that the I.V. plasma is not A cure all I know that, it is keeping my plateles right at 150 thou. Takeing the 2 units twice...
When I relapsed two years ago it took them 3 days at intensivecare at my local hosptital before I was enough stabile to get moved to the bigger hospital where...
Karen, We haven't heard from you in a while. Hope all is well. I had a questions regarding the Adams 13 test. When I was just recently in the hospital with a...
Hello everyone so glad to be able to give good info to everyone reguarding the company that provided me with my Plasma Pheresys in house And at my bed...
Sharon, The way they explained it to me was that the test measures antibody and enzyme activity levels. High antibody + low enzyme is not good, low antibody +...
Hey mike plasma is only used to get you the point where other treatment such as rituxan or vinchristine or other medical treatment can shoot you up and away...
sharon.. This is a site I found, in reference to the Adams 13. I don't understand it all much either, as these aren't really in my form of Laymens Terms......
Thanks, I read it but I really wish they would put this stuff in people language. I am still clueless on what they are trying to say in that article. Oh well...
right... is what I finally decided too.. lol.. Will keep looking for one in Laymans Terms..:) sharzzi17 <sharzzi17@...> wrote: Thanks, I read it but I...
Effect of plasma exchange on plasmaADAMTS13 metalloprotease activity, inhibitor level, and clinical outcome in patients with idiopathic and nonidiopathic ...
Now I know I am not in remission from my relaspe yet because my brain just couldn't even comprehend this after even reading the first paragraphs. Was this...
Thanks Anelli... You hang in there... Time will tell what is going to happen, the good thing is that you are on top of your condition and know the warning...
Hi g/f.. Things with the new doc seems to be going okay so far. He didn't tell me not to come back?.. ha/ He feels too, that my gall bladder is going on the...
Don't feel bad Sharon, as I don't comprehend it either.. my husband sane mind, no TTP, said... OKAY ? so he doesn't understand it as well.. is hard to read...
Hang in there MIke. Did they decide not to do the Rituxin? From what I have understood, regardless of treatment there is no cure for this mess... it only...
Wow Anneli... that in itself would scare me... then again, I am a "what if" person...and I tend to weigh on many negative thoughts with my stuff... Maybe it is...
Hi Mary!How is life with you?No messages last days would like to here some of your kind words again.I always get so happy when I read your messages.Hope you...
Hi Cara and thanks for your support.I´m better from my flu thank you but I`m still not sure if my TTP is giving up so easyly this time.I go up and down with...
Even though I have a very hectic schedule, I felt compelled to take the time and share this with you since someone else took the time to share it and I...
I'm truly Sorry i understand some of it, alot of research has to go into looking up all those words, and yes there is alot to read ....i understand sorry....I...
Hi there Mary Had to answer this one - WELL DONE YOU :-) When I was first diagnosed, I was asked, do you drink: NO, do you smoke: NO ohhh errmmm do you use...
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