Hi Everyone, Just wanted to let everyone know, especially those I keep in regular contact with, that the reason you haven't heard from me lately is I just...
As a fairly new member to this group it is great to read the stories of good news. I have had ttp for over 20 years and have had so many relapses I cannot...
My MIL is doing much better. Its been about 6 weeks since she got sick. Her hemotologist is discontinuing plasmaphoresis on Monday, and Vincristine and Rituxin...
HI everyone so glad to report that i am at a point where i should be able to return to work as soon as monday 10/06/2005.My platelets are at a 217,000 and my...
Hello all...Karen are you out there??? Are you okay? Lisa, I recall you having issues after dental work...just went to the dentist and I may have to have...
Hey everyone; I'm new to the group so please be patient while I attempt to sift through the mountains of posts and information on here. Just a small...
Thanx alot you guys r great. I haven't heard anything new from the doctors except that I have the hereditary form of TTP. So I guess that means I had...
hello my name is angie, i have ITP. i was diagnosed january 2002. it all began in dec 2001 when one day i was so tired i just stayed on the couch. this was ok...
We have had a very good week! My MIL is so much better! Her platelets came back at 233,000 today! She had been slowly improving and was taken off all chemo and...
Hi all I´m Matias del Campo, from Chile and my sister just relapsed with TTP after 2 years of not showing any problem. She was diagnosed with ttp on 2002 and...
My name is Kim and I went into the hospital on July 29. I had went to the emergency room a week earlier because I had severe body aches and a fever of 103.6...
Hi all, My name is jo and I just joined this group. I had my first visit to a hematologist last week. Don't worry, I'm not asking for medical advice, I have...
Hi survivors! I´m from Sweden and very lonely one to have ttp here.For three years ago I was shopping and suddenly felt very nauseaus and weak so I had to sit...
Hello, and thank you all for the opportunity to join this forum.I first learned of this affliction through my sister.She has "ITP" she has had this for some...
Hello everyone,I went up to 190 thousand this week and my LDH is at 187.I could'nt believe what i have read in the past couple days at this website.I feel very...
My name is Jon Keyes and I am an attorney in Greenfield, Indiana. My firm represents the estate of a women who died of TTP while in prison. The prison failed...
Hello, I amd 32 yrs. old and was perfectly healthy in Nov. of 2002 I started with a slight cold and noticed a bruise on my left bottom of my foot. Then I...
I had TTP last year and Dr. Ken Friedman of the Blood Center of Southeastern Wisconsin http://www.bcw.edu/bins/site/templates/default.asp?area_2=public% ...
Hi Everyone I have just found your site. An ITP sufferer diagnosed 5 years ago, i am constantly and frantically trying to find out why????? As a member of the...
I am new to the board. I had ttp in April of 2004 (stroke and platelets of 7,000). I had 2 months of plasmapheresis. Was taken off after 1 month, but platelets...
Hello its Just me kermit. I was wondering has anyone else seen this wristbands http://store.shoppdsa.org/354.html Does anyone have or wear these bands?...
Hi Karen It's been a few days since we heard from you. How is your mother in law doing? Linda -- Linda A. Pohly (P-34591) Linda A. Pohly, P. C. 5091 Miller...
I'm new to the group and was diagnosed this year with TTP with two relapses. Went through the normal treatment of plasma pheresis with prednisone, then to...
My neice who is 2 1/2 years old has just been diagnosed with this disease. I have gone to WebMD and all the info I find is related to adult cases...Does anyone...
please anyone send your experiances with this ...he was mis-diagnosed for over a week...i am his son and im new to this online stuff so be patient with me...
For those of you who've gone through a harsh winter, is it advisable to the flu shots since you've been diagnosed with TTP. This will be my first winter where...
Having problems with message search?
