My doctor wouldn't give me the rituxan whule doing plasma exchange because he wasn't sure if the drug would be removed from my system by the plasma exchanges...
Thanks Jackie... Yes, it seems like my world was turned upside down when everything hit like it did. Considering all the facts, I am doing much better, but...
What a great idea.. pity it does not cover the UK boohooo its USA and Canada :-( Hope you are well Jeannie xx To accomplish great things, we must dream as well...
Sharon, You are first person I've run across that indicated they ITP & TTP. What's the significant differences between the 2? When I chat with the ITP group...
Gerri, I actually had plamsa infusions, not exchanges during the Rituxan treatments. My Dr quit the plasma pheresis after about 28 treatments and began that...
Enter your vote today! A new poll has been created for the thrombocytopenia group: How many of you get annual INFLUENZA immunizations? o Yes o No To vote,...
thrombocytopenia@yaho...
Sep 1, 2005 9:38 pm
9059
I have been told that ITP and TTP are two different unrelated diseases and I am the unlucky one to get both. With the ITP, only my platelets crashed to 5K but...
TTP and ITP DIFFER IN THAT ONE PRODUCES TOO MUCH PLASMA AND THE OTHER EATS PLASMA? CHE THE WEB FOR ITP. IT IS MU UNDERSTANDING THAT TTP HAS COME A LONG WAY ...
Since I have had a splenectomy, I always get the flu shot. This year, because of my position at work, I will be getting the Hepatitis B shot as well. ... ...
Hello, I amd 32 yrs. old and was perfectly healthy in Nov. of 2002 I started with a slight cold and noticed a bruise on my left bottom of my foot. Then I...
Hi Jason, Welcome and glad you found out. We are all here to support each other as we have all been through it. Sorry to hear about your terrible ordeal....
Wow..Jason...you have been through so much...my nam,e is CHristie and i am currently 32...was 30 at the time of my TTP...have also been in remission for 2...
Christie, glad you are doing well. Megan ... From: christiern1998c@... To: thrombocytopenia@yahoogroups.com Sent: Saturday, September 03, 2005 4:44 PM...
please anyone send your experiances with this ...he was mis-diagnosed for over a week...i am his son and im new to this online stuff so be patient with me...
Hi, i am sorry to hear about oyur dad. Was he diagnosed with TTP or ITP. I have ITP but can asure you that this site is both very informative and supportive....
My neice who is 2 1/2 years old has just been diagnosed with this disease. I have gone to WebMD and all the info I find is related to adult cases...Does anyone...
Hi Cara, Just want to say that my doctor was thinking about doing the maintenance Rituxan in my case, but then I had another relapse. During this relapse, I...
... isease.Thanks for any help. I had ttp as A child of 7 months old and learned in my own life It is usuially easyer on children. Got worse on me in the last...
My husband has had TTP on and off since he was three years old. He is now 32. I have been with him for the past 10 or so years, and he has never gone longer...
thanks nettie.. HOpefully some day I will feel comfort with these docs, but am comfortable about the fact, that he admitted he knew I wasn't comfortable, and...
Hi...welcome to the group. This is a great site to get information, as everyone here is great with support. All cases seem to be similar in some ways and...
This is just A thought you might mention,I had been reminded of. You might want to tell the parents to ask about use of antibiotics. They were used on me and...
we have a daughter who is now only 6 months old and has been diagnosed with TTP. i would caution you that the great majority of people on this group seem to...
Mike, i am quite curious about your case: 1. how were you diagnosed? - i know that many years ago they did not have a test for the Von Willebrand protease...
I couldn't agree more on the hematolgy staff at hopkins. I saw Dr. Michael Strieff when I was there I had 5 magor ttp occurences in under a two year period....
I am not sure but I beleive the the ttp was inharant my grandfather had some anemea and my mother was told that it would skip her. I think Drs he was seeing...
Gerri, I saw Dr. Moltinero at JH - at that point I had rec'd Rituxan and was in remission...but she was wonderful. I was trying to get into Dr. Strieff but...
Hi Megan Actually I was the first one at hopkins to get rituxan with ttp, they told me they did not know what the outcome would be, at that time rituxan was...
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