The following thrombocytopenia poll is now closed. Here are the final results: POLL QUESTION: Do you have any problems with hair loss or thinning CHOICES AND...
thrombocytopenia@yaho...
Aug 1, 2005 8:04 am
8907
Hi My granddaughter 14 was just told she has TTP We are in shock and are on line reading everything we can find out about it. You are the first person I found...
Our granddaughter age 14 was life flighted from Reno Nv to Oakland Childrens Hospital in Oakland Ca. last Saturday 7-23-05 with extremely low blood count. She...
elnasus_rehtaf <elnasus_rehtaf@...> wrote: Our granddaughter age 14 was life flighted from Reno Nv to Oakland Childrens Hospital in Oakland Ca. last...
They had talked about the splenectomy for me as well as the rituxin, but with changing doctors in the middle of treatment, and these doctors here not as up to...
Hi there Jeannie here Ive had over 80 exchanges in one relapse but never been tried with Rituxin.. Wanted to enter the poll - but wanted to say I havent tried...
The following thrombocytopenia poll is now closed. Here are the final results: POLL QUESTION: How many of you have experienced TIAs / Mini Strokes and are ...
thrombocytopenia@yaho...
Aug 2, 2005 1:56 am
8913
Guiming, Hope your wife is improving with each new day. The Rituxan may bring those numbers up. I had it during my last 2 relapses and it jump started me...
In answer to the poll, I had Rituxan (4 treatments) during my last 2 relapses. It did put me in remission. Don't know how many pheresis treatments I had, but...
Hi, Nettie: Thanks for your encouragement. The doctors used Rituxan last Wednesday, but up till last Saturday, it had not started to work for my wife. They did...
Guiming, Hopefully the Cytoxan will work. Everyone is different, the TTP, meds, and treatments do a number on our bodies. Just take one day at a time and...
Hi Cara - The files are stored on the group page in the Files section. After you log in to the Yahoo group page, click on the Files link on the left side of...
The TTP Primer is an information booklet about TTP. It covers a lot of ground in one place: disease process, treatments, recovery tips, etc. You can find it...
Hi Guiming - From your messages it appears that her doctors understand the disease and how to treat it. That's the best medicine there is. TTP will remit at...
Hi Cara - Welcome. If you want to go to Oklahoma just to meet with Dr. George, you won't find a more wonderful physician. He is remarkable. I met him a little...
Hi Grandma in CA - I am sorry to hear about your grandaughter. We have had several members who were teens at diagnosis. Hopefully they will answer your...
Hello Linda and Everyone, I'm sorry for taking so long between updates. Life has been crazy. We are going on 8 months in the hospital, but holly is now doing...
Thank You Karen... Basically my Doctor here wants to send me to Dr. George, for consultation on whether maintenance Rituxin should be done. I can't really...
Hi Brian, Good to hear that she is doing better. I know she has had one heck of a trip with this disease, and so have you. I pray for continued improvement and...
Hi grandma in Ca, My name is Christine, I live in California and I was first diagnosed at 14 with TTP. I am 30 now and have had 9 relapses since I was first...
Hey Everyone, I know it has been awhile since I responded but I do read many of the posts. Well today I had a friend come and visit that read one or two with...
Great news !! Congrats !! Is nice to hear of wonderful things, with so many downfalls... Glad to hear all is grand.. God Bless.. Cara ... many of the posts....
Hi, Karen: Thank you for your comforting words. My wife's mental status improved a little bit over the last few days, started to wake up more, a few smiles,...
Hello Guiming, Did I understand correctly that your wife is receiving cytoxan and rituxan at the same time? I had never heard of someone receiving both...
Enter your vote today! A new poll has been created for the thrombocytopenia group: Did you first develop TTP as a result of pregnancy? o yes o no To vote,...
thrombocytopenia@yaho...
Aug 4, 2005 3:46 am
8933
Hi Kristi.. afterall of the different stuff you have been through, how are your numbers lately?...
I would like to thank all of you who posted in reply to my plea for information on TTP. I hope you will accept a group Thankyou. I am unable to answer you...
Cara, The last time I was treated was Oct. 2003. So far so good. I am always worrying and wondering. I also had my spleen removed before receving the...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
