Hey I just wanted to tell you about a great company I found! I applyed for a lower mortgage rate and i only had to fill in a simple form. This month alone I...
I was diagnosed with TTP in 2001 and thankfully I need no treatment now. I have never met or spoken to another person who has personally been through this and...
Hi Bev I was diagnosed in 2004 and although it was 5 months of agony, at this time i only go for blood work every 5 weeks. at the moment everything is stable....
Hi Bev - Welcome to the group. If we don't do anything else, we can at least guarantee that you won't be walking alone anymore. Tell us what's on your mind....
Hi Bev, Welcome, you are definitely not alone out there. You have found a great support group here and all of us have been through it. I was diagnosed with...
Hi Colleen - Welcome to the group. Please accept my condolences for the loss of your mother. I'm in the process of writing a missive to address the concerns...
Isn't HUS most common in children and a one time thing? My husband has had reoccuring episodes of TTP ever since he was three years old. (He has not gone...
Thanks Karen, for putting together the information you know regarding familial TTP. Based on what I know, I believe that it is very rare that TTP is genetic....
Stephanie, My second cousin had HUS as a young child and it never returned. I had TTP for 5 months in 2000-2001 with close to 100 plasma exchanges. Frankly I...
Stephanie I have had TTP since June of 1963.I have had it 4 times since then.The Drs. told my mother that I got it from her father. That does'nt mean that is...
Hi all - I wanted to address the recent concerns raised about the possibility of TTP being hereditary - and more importantly to most of us - whether our...
Ruth Crawford <ebaray2000@...> wrote: Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam?...
Hi Karen, Just a brief note to extend my gratitude for the information you compiled around hereditary TTP. I have forwarded that to other family members. I...
Hello Mike, Thank you for reaching out to me. I can't believe you have battled with this since 1963. You must be a very strong person. My husband has had...
Ssephanie I was really fortutanate even thou I had A stroke and had multiple problems.It could have been alot worse. Like I said just make sure the Dr. knows...
Hi everyone, I haven't been around for a while. See many new faces here so hello to all of you. I had TTP-HUS in 2002 and have recovered fairly well except...
HI there, I am sorry to hear about your spots. I have ITP and what we can break out in is called petechia. They are small red dots do NOT itch. Call your dr....
I have a close friend in Chapel Hill, North Carolina who came down with TTP suddenly 10 weeks ago. She is still undergoing 2 plasma exchanges per week, + a...
I'm a lawyer in Michigan. I don't know anything about N. C. law, but I do know a serious legal problem when I see one. She needs two lawyers as soon as...
Dear Linda, Thanks very much for your input. My friend is in Chapel Hill, but I'm in England; she's my closest friend and it's difficult being so far away...
Great information Karen!!! Thank you soooo much. I have forwarded this to everyone in my husband's family and have printed it off for my records. I keep...
Hi, my daughter who is just 4 months old has been diagnosed with TTP. She has started plasma infusions and is responding, however, getting an IV started now is...
Jeannie, Let us know that you are ok! You are the first one I thought of!! Hugs Suz __________________________________ Do you Yahoo!? Read only the mail you...
My heart goes out to you and your daughter. You will be in our thoughts and prayers. I myself was 34 when I was hit, so I cannot offer much. I know that Mike...
Hi - I am SO sad to hear that your baby is sick. What is her name? We will be praying for her and for you as you get thru this. Do they believe that her TTP is...
Im really sorry to hear about your daughter. I was diagnosed when I was 21. I can't offer you my personal experience as advice. However, I can tell you that...
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