Hi Kara, Welcome and you have found a great group of people here for support. I was diagnosed with ITP in 2000, another episode in 2002, and then ended up with...
Hi Sharon, Thank you for welcoming me. I'm sorry you've been through so much! When I was first DX, I asked my doctor if I had TTP because I had been suffering...
Hi Kara, For TTP the most frequent used treatment is Plasmapherisis. Some also have predisone with that. The reason they knew something else was going on...
Okay...they put my husband in ICU today because of the varied reactions he is having to the plasma apheresis...this is like a roller coaster ride with more...
Did they give your husband meds to help prevent reactions. They gave me meds. to help prevent reactions,while I was takeing pheresis treatments. Mike...
Hi Linda - Sorry guys, I check the mail every day, just have so much on my plate, (as usual! LOL!) Between work and housework, helping hubby with homework,...
they were giving him calcium and benedryl but we found out yesterday he was allergic to the calicum. now they are giving him something else that i cant ...
My sister's platelets went up and down three times when she was getting daily pheresis. Once, on a Friday, the discussion was should she be discharged that...
Sorry to hear your husband is in ICU -- yes, TTP is a roller coaster ride, lots of ups and downs, twists and turns. We're all praying, just be positive, ...
Hi Sharon, I'm sorry to hear you have been though so much with TTP. My doctor is suggesting danazol and rituxan for me. I would rather not get into that...
Kara, I am glad to hear your platlets are at 99K. They are not still at a normal level though. Just be careful and be watching for signs of your platelets...
Hi Sharon, Thanks for responding to my post. She told me to come the day before I leave to get a check, to stay there while it's being processed and they are ...
Hello, I have always had problems using search engines to find what I wanted, as it always poped up results that I was in no way looking for. I just happen to...
To answer the question if I became anemic after the winrho, yes. I was given the winrho when they thought they were treating me for ITP when the predisone...
I have ITP. I had a WinRho treatment on September 20th (same day I quit smoking so I remember the date). I was down to 9K. They checked my hemoglobin before...
In a message dated 3/3/2005 9:16:20 AM Pacific Standard Time, sharzzi17@... writes: To answer the question if I became anemic after the winrho, yes. I ...
I am not familiar with WinRho. What is it? My husband has never been treated with this before. We just use the standard plasma infusion, pheresis, and...
In a message dated 3/3/2005 10:01:18 AM Pacific Standard Time, skirk@... writes: I am not familiar with WinRho. What is it? My husband has never been...
Whew, after a bumpy ride yesterday in ICU, my hubby is due to be home 2morrow after his plasma treatment. Thanks for the prayers! ... From: wildmagpies@......
In a message dated 3/3/2005 10:13:45 AM Pacific Standard Time, rellison@... writes: Whew, after a bumpy ride yesterday in ICU, my hubby is due to be home...
Winrho is another treatment for ITP when predisone isn't working. I was given the winrho when they thought that I was relasping with ITP. However I had a bad...
47 treatments!! Omi gosh! Glad you are still in remission. Thanks for the info. Stephanie ... From: sharzzi17 To: thrombocytopenia@yahoogroups.com Sent:...
Hi Linda- My labs are good right now, so yes...all quiet for now. Just finished the prednisone taper yesterdy (YAY!) so we are into the 30-day countdown to...
Hi there Mike Sorry for the delayed message - Ive only just checked my mail :-) When I was first diagnosed in March 2000 thats when I had my 3 mini-strokes...
Enter your vote today! A new poll has been created for the thrombocytopenia group: Has Anyone Used ORTHRO EVRA Birth control Patch before Getting TTP,or ITP? ...
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