Hi Suz - Only a very remote family history of diabetes (a matenal great-aunt). Yup, the pancreas is the source of the problem in diabetes, but diabetes is a...
Hi Betty, We lived in Peace River, then moved to Drumheller in 2003. I'm glad you don't have the doctorI had in Edmonton (Turner) he was not a good follow up...
I have had trouble with my vision since my first ttp attack in May of 04, I'm in total remission now, but still see floaters now and again and have bad double...
Hello Tammy, At the time of this email, my platelet count was 99K. Today they are 118K...progress progress. Normal Platelets To All Monique :-) ... From: Verne...
Jeannie, I have never used that drug but my doctor is opposed to it as well. I also curious to hear about this drug. I hope your bruising is not another sign...
I had a spleenectomy in 1986 when I was diagnosed with ITP because I didn't respond to the other treatments. Then; in 1998 I developed TTP; so obviously a...
Hey Suz, i too work in front of the computer a lot and i'm very much so worried about if my eyes are going to be healed by the time i go back to work. how does...
Congrats on your high platelets Betty !!! Monique :-) ... From: weegee5151 To: thrombocytopenia@yahoogroups.com Sent: Sunday, January 30, 2005 9:41 PM Subject:...
Thanks for the info mike. i am definitely going to be seeing my eye doctor for like six months after my remission. High platelets to ya. Monique :-) ... From:...
Just want to ask that you let me know how things go for you. I have had these problems far to long but I am sure they have better treatments now. Take care...
I've heard that if you have bubbles in your urine that it means you are losing protein, and that it is a sign the TTP might be coming back. Has anyone heard...
I've heard that if you have bubbles in your urine that it means you are losing protein, and that it is a sign the TTP might be coming back. Has anyone heard...
Hi there Lisa Great to hear you :-) Thanks for your info and experience re Rituxan - maybe thats why she feels its not an option with me.. Apart from that shes...
Hi there Gerri Thanks for that - gosh you've had a lot of relapses - I'm sorry to hear Ive had 3 - I was diagnosed in March 2000, yes I know what you mean re...
Hi there Monique Thanks for your message :-) Yes as you say its really interesting hearing the differing view points on treatments - as I said my haemotologist...
Hello Rachael, this is what I have read about "bubbles in Urine" If your urine has the hue of tea or mahogany, it contains bile. To confirm it's presence, put...
Joy, Thanks for the info I'll try it as soon as I have to pee...lol I hope all goes well and stays well with your daughter. It's nice to know there are people...
Dear Brian or Christine, How is Holly doing these days? Is she out of ICU? I think of her... and you.... often and I can't be the only one. Hope everything...
Linda, I apologize to everyone for not keeping in touch. Please know that I pray every night for each and every one of you. Holly is still in ICU, and today...
Hi Brian. Sorry you don't have better news. This is really rough on everyone involved. People do get better, even when they are as sick as your sister. My ...
Hi Monique, The kalediscope doesn't affect my driving at all, as it does not totally block my vision. It usually starts as a small spot on my eye and gradually...
Brian, Just reading your post. Sorry to hear Holly hasn't had much improvement. Keep praying, she will pull through this like all of us did. I was in ICU 3...
Hi Monique, I get this pulsing sound in my right ear and that is a signal for me that my vision is going to wacky. I can't focus and get extremely dizzy....
Yes, Jeannie, I can totally relate to the glimmer of hope you talked about. I get so excited when I hear about a new treatment for TTP and I want to try it ...
Hi there Lisa Great to hear you :-) Hope you are much rested now and had a relaxing weekend, I think we all tend to push ourselves with TTP - sometimes I try...
Hi there Nettie :-) Would like a copy of that poem :-) sounds good My haemotologist explains to me too - and like you said I come out and say "errrmmmm what"...
Hi there Karen Just seen your message :-) I am a bit slow hahaha :-) Ive only been checking my mail every few days - you know how the energy levels are -...
Brian, I am so sorry to hear that Holly is going through this ordeal. I'm sure the hospital has patient representatives to work with you. I pray that Holly's ...
Thanks Suz, My platelets are up to 180 and my eyes have improved tremendously. I still have the spots but they are now tolerable. High Platelets To All ...
Hi Jeannie, Glad to hear you're out celebrating with friends. Good for you. I'm still looking for the WHY WORRY poem. Once I find it, I'll post it for all!...
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