A little better, we think. Platelets up from 82,000 yesterday to 102,000 today. They have confirmed the presence of an infection, which they are treating...
So glad to hear things are starting to look a bit better. This TTP is definitely a battle. I didn't think I would ever see the light at the end of the tunnel...
Thank you all for welcoming me to the group! It's so great to chat with other people that can identify with what I'm going through! Sharon, as for your...
... WTG everyone! I'm still praying for us all!!! ... __________________________________ Do you Yahoo!? Check out the new Yahoo! Front Page. www.yahoo.com...
Hiya Lisa, My platelets stay in the mid/upper 300's. In Sept at my last doctors visit, they were 358. Mine gradually went down from the 600's after a few...
Yeah, I don't know. It's strange though. They don't fluctuate at all with the pherisis. And, I am receiving such a small amount of pherisis now. Just another...
Howdy! I hope all are doing well and have plenty of platelets!! I am almost forty years old and have had ttp three times, 1988, 1992, 1997 and had my spleen...
Hi Jenfu, I just read your story and I have some questions for you. I too have had TTP 3 times (1982, 2002, 2004), have HepC and had very similar pregnancy...
I have a general group question. My sister's platelets dropped yesterday, from 102,000 to 88,000. The doctor does not regard that as a signficant drop. I...
Jenfu, I had TTP several years ago and was of menopausual age at the time. I also had my spleen removed and have been on hormone replacement for 5 years...
Hi Linda Thank you for your concern and for checking up on us. I'm sorry to hear that your sister is still struggling. She is so blessed to have you by her...
Hi Sandie Welcome to the group! This TTP group is wonderful! I do not have TTP but my 20 year old son Dustin does. He was diagnosed with it on August 23,...
Hi, Linda How are you doing? Re: your sister's 15% drop of platelets, since she has an infection, I'd think maybe that's the cause. I had LOTS of infections...
I was diagnosed with ITP approx. eight months ago and things have been a rollercoaster ride ever since. I am tired all the time, in fact there are mornings I...
Heather, Unfortunately there is no test to say it is ITP for sure. I had 2 episodes of supposeably ITP but in June 05 I had TTP and ended up hospitalized for 6...
Linda, my doctor orders 3X a week blood tests ONLY when I drop below 50,000. Between 50K and 100K, I go in once a week. Over 100K, every other week. Hope...
Heather, what kind of treatment are you getting from your doctor? Any meds at all? What about IViG? Prenisone? And yeah, do I ever hear you about the...
Linda....my platelets would do the same as your sisters. When I questioned it I was told that when you go through pheresis you lose some of your platelets...
I agree that the prednisone reduction needs to be very slow. My doctor was dropping my dose by 10mg per week, but after my second week of this my platelets...
good luck Sandie i just got my cath.out a few weeks ago. my counts droped alittle but stablized.still checking counts every 2 weeks. i hope the best for all of...
Thank you for the information. That gives us a pretty good perspective, actually. I looked back at old posts and I see you have ITP, but the only remaining...
Hi Karen. LDH has been below 200 for every day but one since October 1, so we are ok in that area. Sounds like this is just part of the disorder. I do...
Glad to hear everything is going so well. My sister was diagnosed August 30, so by comparison Dustin's progress has been fantastic! Of course, she had some...
Thanks for the information. I am becoming interested in the TTP-infection connection. I see a real connection between TTP and infections with my sister....
Linda, You know it is interesting. When I went into ER on June 20, 04 and told them I had ITP and start me on predisone and I will be good to go, they...
Hi all. Anyone here with adult HUS -- hemolytic anemia with high LDH values. I have a question? Was there anything they did for you treatmentwise other than...
Linda, the one thing my platelets are NOT is stable if I have an infection of any kind. The last time, they swung from 250K one week to 43K a week later. He...
Yes, my disease is more in the field of HUS rather than TTP. I have lost about half of my kidney functioning. For my treatment, the only thing that works is ...
Hi, Susan & Scott I'm from PA too. I got very sick in the middle of April this year. I went to my doctor the last week of that month because I finally...
My doc has me down with TTP/HUS. Its has more HUS symptoms as my kidneys get beat up evertime I go through it. I always run a LDH level in the mid 100's. Its...
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