Linda, That is awesome...hope she is still doing well. Megan ... From: Linda Pohly To: thrombocytopenia@yahoogroups.com Sent: Thursday, September 30, 2004 3:36...
Dianne, I apologize for jumping in here...you sound AWESOME!!! Tell me --- is today number 4? How are the numbers? I go the the Doc on Monday so this will...
Hello Karen, My name is Jose and this is all still new to me. I was diagnosed on May 2, 2004 and just went back to work on Sept. 20. I feel great and try to...
Hi there Di Great news bout the Rituxan Di, Its great isnt it I'm sooooo happy for you WWOOOHHOOOOOOO a true blessing eh :-) Well THATS IT !! well at least til...
... Hi Megan, Jump in!! I finished number 4 today woohoooo!! I had pheresis wed and i was 229 and was 169 today...so i am concerned...eeekkkk!!! but all the...
... Its the weekend, no more mention of the office and work...who cares about salaries and meetings...enjoy and get pampered!!! What would we do without our...
Hi Jose - Welcome to the group. I was diagnosed in May of 2001. Very ugly like most everyone else, but not as bad as some. I responded well to the plasma...
YOU too Di Keep Chilled - and get them plates UP.. Speak soon Jeannie :-) xx The Trail is beautiful Be still ....... Najavo Indians Do something amazing...give...
Scott and Susan Allen here... We've got TTP and adult HUS with APLS (Lupus and Anticardiolipin) antibodies and since May, no remission at all. We've tried...
Hi Susan, I have tried all the treatments you mentioned, except IVIG. Splenectomy did not work for me....gave me about 2 months of remission. But, I haven't...
I don't mean to be rude - do you BOTH have this? Megan ... From: Susan Allen To: thrombocytopenia@yahoogroups.com Sent: Saturday, October 02, 2004 2:01 PM ...
i was diagnosed june 4, 2004. welcome to this site. there's a lot of information here and everyone is willing to listen and offer advise. some of it is better...
i don't live in southern california, but the best thing for you to do if you feel like you need a second opinion, is to call umass general in boston. they are...
i was under a lot of stress before i was diagnosed. i was planning a wedding in my last semester of college, and right after the wedding was finals. i was also...
i am happy to hear about your sister. i know all about the "roller coaster platelets." i have not had Persantine, i had rituxin. and had no trouble with it....
Hi Mike! Haven't been on in awhile, but I try to read the messages to keep up with what's going on. I've been kind of depressed because I'm scheduled for a...
Hi, Mike Haven't been on in awhile. Depressed because even tho I'm feeling good now & counts are great--I have to get a splenectomy this Wednesday, Oct. 6....
Mary I beleive the spenectomy will put you in ermission just don't know how long.I think it will give you A long one you have not had it long.It seems to work...
Hi Scott and Susan, I had a splenectomy on 9/11/02, and it has put me in remission. I never tried any of the chemos. I have had 4 upper respiratory infections...
Hi Mary, I am praying that the splenectomy works for you! Will it be done laproscopically? I hope so! That's what I had and the recovery was no big deal! I...
i had my spleen out in october of last year.. and so far so good... but today im at the beginning of my first cold/flu since then... so i'll let you know. ...
Hi, I'm new to the list. I was diagnosed in early September of last year. I'm coming up on my yearly appointment with the specialist who has treated me since...
HI Liza - Welcome. :-) ... <lizajo@c...> wrote: <I'm curious if anyone knows how long you have to be in remission before you're considered cured? Or are you...
Thanks for the advice and the welcome. :o) It's nice to be able to talk to people who have the same condition. When I first was diagnosed, I had no idea what...
Good to hear that 12 months seems to be the time frame for relapses. I've been free from relapse for 3 years now and doing great. Hang in there everyone. It...
My sister's platelets have been in low-normal range now for five days. She has been in the hospital since August 30, and there was only one other day when she...
Linda, I was in the hospital for three weeks of daily exchanges before I was sent home and then outpatient for daily exchanges for weeks before trying to wean....
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