Hello all, My name is James, but I go by Andy. I was recently told that I have TTP. I am very confused about the disease. I am going through plasma echanges...
Andy, I am so sorry to hear about your recent bout with TTP. It is a scary, annoying disease! I was like you before TTP, very healthy and very active. The...
-Andy, Welcome!! So sorry to hear about your news!! You found a great place! The people here are friendly and full of knowledge! What knowledge there is with...
Lisa, Thank you for the support. Before this came along I was very healthy, I ran every other day I would go to the gym when I had a chance. My three year old...
Dianne, I have a feeling that this group is really going to help me through this. I just need to be patient and listen to what my doctor says, which is very...
Andy~ Even though all of us have to deal with and cope with this disease, dont EVER let it take away your life! Then it will have beaten you! The object is...
Hi Andy - Welcome to the group. Believe me when I say that I understand what you're going thru. Also believe that even if you can't "beat" TTP, it can only...
Hi Everyone! My name is Karen and i'm seventeen years old. I just started my senior year of high school, and i have the sneaking suspicion that i might be...
Karen - Go to the doctor ASAP and get your bloodwork done ASAP. Its not worth messing with - you need to catch this quickly. Good luck - we will be praying! ...
in 2001 i was diagnoised with idiopathic thrombocytopenic purpura i have pleaces on my leg's that seep blood and they look awful it has really had me...
Karen, Get yourself to the emergency or doctor right away. Don't wait. With TTP things can change so quickly. I hate to say it but it could be a matter of life...
Hello Karen, as a mother I'm sure your parents will feel the same - don't worry about the "unnecessary anxiety", go get a blood test. It'll make you feel...
Sara, I had been diagnosed with ITP 4 years ago and had another episode of my platelets crashing 2 years later. I recently was hospitalized 6 weeks, 4 of those...
andy i know how you feel taking steroids i been on and off them since i was diagnoised with ITP my dr wanted to put me on a low dose to stay on for good but...
andy i know how you feel taking steroids i been on and off them since i was diagnoised with ITP my dr wanted to put me on a low dose to stay on for good but...
so ITP can turn into TTP?my insurance is stupid i have UHC and they say that if a disease is unknown it could cost them more than diseases that are known...
Sara, I moved a year ago and I found a new doctor. When they diagnosed me with the TTP, my new doc said she thinks I had TTP before with my other 2 episodes....
Did they find something in the bone marrow biopsy? I thought that it was to test for leukemia? And if they found nothing then they guessed it was ITP. Am I...
No, they never said ITP can turn into lukemia, but when I was diagnosed with the ITP they did check for that as well as lupus and all that was negative. They...
Hi Karen- I'm Karen too. Like the others said...GO and get your labs checked. If it's not a relapse then there's no harm, no foul. If it is, the earlier you...
they done the bone morrow test to confirm it was ITP and plus took 11 tubes of blood out of me a week later i went back and he told me it was ITP but he had...
The medic alert ID is a good idea. Something I've been thinking about getting. Heather ... From: sara [mailto:sl_mj2002@...] Sent: Wednesday, September...
Yuck! Did having all your food taste like cardboard help you not eat so much on the pred? The pred is actually giving me breathing problems. Using an...
YES Get the Medic-Alert bracelet and the free necklace that you can get with it too. I have been needing one for years and finally when I was diagnosed with...
I still ate most of my meal but when I got hungry long before the next one I made myself eat it all plus teh nurses scolded me telling me I needed the...
... My doctor keeps recommending splenectomy, but I continuously refuse. (They can't MAKE you! LOL) I've done a lot of research on this, and removing the ...
SHARON!! I'm from SACRAMENTO TOO!!!! I'm catching up on email, one group at a time and I clicked on your message by mistake, so I don't know what you've ...
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