... Hi Mike, I havent used Rituxan yet but in the stages of should I try it or not? Ive been going thru pheresis since April, tryin to get stable, just when I...
spleen removal- has anyone who has ttp had it, and has it helped. I had it, but its too soon to tell. I'm healing very quickly and I feel great. Everyone I...
Hey Dianne - Megan here - I had emailed you a while back in your ? 's about Rituxan - I was wondering who you saw at J.H.? How many times have you relapsed w/...
It didn't work for me, unfortunately. Eric Lofstedt <PowerbombEL@...> wrote:spleen removal- has anyone who has ttp had it, and has it helped. I had it,...
My nephew, Louis Ray Petersen, died last week. He was diagnosed with TTP just days before his death. He had been hospitalized many many many times for over 3...
Meg, I am so sorry for your loss. Please don't beat yourselves up over this. I know guilt is a common part of grief, I lost my little girl mid-term to this ...
I had one almost 2 years ago, and it worked for me. ... http://search.msn.click-url.com/go/onm00200636ave/direct/01/ ... __________________________________ Do...
Hi there---I tried vincristine very early on in my disease (3 years ago). I responded well to plasmapherisis but wasn't able to go more than a few days without...
hi, vincristine is a mild chemotherapy drug. i was given it a couple of years ago when things got really bad and apheresis wasnt working. i cant explain to...
Dear Meg, You have my deepest sympathy. I lost my 31 year old daughter last month. She died within a week of diagnosis. I just feel that there should have been...
My tall, slender,beautiful 25 year old artist daughter, Claire, died from TTP last September 12th. She had been to the urgent care clinic with what we now know...
My deepest sympathies to the two of you. I was diagnosed with TTP-HUS in 2002. Was admitted via the ER in critical condition. And for the first day they had...
Dear Claires mom, George and Meg I just wanted to reply to your messages, it is a pleasure to hear that you read our messages and take part in the group. I am...
I sit here not knowing what and how to respond to such sad emails knowing that it could have been us. We thought Gills bruising and pinpoint red dots were...
I am so sorry to hear about your daughter. I think we all know how lucky we are to be here, when others for no real reason are not. If not, your post is a ...
Hi Megan - I tried to send the Primer to your Yahoo account but it won't go. Can you send me a private email so I have a Reply To address? It won't go off the...
Meg, Gaila and George - I am so sorry about your lost loved ones. I too wish there were some answer as to why this disease is not recognized for what it is. I...
Dear Claire's Mom, I read your post today. Thank you for sharing the tragedy of the loss of your beautiful daughter. I'm sure that many have said to you that...
My thoughts and prayers are with you as well. Hugs Suz ... __________________________________ Do you Yahoo!? Yahoo! Mail Address AutoComplete - You start. We...
I'm so sorry for your lose. I can't imagine how to console you. I sit here reading your stories and clearing my eyes, while at the same time thinking - What...
George...such touching words that shed many tears here. I am a survivor of this illness and am 31 years old...It is such a wake up call to realize how...
George, Your post could not in anyway offend anyone. It is a tribute to your love of your daughter. I hope your pain will become more bareable. I am not a...
I know how I thought I wanted to end my life (major depression) until I ended up in ICU in Grave condition...that's when I changed my mind and wanted to...
Dearest George, I have just read your mail and I am so so sorry about your beautiful daughter. It is so difficult to know what to say. I just wanted to let you...
did anyone here had brain stroke? did it have any longterm effect on you? ... Do you Yahoo!? Yahoo! Mail Address AutoComplete - You start. We finish....
Hey - there is the man that is behind Gillian - I am so glad she is doing so well. I am sure this was a terrible time for you as well. My husband was a...
3 weeks ago my platelets were down to 10K and the doctor wanted to put me back on Pred. I begged him not to. They agreed if I got my levels checked weekly....
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