Hello All, I introduced myself to the group a while a ago but i have not participated in many of your conversations. I am writing to get some advice from all...
HI GUYS, SORRY TO JUST JUMP IN HERE BUT HAVE ANY OF YOU TALKED TO YOUR DOCS ABOUT THE TIRED THING? I BASCIALLY TOLD MY DOC THAT IT WOULD BE HARD FOR ME TO...
Monique..sorry you are having this happen..I too have had some recent problems with my hematologist dismissing my fears....Time to go...you have to have a...
Hello all, Gills platelets today were 314k - amazing huh? If only she could hold on to that number. She had surgery this morning to input the perm. cat. as it...
Hi, I was wondering if any of you have had a tetanus shot since you have been diagnosed with TTP? I am due for one, but was uncertain what if any affects there...
Hello Monique, hope you are feeling better and as promised here's the phone number of the doctor we are somewhat confident with: 770-281-5100 her name is...
I am new to this site so bare with me. I was diagnosed with TTP back in '92 and have been treated off and on since. Now for the moment I am in remission. If...
Hi Monique I am new to this site as I said, but I haven't read all of your emails but my symptoms are the bruising and spots that look like the measles I can't...
... hi Joy - YAY! Tell Gillian to hang in there. This will get better with time. You and son-in-law be sure to take some time to relax and rest. SO glad to...
Hi Monique - I wish I could tell you that what you'r eexperiencing is signs of relapse. Unfortunately there is no set pattern to watch for. It is all very...
Hi Tracie - This is a thin line subject...RE: Vaccinations and Immunizations. Here's my spin. I had a tetanus booster and then relapsed about 2 weeks later -...
hey hey, just thought id tell you guys about this free debt consolidation site that reduced my monthly payments by damn near half, no more worries about bills!...
Hi Tracie, Yes, I had a tetanus shot after my episode. Probably 6 months after. And had absolutely to problems with it. Hugs, Cherie In a message dated...
All, thanks so much for your responses to my concerns. i have fired my old doc and have set up an appointment with a new doctor. I also have an appointment...
Monique, I want to tell you that I really admire you for putting you and your health first and moving on to a new doctor! I can imagine that wasn't easy to do,...
Hi Karen, I got to thinking about another vaccination, Hep B. We have Bloodborne Pathogens classes at work, and in order to complete the classes, you are...
... Hi Monique - I wish I could tell you that what you'r eexperiencing is signs of relapse. Unfortunately there is no set pattern to watch for. It is all very...
Hi there Angela :-) I will certainly ask about that - because this tiredness just drives me potty hahaha Thanks for your advice High Platelets Jeannie xx Our...
Hi there Lisa Its certainly very strange how it happens - just when we are about to enjoy ourselves mmmmmmm I think them platelets know a lot more than we give...
Hiyaa Just me :-) Well in ansa to your question - "wouldent you like to know" hehehhee No, to be honest I work as a Service Manager in Mental Health - so I...
Hiyaaa Karen, Its Jeannie here :-) the Oklahoma trip sounded great fun :-) I would just LOVE to go to the deep south :-) Just a little question for you and our...
Hello all, Gill had her toughest bought today. At the end of the pheresis treatment, she got an awful headache, hot sweats, began to vomit and had diarrhea....
Jon, I don't know what can be causing that but I am sure one of the others here, especially Karen know. I just wanted to give you moral support. I know what...
Sorry to hear that happened! Did her blood pressure drop at all when that happened to her? Are they using heparin or calcium/citrate with her treatments? I had...
Hi Lisa, She is getting calcium injections while they are doing the pheresis. Her blood pressure was normal throughout the day. During the first bought, she...
Hi there Jon, Ive just read your msg and I wanted to just give my input :-) as Lisa says whilst we go on the machine our calcium depletes, you can either sip...
Hello all, Gill went through the colonoscopy ok today. The Dr. found 2 lesions in the splenic flexure portion of her large intestines. The Dr. believes it...
This is good news Jon and Joy :-) I am hoping and praying things stay positive - give Gill our love Take it easy - our thoughts are with you Jeannie xx Our...
Hello jeannie, Gill came home today and will go back Mon, Tues and Fridays for pheresis. Her count had dropped today a little but still in the 200k. She's...
Joy, I am glad to hear that Gill is home! I hope and pray that her counts stabilize and she begins to regain her strength! James, Joseph and Paul, huh? Very...
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