My Dear Bonita, I know exactly what you speak of when it comes to steroids. Today JAMA claims the effects last longer with females and warn to use with care....
(((De'Vonda))), PLEASE don't leave!!!! I feel like I found a dear friend and am about to lose her!!! Your imput on this board, the stories of the experiences...
My goodness Bonita! Your prednisone trials, we like to call it "the beast" here, sound similar to a lot of ours. I'm not sure about the 911 scare but it...
Lisa- My son is very healthy now. At the time he was born he only weighed 3 lbs. 6 oz. He was in the NICU for a month and on a heart monitor for the first 7...
Christine, You crack me up! You DO have a remarkable sense of humor! thepoetpainter <cmcvay2@...> wrote: My Dear Bonita, I know exactly what you speak of...
Bonita! Whew, what an adventure! Sometimes I start to feel sorry for myself for having TTP and then I read stories like yours....I can't imagine going through...
Hey...I have a question to pose to people (yes, me again!). Does anyone feel tired? Like, not just because you worked hard yesterday or this week, or because...
My mother had severe fatigue for several weeks prior to being diagnosed with TTP. She is still in the hospital with her first epidose. Today makes her 25th...
In a message dated 5/1/2004 5:29:50 PM Eastern Standard Time, jenn_hamilton109@... writes: Does anyone feel tired? Like, not just because you worked hard...
Jennifer, Glad to see a message from you! :) I have times when I am so tired! Yesterday morning was one of them. Then, I rest up and it goes away. I know I am...
I also get very tired. Even if I just go shopping for 3 or 4 hours or if I have extra guests for dinner or if I do anything very much out of the ordinary the...
Hello everyone, In may case I would say I never had any problem with fatigue. Even when my count was as low as 3.000 I would not have known the difference from...
Jennifer, I do become very tired occasionally but it's usually due to my thyroid instead of TTP or ITP. It's extreme fatigue where I would fall asleep at the...
Hi Jen, I feel extremely tired when my counts are low. They've been hovering around 25 the last couple weeks and it seems like I sleep all the time when I'm...
I too still have fatigue. I have to take a nap on the weekends to catch up. I force myself during the week at work to keep going, and usually by the end of the...
Thanks, everyone... Not that I'm happy that you are all also tired, but I'm glad I'm not the only one. Lately I have been agonizingly tired and not sure why....
Wanted to let you all know that I did meet with my Clinical Nutritionist last week - we will meet again this week to talk further about a 'plan', as he was...
Have you had your iron level tested lately? It's possible that could be low and you need an iron supplement. Do you take a multi-vitamin? I know that I need a...
Hi Lisa, :) Thanks for keeping us all posted. Am very interested in knowing more about the nutrition aspect of this, as well as the biofeedback. Regarding the...
Hey, Lisa...thanks for the suggestions. I have had my iron level checked. I also have my thyroid checked regularly (I have hypothyroidism and it is under...
Hey, Pam -- I find it very odd that the hematologist refuses to acknowledge stress as a factor in blood disorders. As a nurse I KNOW it is a factor. If he...
Hello all I am back. Things are getting better with my mother they are only doing her treatments 1 a week and she is home now and it is great. What I wanted to...
No, Jennifer, no Prednisone - only vitamins so far. I was just thinking tonite that it could be my increase in the B vitamins keeping me up. (I have all but...
Hi Paul - Glad to hear your mom is feeling better. Sorry to hear about her hair loss. That must be difficult for her. I haven't had to use vincristine yet...
Paul, I took Vincristine, my hair thinned quite a bit. I didn't loose it all. It's still pretty thin, I used to have very thick hair but I also took...
Hey, everyone. I had TTP in Sept. 03. Soon after leaving the hospital, I began experiencing this odd numbness - in my lips. It comes with a feeling at the back...
I have never experienced this at all. It may not be anything serious, but I think you are very wise to make an appt. with a different doctor. Keep looking...
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