Dear all, My mother is retrieving part of her usual physical state, though exceptionally slowly, due to the cortisone therapy, mainly. Thus my question. Given...
Hi Everyone, Ralph and I want to thank you all soooooooooo much for your prayers. We were used to Ralph living with ITP in a pretty stable state, so this is...
Am agreeing with you both!! Amen and AMEN!! Blessings, Pam ... cause as Aaron and Caleb held up Moses's arms when he grew weary we shall do that now for them...
So do I Sisters!! :) Blessings, Pam ... cause as Aaron and Caleb held up Moses's arms when he grew weary we shall do that now for them for we KNOw u r a...
Hi Luca- I am so glad to hear that your mother is feling better. I have been thinking of you and wondering if there had been a change in her situation. I have...
Hi Karen, You still amaze me with the wealth of information you are able to provide us. Glad you're home and on the road to recovery -- again!!! I had an...
Kristi, I will keep you posted on my disability. Glad to hear you're doing better. Do they want to give you Rituxan? My doctor feels it did the trick for...
Kristi, The disability policy you had to pay back -- was that with your federal job? Did you have to take early retirement from your government job because of...
Lisa, Isn't it funny how we don't like needles, but we've all been poked and prodded how many times during all this. You know what's even funnier -- I've...
No, it's not just you, I feel like an old woman -- upon waking, upon rising from sitting, when walking I feel much better hanging on to a shopping cart. And...
Thanks Karen, I'll be looking into anything useful. I'm a biomedical engineer, and I normally work together with physicians and attend to congresses, so I...
Hi Nettie, I think it may be close to 200. I asked them to stop telling me quite a while ago. I am such a perfectionist and all it did when they would say,...
...He's new to us, a Dr. Dar. Nice guy and thorough. Dr. Dar's starting from scratch, and will not even call it ITP officially until he runs his own tests....
Hi Nettie - Wow! Kind of scary terrain here. Rituxan is so very new really. It's not engineered for TTP. It is a highly cytotoxic chemotherapy. I did some...
Hi Luca - Once you get a chance to look thru some of the informaton, let me know if you have any specific questions and I'll do my best to help you track down...
Hi Justme - Thanks for this. That's a good giggle. :-) At least you had them handy! LOL! Most guys keep the spare pair in the glove box! Love ya. Karen ... me...
Hi Justme- Painfully normal I think, unfortunately. It is for me as well. Waking up is way slow. Getting up is okay, once I work up the energy to make up my...
Hi group, I hope everyone is doing well. I myself have not posted in awhile but do hope to change that soon. I was a little under the weather, suffering from a...
Hi...just got out of the hospital after being treated for ttp. I had first had it 11 years ago at 7 months pregnant, then again 13 months later. It's been...
First off, I've had kidney stones a few times. Not fun stuff. Secondly, the thing about Julia Roberts isn't new. It was going around a while ago. Not sure...
Hi Vicki - Welcome to the family. :-) Wish we had some lower entrance requirements for membership. I can get you started right now by recommending that you...
Hiyaa Chrissy Its Jeannie here.. Just to say that I read the same thing re Julia Roberts It was in the National Enquirer about 12 months ago - have not heard...
Thank you Karen...i've skimmed thru the links...looks like there's there's a lot of info for me to get started....does anyone ever use the chat? Karen...
I was referred to this article by another of my groups, one on Immune Problems. It's from a recent article in the San Francisco Chronical.Not sure if t ...
Dear Karen, from what I can read here, you know a lot more than I could get in a week 24h digging cruise in the net hereby and hereunder :) What the net helped...
Hi Luca - Yes you are right. Prednisone or any other corticosteroid is not the answer for long-term treatment to prevent relapse. They are too hard on the...
Vicki, Although I am certainly not an expert w/ this disease nor with the possible treatments available I can only tell you my story. My bout began 6/2/03 and...
... wrote: 4 rounds of the greatest drug for me... Rituxan (sorry Karen). Hey Megan - No need to apologize. :-) If I had been thru a round like yours I...
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