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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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Messages 4798 - 4827 of 21499   Oldest  |  < Older  |  Newer >  |  Newest
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4798
Hiya Angela, I hope my message finds you well :-) Just in answer to your mail, please try and relax - an easy thing for others to say I know - but as someone...
jeannie belfield
jeannierb2002
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Mar 1, 2004
7:18 pm
4799
Hi everyone Just a question for you :-) Has anyone experienced palpitations or flutterings of the heart ? I have noticed that I keep experiencing palpitations...
jeannierb2002
Offline Send Email
Mar 1, 2004
7:24 pm
4800
Yes, Jeannie, I have experienced that off and on. It is scary. Do you have blood pressure at all? jeannierb2002 <jeanniebelfield@...> wrote:Hi everyone ...
Lisa Schmitz
catsgreen777
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Mar 1, 2004
7:37 pm
4801
Hi there Lisa :-) Thanks for answering me :-) Re blood pressure when Ive relapsed my BP goes all over the place one minute too high then too low - but I have...
jeannie belfield
jeannierb2002
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Mar 1, 2004
7:47 pm
4802
Hi Jeannie, I am home today recovering from my weekend. I ended up missing my sister's bridal shower yesterday due to my pounding headache. I have never had a...
Lisa Schmitz
catsgreen777
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Mar 1, 2004
7:55 pm
4803
Thinking of you Lisa, I hope that headache stays away :-) Have a nice rest today Speak soon Jeannie xx Our greatest experiences are our quietest moments.. ...
jeannie belfield
jeannierb2002
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Mar 1, 2004
8:10 pm
4804
Hi Jeannie - Hope you're feeling better. I get the heart flutters too. It was a hallmark signal for me during the first 3 episodes, ocurring about 2-4 weeks in...
Karen
wiederteufel
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Mar 1, 2004
9:52 pm
4805
Hiya Jeannie, Sorry to jump in here. I read that you are on 75 mgs of aspirin. Wouldn't that put you at risk for relapse?My doctor told me to never have any...
Sue B
SuzAngel
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Mar 1, 2004
11:37 pm
4806
Hi Suz...when I was diagnosed, they had me on a very low dose to try to keep from getting blood clots but once the ports were gone, they told me no more ...
Melissa Hunter
rosigerg
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Mar 1, 2004
11:41 pm
4807
Hi Melis, I used to take Aleve for almost everything. I kept a bottle in the car, on my desk at work, in my purse and in my medicine cabinet. I didnt find out...
Sue B
SuzAngel
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Mar 2, 2004
12:02 am
4808
Suz- sorry to jump in...love the disease charm bracelet --- I have MS and the TTP and several allergies...great idea!!! Megan ... From: Sue B To:...
Megan Bower
mmbower7171
Offline Send Email
Mar 2, 2004
12:27 am
4809
Forget the charm med alert bracelet. Why not simply tattoo everything on your forearm that way it is there 100% of the time! it is also very trendy. lol ...
justme4blue
Offline Send Email
Mar 2, 2004
1:36 am
4810
Thank you for the Prayers! Tonya, Kendall's mom ... remission and ... of the ... going ... to ... getting ... have ... soon. My ... my ... Kendall and ... ...
ladyace47403
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Mar 2, 2004
1:38 am
4811
It seems that this discussion group is more for adults with ITP. I have a 12 month old that has had ITP for almost eight months. I am wondering if there is a...
ladyace47403
Offline Send Email
Mar 2, 2004
1:42 am
4812
Justme, We are all happy you are doing so well! Please don't hesitate to keep sharing your good results and good news! It makes me smile to know you are doing...
Lisa Schmitz
catsgreen777
Offline Send Email
Mar 2, 2004
3:31 am
4813
Hey Jeannie! I have experienced a palpitation or fluttering feeling, but I wasn't sure if it was from my heart or my lungs. It's kind of scary, but I just...
De'Vonda Williams
ljadmw
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Mar 2, 2004
6:06 am
4814
Justme, when I began reading this message I said, it has to be from Justme. You are so very funny. It's always good to have the spirit of laughter around at...
De'Vonda Williams
ljadmw
Offline Send Email
Mar 2, 2004
6:16 am
4815
Hi- There is an most excellent group/information site called ITP People at this URL: http://pdsa.org/ They have good research resources, up to date info on the...
Karen
wiederteufel
Offline Send Email
Mar 2, 2004
12:00 pm
4816
Thank you Karen for your reply. I am actually a member of the PDSA site but recently several of the parents have gotten into a religious dispute and it has...
ladyace47403
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Mar 2, 2004
1:03 pm
4817
Hi Sue, I thought you had a great idea with the charm bracelet, so I checked in to it. I thought maybe you could patent the idea and make millions, but darn...
Mary
batacak
Online Now Send Email
Mar 2, 2004
1:25 pm
4818
The link is too long, so I'll try to give it to you with 'wrap text' off: http://cgi.ebay.com/ws/eBayISAPI.dll? ViewItem&item=2693460078&category=43060 If it's...
Mary
batacak
Online Now Send Email
Mar 2, 2004
1:51 pm
4819
Hiyaa Suz Just read your mail - Yes I was very concerned at first too as I am told also not to have asprin based products etc - and I am so careful what I take...
jeannie belfield
jeannierb2002
Offline Send Email
Mar 2, 2004
5:58 pm
4820
Hiya De'Vonda I am going to mention it tommorow at my hospital appt, it may be the prednisilone. I am sure its nothing too worrying but its not a nice feeling...
jeannie belfield
jeannierb2002
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Mar 2, 2004
6:06 pm
4821
Enter your vote today! A new poll has been created for the thrombocytopenia group: Where do you live ? o UK o USA o Caribbean o Spain o France o Germany o...
thrombocytopenia@yaho...
Send Email
Mar 2, 2004
6:37 pm
4822
Hi - Sorry to hear about the conflict at PDSA. Hope they get it resolved. I did some searching and managed to find a couple of prospects. (It seems that PDSA...
Karen
wiederteufel
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Mar 2, 2004
6:37 pm
4823
Jeannie, I wanted to say, my palpitations were quite frequent while on prednisone...anther reason to hate the stuff! Have a good day, Lisa ... Hiya De'Vonda I...
Lisa Schmitz
catsgreen777
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Mar 2, 2004
8:26 pm
4824
There ya go Justme! I needed reason to get another tattoo! LOL ... === message truncated === __________________________________ Do you Yahoo!? Yahoo! Search -...
Sue B
SuzAngel
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Mar 2, 2004
11:10 pm
4825
Hiya Mary, Don't it just figure. I have a brilliant idea and someone else has already thought of it. Just my luck. LOL Suz ... ...
Sue B
SuzAngel
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Mar 2, 2004
11:18 pm
4826
Hiya Jeannie, I guess it would be a double edged sword huh. If you dont take it, you could have another stroke. If you do take it, in large amounts, it could...
Sue B
SuzAngel
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Mar 2, 2004
11:31 pm
4827
... --~-> ... I JUST WANTED TO SAY THANK YOU TO EVERYONE. YOU ALL HAVE HELPED ME MORE THAN YOU KNOW. I'M DOING MY BEST TO KEEP A SMILE ON MY FACE, AND PRAY...
ANGELA
alabita2003
Offline Send Email
Mar 3, 2004
2:53 am
Messages 4798 - 4827 of 21499   Oldest  |  < Older  |  Newer >  |  Newest
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