Hello all!  My name is Christy and I am 31.  In 1996, I was hired to

work at a Assisted Living Center and they did a CBC before I was

hired.  About a month after I started, the supervisor came up to me

and told me that my CBC showed something that she has never seen

before and that I should go to my doctor.  I went the next day and

the supervisor had already called him and told him the numbers from

my CBC.  My doctor then ran blood test every 8 days for almost 4

months, he said he did not know what was wrong with me, but my

platelet count was getting lower.  Then one week my doctor was gone

and I had to go to different doctor and he was new in town.  I told

him what all my doc had done and he took more blood and said he is

going to run a different test.  He then sent me home.

When I got home, I got online and finished my research I had already

started.  I was trying to find out what was wrong with me.  The new

doctor called me in a few days and told me he figured out what was

wrong with me.  He said I have a blood disorder called ITP, I told

him that I had some research on that I had gotten off the internet.

He sent me to a blood specialist and he did confirm that is what was

wrong with me, at that time my platelet count was 13,000 and still

falling.

The specialist did a bone marrow aspiration on me and I passed out.

He found out that my appenix and spleen are absorbing all my

platelets, but he did not want to remove either one of them.  At this

time, my count was down to 6,000 and I had to have someone with me at

all times.  I had a four year old daughter and the doctor thought it

would be best if I had someone with me all the time.

My appendix flared up in May of 2000 and I had to have it removed.

When they did my CBC, my platelets were 15,000.  After surgery they

were 75,000.  The doctors thought that cured my problem. In October

of 2000, I started to feel real weak again and knew my platelets were

down again. I went to spec. again and they were 42,000, which he said

was not that bad.  He tested me for Leukemia and Cancer and

everything else.  I came out clean.

I did not go back to spec. for three years (could not afford it!).

In May of 2003, I slipped and fell 1/4 of an inch and shattered 1/2

inch of my Tibia on right leg and broke my Fibula right below my

knee.  Luckily, the bones did not come through the skin.  I was

rushed to hospital for emergency surgery.  My platelet count was

34,000, the surgeon gave me two bags of platelets and put a titanium

rod in my leg.  Three days later, my platelet count was 98,000 and I

felt better than I had in a very long time (except for my leg

hurting!).

About two weeks ago, I started to feel bad again and went to hospital

because I was throwing up.  They did CBC and my platelet count  was

38,000.  The doctor told me that it was nothing to worry about, I

will be fine.  I tried telling him that when I am stressed and not

feeling well, my platelets go down real fast.  He told me that I did

not know what I was talking about.  I walked out.



Well, that was longer than I expected it to be.  Sorry! :(

But, that is me!  Glad to finally find a group that is about this

issue.



Christy

My name is Pam. I am 24 years old, and married to my wonderful US

Navy man. We are very blessed with 3 wonderful kidlets. I have had

ITP since I was a kid. It goes into remission for years at a time.The

last time I had an episode was in 2000 when I had my daughter.

Postpardun hemmorhage..it was very scary.  Thankfully, it has been a

long time since I have had to have Prednisone (BLECH!!!) However, I

was hospitalized last week for a pulmonary embolism (blood clot in my

lung). Weird given my history of low platelets. I have been diagnosed

with having Factor V Leiden gene mutation..making me 8 times more

likely to develop a blood clot :/ Well, since I am on blood

thinnners, and have a history of ITP they are watching me very

closely..well, it appears that the ITP is rearing its ugly head

again. My platelets yesterday were 57,000. Not tooo bad, considering

there was a point they got down to 14,000. YIKES!! They are wary of

putting me on anything for my platelets because of the embolism.

sooo, I guess I am stuck between a rock and a hard place. lol I was

wondering if there is anyone else who has the Factor V Leiden along

with ITP. Oh, and for those who are trying to conceive with ITP, it

can be done!! I am proof times three!!

Thanks!!

Pam

My name is Pam. I am 24 years old, and married to my wonderful US
Navy man. We are very blessed with 3 wonderful kidlets. I have had
ITP since I was a kid. It goes into remission for years at a time.The
last time I had an episode was in 2000 when I had my daughter.
Postpardun hemmorhage..it was very scary.  Thankfully, it has been a
long time since I have had to have Prednisone (BLECH!!!) However, I
was hospitalized last week for a pulmonary embolism (blood clot in my
lung). Weird given my history of low platelets. I have been diagnosed
with having Factor V Leiden gene mutation..making me 8 times more
likely to develop a blood clot :/ Well, since I am on blood
thinnners, and have a history of ITP they are watching me very
closely..well, it appears that the ITP is rearing its ugly head
again. My platelets yesterday were 57,000. Not tooo bad, considering
there was a point they got down to 14,000. YIKES!! They are wary of
putting me on anything for my platelets because of the embolism.
sooo, I guess I am stuck between a rock and a hard place. lol I was
wondering if there is anyone else who has the Factor V Leiden along
with ITP. Oh, and for those who are trying to conceive with ITP, it
can be done!! I am proof times three!!
Thanks!!
Pam



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----- Original Message -----

From: De'Vonda Williams

To: thrombocytopenia@yahoogroups.com

Sent: Tuesday, December 09, 2003 7:25 PM

Subject: Re: [thrombocytopenia] Hello!

Hi Pam! It's good to hear that you have done so well with ITP.  Keep your faith in God.  I haven't been diagnosed with ITP or TTP, but I have lots of the symptoms.  I am also encouraged to know that you have 3 wonderful children.  My husband and I pray to conceive some day.  Be blessed.

 

De'Vonda

Pam <blockpam@...> wrote:

My name is Pam. I am 24 years old, and married to my wonderful US
Navy man. We are very blessed with 3 wonderful kidlets. I have had
ITP since I was a kid. It goes into remission for years at a time.The
last time I had an episode was in 2000 when I had my daughter.
Postpardun hemmorhage..it was very scary.  Thankfully, it has been a
long time since I have had to have Prednisone (BLECH!!!) However, I
was hospitalized last week for a pulmonary embolism (blood clot in my
lung). Weird given my history of low platelets. I have been diagnosed
with having Factor V Leiden gene mutation..making me 8 times more
likely to develop a blood clot :/ Well, since I am on blood
thinnners, and have a history of ITP they are watching me very
closely..well, it appears that the ITP is rearing its ugly head
again. My platelets yesterday were 57,000. Not tooo bad, considering
there was a point they got down to 14,000. YIKES!! They are wary of
putting me on anything for my platelets because of the embolism.
sooo, I guess I am stuck between a rock and a hard place. lol I was
wondering if there is anyone else who has the Factor V Leiden along
with ITP. Oh, and for those who are trying to conceive with ITP, it
can be done!! I am proof times three!!
Thanks!!
Pam



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I worry about you - since you havent been diagnosed are they giving you treatment?  I was led to believe that the disease is fatal without treatment. 

----- Original Message -----

From: De'Vonda Williams

To: thrombocytopenia@yahoogroups.com

Sent: Tuesday, December 09, 2003 7:25 PM

Subject: Re: [thrombocytopenia] Hello!

Hi Pam! It's good to hear that you have done so well with ITP.  Keep your faith in God.  I haven't been diagnosed with ITP or TTP, but I have lots of the symptoms.  I am also encouraged to know that you have 3 wonderful children.  My husband and I pray to conceive some day.  Be blessed.

 

De'Vonda

Pam <blockpam@...> wrote:

My name is Pam. I am 24 years old, and married to my wonderful US
Navy man. We are very blessed with 3 wonderful kidlets. I have had
ITP since I was a kid. It goes into remission for years at a time.The
last time I had an episode was in 2000 when I had my daughter.
Postpardun hemmorhage..it was very scary.  Thankfully, it has been a
long time since I have had to have Prednisone (BLECH!!!) However, I
was hospitalized last week for a pulmonary embolism (blood clot in my
lung). Weird given my history of low platelets. I have been diagnosed
with having Factor V Leiden gene mutation..making me 8 times more
likely to develop a blood clot :/ Well, since I am on blood
thinnners, and have a history of ITP they are watching me very
closely..well, it appears that the ITP is rearing its ugly head
again. My platelets yesterday were 57,000. Not tooo bad, considering
there was a point they got down to 14,000. YIKES!! They are wary of
putting me on anything for my platelets because of the embolism.
sooo, I guess I am stuck between a rock and a hard place. lol I was
wondering if there is anyone else who has the Factor V Leiden along
with ITP. Oh, and for those who are trying to conceive with ITP, it
can be done!! I am proof times three!!
Thanks!!
Pam



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Welcome Pam (and the few other new comers to the group)!



Sorry to hear what you're going through right now -- I'm sure

your doctors will make the right decisions and get you back on

track.    You  said you developed a blood clot in your lung and

you're on blood thinners.    I have TTP and was recently hospitalized

for relapses -- I developed a blood clot in my leg after they removed

a temporary cathether.  I'm also on blood thinners.  My platelets

have been stablizing the past 2 weeks, but I've been getting

pheresis treatments and blood transfusions.   Hope your doctors

come up with a plan for you and that you're platelets start to

rise!   Good luck... Nettie

Hi Pam!  Welcoem to another Military wife!  I am also a military spouse.

I am married to a wonderful Army man.  We are stationed at Ft. Lewis-

where are you guys!  I was dx'd with ITP while pregnant with my second

child. recovered, and was fine until I got pregnant with my son.  Again,

after delivery, my platelets went back up- but not to normal.  My last

check they were 120.  Funny thing- all three of my children have platelet

problems.  My oldest was fine until she FINISHED treatment for ALL- her

bone marrow aspiration looks liek typical ITP according to one of the

oncologists here. my second child was dx'd officially with ITP at the age

of 11 months and never recovered.  Now the docs say it isn't ITP since

she plain and simply does not produce and keep platelets that are

produced.  She also suffers from anemia, neutropenia, panacyptopenia,

thrombocytopenia, and one other- hemo soemthing or another.  She also

suffers from a lot of other medical problems.  My son's platelets seem to

now be following the path of my second daughter's.  He was dx'd 2 weeks

before he turned 2 and a month before my oldest was dx'd with leukemia.

His were doing fine except for when he was sick.  Then about two years

ago his red cell line started crashing.  His white count was low

previously, but not too bad. His last platelet count was actually 135-

highest we have seen in 2 years.

I would love to hear more from you as we are also under the "no

treatment" plan.





Margie, Mom to Karissa, dx'd at the age of 7 1/2 with ALL (1/95) and OT

8/25/97 and still dealing with long term effects at the age of 16 to

include ITP; Anna, age 13 with multiple medical problems of her own-

including ITP, and William- (AKA B.J.) 10 also with his own set of

medical problems including a platelet problem, and of course, wife to my

dear hubby, Kris, of 19 years!





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Hi, I just joined. I would like to tell you a little about myself.



I was diagnosed with TTP June 04, 2004. I had gone to the doctor's

and was dignosed with a UTI (even with the purpura and vomiting,

numbness, etc.) and a few days later I was literally hours from

death when my husband came home for lunch and called the ambulance.



On the ride to the hospital, I couldn't tell the ambulance driver

what my phone number was and I was drifting in out of conciousness.



When I arrived in the emergency room, I had only 1/4 of the blood

you're supposed to have, I was so johndassed I was pumpkin orange,

and my platelet count was 7. Yes, that's 7,000. They told my husband

(we had been married less than 3 months at the time) that if I had

gone to the small local hospital instead of Dartmouth Medical

Center, I would have died.



I spent 6 weeks in the hospital receiving daily plasma exchanges and

undergoing surgeries. During this time, they tried to wein me off of

the plasma exchanges 3 times. Each time, my platelet count

plummetted.



When I asked for a second opinion, one of my doctor's called down to

U Mass General in Boston (where they are doing most of the research

on TTP). It was then that he found out about Rituxan. It's a drug

that's used mostly for Leukemia patients.



I started having infusions of Rituxan, once a week (5 hour infusion)

for 4 weeks, along with my plasma exchanges. Almost immediately, we

started to see a change. I was slowly weined off of the plasma

exchanges and by the time 4 weeks was up, I was completely off of

the plasma exchanges and had spent 2 weeks at home, finally.



Boy, did it feel good to not have a catheder in my chest. My skin

was finally able to breath again and started healing from the damage

the tegaderms did to it.



Since then, I have had blood tests every day, then every other day,

etc. Now, I only go every other week. All my blood levels are normal

and there are (so far) no lasting effects of the TTP - well, except

for the scars (looks like I've been shot).



Well, I didn't mean to go on like this, sorry. But, if any of you

have any questions, feel free to e-mail me at khunt@... or if

you have AIM, my screen name is VTCowgirlAppy. And, of course, I'll

be online checking up on this message board.

Hi, I just joined. I would like to tell you a little about myself.

I was diagnosed with TTP June 04, 2004. I had gone to the doctor's
and was dignosed with a UTI (even with the purpura and vomiting,
numbness, etc.) and a few days later I was literally hours from
death when my husband came home for lunch and called the ambulance.

On the ride to the hospital, I couldn't tell the ambulance driver
what my phone number was and I was drifting in out of conciousness.

When I arrived in the emergency room, I had only 1/4 of the blood
you're supposed to have, I was so johndassed I was pumpkin orange,
and my platelet count was 7. Yes, that's 7,000. They told my husband
(we had been married less than 3 months at the time) that if I had
gone to the small local hospital instead of Dartmouth Medical
Center, I would have died.

I spent 6 weeks in the hospital receiving daily plasma exchanges and
undergoing surgeries. During this time, they tried to wein me off of
the plasma exchanges 3 times. Each time, my platelet count
plummetted.

When I asked for a second opinion, one of my doctor's called down to
U Mass General in Boston (where they are doing most of the research
on TTP). It was then that he found out about Rituxan. It's a drug
that's used mostly for Leukemia patients.

I started having infusions of Rituxan, once a week (5 hour infusion)
for 4 weeks, along with my plasma exchanges. Almost immediately, we
started to see a change. I was slowly weined off of the plasma
exchanges and by the time 4 weeks was up, I was completely off of
the plasma exchanges and had spent 2 weeks at home, finally.

Boy, did it feel good to not have a catheder in my chest. My skin
was finally able to breath again and started healing from the damage
the tegaderms did to it.

Since then, I have had blood tests every day, then every other day,
etc. Now, I only go every other week. All my blood levels are normal
and there are (so far) no lasting effects of the TTP - well, except
for the scars (looks like I've been shot).

Well, I didn't mean to go on like this, sorry. But, if any of you
have any questions, feel free to e-mail me at khunt@... or if
you have AIM, my screen name is VTCowgirlAppy. And, of course, I'll
be online checking up on this message board.

Hello Lisa, this is Gill's Mum - I thought I'd give you an update.

Gill seems to be doing fine and has been off steroids for almost a

week.  She's hoping the Dr. will tell her Tuesday to get the catheter

removed. There's been no pheresis for 7 weeks and the last CBC 2

weeks ago had her count at 426k. We are so very relieved and just

maybe for her first wedding anniversary (October 24) life can return

to some form of normal.

   We are very glad to be in the Atlanta area and cannot speak highly

enough of the treatment she's received. We seem to think that there

are two other women (one pregnant other just delivered) receiving

pheresis at Kennestone hospital but haven't ventured to speak with

them. I don't want to intrude, maybe I'll leave the Support Groups

website in dialysis and ask one of the angels there to pass it on.

Thanks for thinking of us. High Platelets to all.  Bless you all

Joy (Mum to Gill, diagnosed 8 May 2004)









--- In thrombocytopenia@yahoogroups.com, Lisa Schmitz

<catsgreen777@y...> wrote:

> Hi there---Welcome to the group! You aren't Gill, are you? This

sounds so similar to another story we heard where a woman had

recently been married and then had TTP.

> On the scars, they will go down....or they should. I had my

cathetor in for a year and a half and my scar was pretty bad. It's

gotten a lot better.

> You will find lots of great support and information here!

> Glad to hear you are doing so well!

> Take care,

> Lisa

>

> mcarr2 <mcarr2@y...> wrote:

> Hi, I just joined. I would like to tell you a little about myself.

>

> I was diagnosed with TTP June 04, 2004. I had gone to the doctor's

> and was dignosed with a UTI (even with the purpura and vomiting,

> numbness, etc.) and a few days later I was literally hours from

> death when my husband came home for lunch and called the ambulance.

>

> On the ride to the hospital, I couldn't tell the ambulance driver

> what my phone number was and I was drifting in out of conciousness.

>

> When I arrived in the emergency room, I had only 1/4 of the blood

> you're supposed to have, I was so johndassed I was pumpkin orange,

> and my platelet count was 7. Yes, that's 7,000. They told my

husband

> (we had been married less than 3 months at the time) that if I had

> gone to the small local hospital instead of Dartmouth Medical

> Center, I would have died.

>

> I spent 6 weeks in the hospital receiving daily plasma exchanges

and

> undergoing surgeries. During this time, they tried to wein me off

of

> the plasma exchanges 3 times. Each time, my platelet count

> plummetted.

>

> When I asked for a second opinion, one of my doctor's called down

to

> U Mass General in Boston (where they are doing most of the research

> on TTP). It was then that he found out about Rituxan. It's a drug

> that's used mostly for Leukemia patients.

>

> I started having infusions of Rituxan, once a week (5 hour

infusion)

> for 4 weeks, along with my plasma exchanges. Almost immediately, we

> started to see a change. I was slowly weined off of the plasma

> exchanges and by the time 4 weeks was up, I was completely off of

> the plasma exchanges and had spent 2 weeks at home, finally.

>

> Boy, did it feel good to not have a catheder in my chest. My skin

> was finally able to breath again and started healing from the

damage

> the tegaderms did to it.

>

> Since then, I have had blood tests every day, then every other day,

> etc. Now, I only go every other week. All my blood levels are

normal

> and there are (so far) no lasting effects of the TTP - well, except

> for the scars (looks like I've been shot).

>

> Well, I didn't mean to go on like this, sorry. But, if any of you

> have any questions, feel free to e-mail me at khunt@v... or if

> you have AIM, my screen name is VTCowgirlAppy. And, of course, I'll

> be online checking up on this message board.

>

>

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Wanted to say Hello! I am still reading messages from everyone and

wanted to say Thank You and sorry for not writing sooner.I am new to

the group and 3 1/2 months out of the hospital. Just left florida to go

to the midwest. Think it was a big mistake. Does anyone live in South

Carolina ? Also have been reading messages from everyone and was

curious if any members have decided to get together? I have been

reading up on the medical side and it is less than it ever was.Curious

why there hasn't been more of a research on this maybe because there

are not enough who suffer from this disease? Has anyone had family

members that have been ill with this? I have a cousin that had ITP at a

very early age, about the time I was going through the first bout of

TTP, almost ten years to the day that I relapsed. Doctors could give me

no reason for the relapse. Happy Spring Everyone!  Cindy/flr256

What a wonderful thing Cara is doing. Thank God for

the people in this group. I really believe we will

beat this disease yet...it messed with the wrong

people!                           Deneen



--- Mary <earthboundblue@...> wrote:



> Dear Cindy--Good to hear from you!  No doubt I'd

> rather live in Florida instead of

> Pennsylvania...tooooo cold here.  But I was planted

> here, and can't seem to get my roots outta the

> ground.   We'd all LOVE to get together, to actually

> meet one another.  I mentioned something about Oprah

> or Montel, and bam, Cara has been in touch with the

> people at Montel's show...so we can only hope!  I'm

> so glad she's been DOING what I only dreamed of.

> (Thank you Cara, you're just wonderful, gf!  )  TTP

> is more or less an orphan disease, there aren't

> "enough" people with it for the drug companies to

> spend a fortune on seeking a cure, so we wait and

> hope.  If someone famous got it (one of the top

> actors, singers, somone like that) I bet there would

> be articles, shows, specials about this "rare and

> deadly disease"...but would it increase the

> research?  Doubt it unless an upper echelon

> politician got it!

>           Happy Spring to you, too!  I say this as

> they forecast the weather is going to be COLDER, but

> it's always jumping around this time of year here.

> When

>   I see the crocus and tulips begin to push

> up...I'll KNOW it's spring.  So glad to see you're

> back in touch.

>   Blessings!!!   Mary

>

>   flr256 <flr256@...> wrote

>   Wanted to say Hello! I am still reading messages

> from everyone and

> wanted to say Thank You and sorry for not writing

> sooner.I am new to

> the group and 3 1/2 months out of the hospital. Just

> left florida to go

> to the midwest. Think it was a big mistake. Does

> anyone live in South

> Carolina ? Also have been reading messages from

> everyone and was

> curious if any members have decided to get together?

> I have been

> reading up on the medical side and it is less than

> it ever was.Curious

> why there hasn't been more of a research on this

> maybe because there

> are not enough who suffer from this disease? Has

> anyone had family

> members that have been ill with this? I have a

> cousin that had ITP at a

> very early age, about the time I was going through

> the first bout of

> TTP, almost ten years to the day that I relapsed.

> Doctors could give me

> no reason for the relapse. Happy Spring Everyone!

> Cindy/flr256

>

>

>

>

>

>

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What a wonderful thing Cara is doing. Thank God for
the people in this group. I really believe we will
beat this disease yet...it messed with the wrong
people!                           Deneen

--- Mary <earthboundblue@...> wrote:

> Dear Cindy--Good to hear from you!  No doubt I'd
> rather live in Florida instead of
> Pennsylvania...tooooo cold here.  But I was planted
> here, and can't seem to get my roots outta the
> ground.   We'd all LOVE to get together, to actually
> meet one another.  I mentioned something about Oprah
> or Montel, and bam, Cara has been in touch with the
> people at Montel's show...so we can only hope!  I'm
> so glad she's been DOING what I only dreamed of.
> (Thank you Cara, you're just wonderful, gf!  )  TTP
> is more or less an orphan disease, there aren't
> "enough" people with it for the drug companies to
> spend a fortune on seeking a cure, so we wait and
> hope.  If someone famous got it (one of the top
> actors, singers, somone like that) I bet there would
> be articles, shows, specials about this "rare and
> deadly disease"...but would it increase the
> research?  Doubt it unless an upper echelon
> politician got it!
>           Happy Spring to you, too!  I say this as
> they forecast the weather is going to be COLDER, but
> it's always jumping around this time of year here.
> When
>   I see the crocus and tulips begin to push
> up...I'll KNOW it's spring.  So glad to see you're
> back in touch.
>   Blessings!!!   Mary
>   
>   flr256 <flr256@...> wrote
>   Wanted to say Hello! I am still reading messages
> from everyone and
> wanted to say Thank You and sorry for not writing
> sooner.I am new to
> the group and 3 1/2 months out of the hospital. Just
> left florida to go
> to the midwest. Think it was a big mistake. Does
> anyone live in South
> Carolina ? Also have been reading messages from
> everyone and was
> curious if any members have decided to get together?
> I have been
> reading up on the medical side and it is less than
> it ever was.Curious
> why there hasn't been more of a research on this
> maybe because there
> are not enough who suffer from this disease? Has
> anyone had family
> members that have been ill with this? I have a
> cousin that had ITP at a
> very early age, about the time I was going through
> the first bout of
> TTP, almost ten years to the day that I relapsed.
> Doctors could give me
> no reason for the relapse. Happy Spring Everyone!
> Cindy/flr256
>
>
>
>
>
>
>     SPONSORED LINKS
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Hello everybody!



I just wanted to introduce myself. Some of you may know me from the MSN group

that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22 and I had my first

episode of ttp a year and a half ago. I came down with a cold, and as the week

went on, I got worse and worse. Eventually, I started noticing massive bruises

and purpura. I was getting jaundice also, and I went to the doctor. She took a

blood sample, let me go home, then called to tell me to get to the emergency

room. I was admitted to the hospital with my platelets at 13,000, which quickly

dropped to 10,000. It took them 2 days to figure out what I had, doing a bone

marrow biopsy and many other tests. Finally, they put the neck catheter in and

went ahead with plasmapheresis. After a week, I was released. I relapsed 3

months later, went in at 100,000 platelets and dropped to 19,000 overnight. They

put the catheter back in, a week and a half of treatment, then I was released.

It's been a year and 3 months since my relapse and I'm doing well. I get tired

sometimes if I don't rest or eat well. I get really bad migraines also, but

otherwise, I'm doing great. I just moved to Pittsburgh, PA for graduate school!

If anyone is in the area, let me know! I hope everyone is well!

--- In thrombocytopenia@yahoogroups.com, Elizabeth Snoke <esnoke23@...>

wrote:

>

> Hi Lauren! We are somewhat close in age (I'm 27) and I grew up near

Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live

in FL now but head up that way time to time. Anyways, I have a story

very similar to yours. I first came down with TTP at 17 years old. I had

bronchitis and was taking antibiotics for that when about 2 weeks later

I went back to the doctor because I was vomiting blood, had a massive

headache, and was white as a ghost. He took one look at me and sent me

to the ER where I was in the run of my life. I spent 16 days in the ICU

and had several plasma pheresis treatments. They thought I was in the

clear and sent me home. By the way my first catheter was in my groin

area but that got infected with a staph infection and that was a whole

huge mess in its self. So I was sent home and so excited to go back to

school...at the time I was a junior in high school. Two weeks went by

and I felt pretty good but my blood tests were

>  showing differently and by the end of my second week out of the

hospital I was sent back in for a relapse. I cringed at the thought of

having to go back there and actually backed a bag to stay at hospital

this time. This time they put the catheter in my neck. I ended up being

there for 6 weeks basically ended up missing half of my junior year of

high school. Thankfully, when I left the second time I never had to go

back. It's been 10 years since I've had TTP and I couldn't be more

thankful to God for keeping me healthy.

>

> Feel free to email me back to share stories or thoughts.

>

> Are you on facebook? I joined a group on there for TTP and TTP

supporters! Feel free to look me up and add me! My name's Elizabeth

Snoke

>

>

>

> --- On Mon, 7/13/09, starskittles87 starskittles87@... wrote:

>

> From: starskittles87 starskittles87@...

> Subject: [thrombocytopenia] Hello!

> To: thrombocytopenia@yahoogroups.com

> Date: Monday, July 13, 2009, 5:34 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>       Hello everybody!

>

>

>

> I just wanted to introduce myself. Some of you may know me from the

MSN group that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22

and I had my first episode of ttp a year and a half ago. I came down

with a cold, and as the week went on, I got worse and worse. Eventually,

I started noticing massive bruises and purpura. I was getting jaundice

also, and I went to the doctor. She took a blood sample, let me go home,

then called to tell me to get to the emergency room. I was admitted to

the hospital with my platelets at 13,000, which quickly dropped to

10,000. It took them 2 days to figure out what I had, doing a bone

marrow biopsy and many other tests. Finally, they put the neck catheter

in and went ahead with plasmapheresis. After a week, I was released. I

relapsed 3 months later, went in at 100,000 platelets and dropped to

19,000 overnight. They put the catheter back in, a week and a half of

treatment, then I was released. It's been a year and 3

>  months since my relapse and I'm doing well. I get tired sometimes if

I don't rest or eat well. I get really bad migraines also, but

otherwise, I'm doing great. I just moved to Pittsburgh, PA for graduate

school! If anyone is in the area, let me know! I hope everyone is well!

>