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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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#20575 From: "jeanetterb2002" <jeanetterb2002@...>
Date: Sun Jul 12, 2009 5:03 pm
Subject: Losing count No 5 was No 6 .... Jeannie reporting in 		jeanetterb2002
Offline Offline
Send Email Send Email
  
My dearest family



How are you all??



I hope you are all well :-)



Well here I am home from the hospital, feeling very, very weak & tired but I

wanted to post a short update for you..





I didn't feel too clever on 25th June & had the rash - only had three bruises

this time -



went to get a FBC & plates where 45.. I was jaundiced too, I thought I had a tan

!!!



Admitted immediatly, line fitted & plasma (PE) commenced that night... the next

day plates where 25...





Plates have slowly risen but HB taking longer. I had PE until last monday we got

through 5 bags & then I started having rigors, chills & severe nausea - the line

was taken out immediately & I commenced on IV antibiotics..



Unfortunately I've got septicaemia - blood cultures came back positive that I

have 2 infections.



There where lots of cold / flu viruses on the ward so it was thought best to

return home with meds as it was safer than catching more bugs.. so for now its

20 antibiotics a day, which Ive been advised may lower the plates so fingers

crossed all will be ok..



I'm back next week for a check up... & will post an update xx





I was that shocked with the platelet count I thought it was No 5 but its relapse

No 6.. so lets hope I have a few years in remission, as you all know this has

been a long one for me - since October so lets hope its all sorted now..



Thank you all for your support (as always) your all so very dear to me, I'll

post next week



Until then my friends

high plates & lots of love



Jeannie xxxxxxxx





ps: time for some sleep xx


Reply | Forward
#20576 From: chelevelazquez@...
Date: Sun Jul 12, 2009 6:05 pm
Subject: Re: Losing count No 5 was No 6 .... Jeannie reporting in 		michelevelaz...
Offline Offline
Send Email Send Email
 
Jeannie,

Stay strong I know how the rigors can make you feel, I have had them many times in the past, it takes a lot out of you, but know you have some praying people in this group and with all of our collective directed pray towards you blessing will come down! I am asking God to send peace and restortive rest in Him! This too shall pass! Be encouraged and do not take it on all by yourself!!

Love, God Bless, HP,

Michele V

Sent from my Verizon Wireless BlackBerry

From: "jeanetterb2002"
Date: Sun, 12 Jul 2009 17:03:53 -0000
To: <thrombocytopenia@yahoogroups.com>
Subject: [thrombocytopenia] Losing count No 5 was No 6 .... Jeannie reporting in

My dearest family

How are you all??

I hope you are all well :-)

Well here I am home from the hospital, feeling very, very weak & tired but I wanted to post a short update for you..

I didn't feel too clever on 25th June & had the rash - only had three bruises this time -

went to get a FBC & plates where 45.. I was jaundiced too, I thought I had a tan !!!

Admitted immediatly, line fitted & plasma (PE) commenced that night... the next day plates where 25...

Plates have slowly risen but HB taking longer. I had PE until last monday we got through 5 bags & then I started having rigors, chills & severe nausea - the line was taken out immediately & I commenced on IV antibiotics..

Unfortunately I've got septicaemia - blood cultures came back positive that I have 2 infections.

There where lots of cold / flu viruses on the ward so it was thought best to return home with meds as it was safer than catching more bugs.. so for now its 20 antibiotics a day, which Ive been advised may lower the plates so fingers crossed all will be ok..

I'm back next week for a check up... & will post an update xx

I was that shocked with the platelet count I thought it was No 5 but its relapse No 6.. so lets hope I have a few years in remission, as you all know this has been a long one for me - since October so lets hope its all sorted now..

Thank you all for your support (as always) your all so very dear to me, I'll post next week

Until then my friends
high plates & lots of love

Jeannie xxxxxxxx

ps: time for some sleep xx


Reply | Forward
#20577 From: "namacinnis" <namacinnis@...>
Date: Mon Jul 13, 2009 12:25 am
Subject: Re: Losing count No 5 was No 6 .... Jeannie reporting in 		namacinnis
Offline Offline
Send Email Send Email
  
Hi Jeannie,

Wow, you sure are going thru the wringer this time 'round. It's not

enough to have a relapse, but to get 2 infections as well!! I'm glad

they let you leave the hospital, b/c so much gets passed around there.



This sounds stupid, but what are the "rigors"??



I'm still at my cottage on the east coast here in N.S. , Canada, where

I'm originally from. Hope to be here until Sept if all goes well

health-wise. I take nothing for granted, and appreciate every single day

I have TTP-free.



Still dealing with my fibromyalgia and some post -ttp symptoms that sort

of overlap I think. Right now I'm dealing with a return symptom of a

sore throat, seems to be around my tonsils. I'm thinking maybe it's my

immune system making up for the fact that I have no spleen.



I hope you get better day by day, and keep us updated. We miss seeing

your posts.



Nancy



--- In thrombocytopenia@yahoogroups.com, "jeanetterb2002"

<jeanetterb2002@...> wrote:

>

> My dearest family

>

> How are you all??

>

> I hope you are all well :-)

>

> Well here I am home from the hospital, feeling very, very weak & tired

but I wanted to post a short update for you..

>

>

> I didn't feel too clever on 25th June & had the rash - only had three

bruises this time -

>

> went to get a FBC & plates where 45.. I was jaundiced too, I thought I

had a tan !!!

>

> Admitted immediatly, line fitted & plasma (PE) commenced that night...

the next day plates where 25...

>

>

> Plates have slowly risen but HB taking longer. I had PE until last

monday we got through 5 bags & then I started having rigors, chills &

severe nausea - the line was taken out immediately & I commenced on IV

antibiotics..

>

> Unfortunately I've got septicaemia - blood cultures came back positive

that I have 2 infections.

>

> There where lots of cold / flu viruses on the ward so it was thought

best to return home with meds as it was safer than catching more bugs..

so for now its 20 antibiotics a day, which Ive been advised may lower

the plates so fingers crossed all will be ok..

>

> I'm back next week for a check up... & will post an update xx

>

>

> I was that shocked with the platelet count I thought it was No 5 but

its relapse No 6.. so lets hope I have a few years in remission, as you

all know this has been a long one for me - since October so lets hope

its all sorted now..

>

> Thank you all for your support (as always) your all so very dear to

me, I'll post next week

>

> Until then my friends

> high plates & lots of love

>

> Jeannie xxxxxxxx

>

>

> ps: time for some sleep xx

>


Reply | Forward
#20578 From: Sandra Stanley <vetnurse480@...>
Date: Mon Jul 13, 2009 2:49 pm
Subject: Re: Re: Losing count No 5 was No 6 .... Jeannie reporting in 		vetnurse480...
Offline Offline
Send Email Send Email
 
You are in my prayers.
 
Sandy S.

From: namacinnis <namacinnis@...>
To: thrombocytopenia@yahoogroups.com
Sent: Sunday, July 12, 2009 7:25:44 PM
Subject: [thrombocytopenia] Re: Losing count No 5 was No 6 .... Jeannie reporting in

Hi Jeannie,
Wow, you sure are going thru the wringer this time 'round. It's not
enough to have a relapse, but to get 2 infections as well!! I'm glad
they let you leave the hospital, b/c so much gets passed around there.

This sounds stupid, but what are the "rigors"??

I'm still at my cottage on the east coast here in N.S. , Canada, where
I'm originally from. Hope to be here until Sept if all goes well
health-wise. I take nothing for granted, and appreciate every single day
I have TTP-free.

Still dealing with my fibromyalgia and some post -ttp symptoms that sort
of overlap I think. Right now I'm dealing with a return symptom of a
sore throat, seems to be around my tonsils. I'm thinking maybe it's my
immune system making up for the fact that I have no spleen.

I hope you get better day by day, and keep us updated. We miss seeing
your posts.

Nancy

--- In thrombocytopenia@ yahoogroups. com, "jeanetterb2002"
<jeanetterb2002@ ...> wrote:
>
> My dearest family
>
> How are you all??
>
> I hope you are all well :-)
>
> Well here I am home from the hospital, feeling very, very weak & tired
but I wanted to post a short update for you..
>
>
> I didn't feel too clever on 25th June & had the rash - only had three
bruises this time -
>
> went to get a FBC & plates where 45.. I was jaundiced too, I thought I
had a tan !!!
>
> Admitted immediatly, line fitted & plasma (PE) commenced that night...
the next day plates where 25...
>
>
> Plates have slowly risen but HB taking longer. I had PE until last
monday we got through 5 bags & then I started having rigors, chills &
severe nausea - the line was taken out immediately & I commenced on IV
antibiotics. .
>
> Unfortunately I've got septicaemia - blood cultures came back positive
that I have 2 infections.
>
> There where lots of cold / flu viruses on the ward so it was thought
best to return home with meds as it was safer than catching more bugs..
so for now its 20 antibiotics a day, which Ive been advised may lower
the plates so fingers crossed all will be ok..
>
> I'm back next week for a check up... & will post an update xx
>
>
> I was that shocked with the platelet count I thought it was No 5 but
its relapse No 6.. so lets hope I have a few years in remission, as you
all know this has been a long one for me - since October so lets hope
its all sorted now..
>
> Thank you all for your support (as always) your all so very dear to
me, I'll post next week
>
> Until then my friends
> high plates & lots of love
>
> Jeannie xxxxxxxx
>
>
> ps: time for some sleep xx
>


Reply | Forward
#20585 From: jeannie belfield <jeanniebelfield@...>
Date: Wed Jul 15, 2009 5:17 pm
Subject: RE: Re: Losing count No 5 was No 6 .... Jeannie reporting in 		jeannierb2002
Offline Offline
Send Email Send Email
 
Thanks Sandy xxxx

The Trail Is Beautiful,
Be Still......
Dakota Indians

Do something amazing  .....  give blood
Tel: 0845 7 711 711
http://www.blood.co.uk/index.html



 


To: thrombocytopenia@yahoogroups.com
From: vetnurse480@...
Date: Mon, 13 Jul 2009 07:49:25 -0700
Subject: Re: [thrombocytopenia] Re: Losing count No 5 was No 6 .... Jeannie reporting in



You are in my prayers.
 
Sandy S.

From: namacinnis <namacinnis@shaw.ca>
To: thrombocytopenia@yahoogroups.com
Sent: Sunday, July 12, 2009 7:25:44 PM
Subject: [thrombocytopenia] Re: Losing count No 5 was No 6 .... Jeannie reporting in

Hi Jeannie,
Wow, you sure are going thru the wringer this time 'round. It's not
enough to have a relapse, but to get 2 infections as well!! I'm glad
they let you leave the hospital, b/c so much gets passed around there.

This sounds stupid, but what are the "rigors"??

I'm still at my cottage on the east coast here in N.S. , Canada, where
I'm originally from. Hope to be here until Sept if all goes well
health-wise. I take nothing for granted, and appreciate every single day
I have TTP-free.

Still dealing with my fibromyalgia and some post -ttp symptoms that sort
of overlap I think. Right now I'm dealing with a return symptom of a
sore throat, seems to be around my tonsils. I'm thinking maybe it's my
immune system making up for the fact that I have no spleen.

I hope you get better day by day, and keep us updated. We miss seeing
your posts.

Nancy

--- In thrombocytopenia@ yahoogroups. com, "jeanetterb2002"
<jeanetterb2002@ ...> wrote:
>
> My dearest family
>
> How are you all??
>
> I hope you are all well :-)
>
> Well here I am home from the hospital, feeling very, very weak & tired
but I wanted to post a short update for you..
>
>
> I didn't feel too clever on 25th June & had the rash - only had three
bruises this time -
>
> went to get a FBC & plates where 45.. I was jaundiced too, I thought I
had a tan !!!
>
> Admitted immediatly, line fitted & plasma (PE) commenced that night...
the next day plates where 25...
>
>
> Plates have slowly risen but HB taking longer. I had PE until last
monday we got through 5 bags & then I started having rigors, chills &
severe nausea - the line was taken out immediately & I commenced on IV
antibiotics. .
>
> Unfortunately I've got septicaemia - blood cultures came back positive
that I have 2 infections.
>
> There where lots of cold / flu viruses on the ward so it was thought
best to return home with meds as it was safer than catching more bugs..
so for now its 20 antibiotics a day, which Ive been advised may lower
the plates so fingers crossed all will be ok..
>
> I'm back next week for a check up... & will post an update xx
>
>
> I was that shocked with the platelet count I thought it was No 5 but
its relapse No 6.. so lets hope I have a few years in remission, as you
all know this has been a long one for me - since October so lets hope
its all sorted now..
>
> Thank you all for your support (as always) your all so very dear to
me, I'll post next week
>
> Until then my friends
> high plates & lots of love
>
> Jeannie xxxxxxxx
>
>
> ps: time for some sleep xx
>




Beyond Hotmail - see what else you can do with Windows Live. Find out more.

Reply | Forward
#20584 From: jeannie belfield <jeanniebelfield@...>
Date: Wed Jul 15, 2009 5:02 pm
Subject: RE: Re: Losing count No 5 was No 6 .... Jeannie reporting in 		jeannierb2002
Offline Offline
Send Email Send Email
 
Hi there Nancy
 
Just logged on :-) & seen ur msg xx
 
yes its been really hard going & the infections are making everything 100% worse boohooo... feel extremly weak & sickly
 
I'm on 20 biotics a day until a week friday - I really hope it does the trick
 
the rigors are when you get the shivers / shakes right thru your body - temp / BP goes high & pulse rate.
 
It usually it happens where there is infection but I used to get it when I was having PE when I recieved Fresh Plasma
 
it sounds fab where your cottage is, I hope remission is with you always xx
 
hows the weather there ?
 
Love & HIGH plates
 
Jeannie xxx


 
The Trail Is Beautiful,
Be Still......
Dakota Indians

Do something amazing  .....  give blood
Tel: 0845 7 711 711
http://www.blood.co.uk/index.html



 
To: thrombocytopenia@yahoogroups.com
From: namacinnis@...
Date: Mon, 13 Jul 2009 00:25:44 +0000
Subject: [thrombocytopenia] Re: Losing count No 5 was No 6 .... Jeannie reporting in



Hi Jeannie,
Wow, you sure are going thru the wringer this time 'round. It's not
enough to have a relapse, but to get 2 infections as well!! I'm glad
they let you leave the hospital, b/c so much gets passed around there.

This sounds stupid, but what are the "rigors"??

I'm still at my cottage on the east coast here in N.S. , Canada, where
I'm originally from. Hope to be here until Sept if all goes well
health-wise. I take nothing for granted, and appreciate every single day
I have TTP-free.

Still dealing with my fibromyalgia and some post -ttp symptoms that sort
of overlap I think. Right now I'm dealing with a return symptom of a
sore throat, seems to be around my tonsils. I'm thinking maybe it's my
immune system making up for the fact that I have no spleen.

I hope you get better day by day, and keep us updated. We miss seeing
your posts.

Nancy

--- In thrombocytopenia@yahoogroups.com, "jeanetterb2002"
<jeanetterb2002@...> wrote:
>
> My dearest family
>
> How are you all??
>
> I hope you are all well :-)
>
> Well here I am home from the hospital, feeling very, very weak & tired
but I wanted to post a short update for you..
>
>
> I didn't feel too clever on 25th June & had the rash - only had three
bruises this time -
>
> went to get a FBC & plates where 45.. I was jaundiced too, I thought I
had a tan !!!
>
> Admitted immediatly, line fitted & plasma (PE) commenced that night...
the next day plates where 25...
>
>
> Plates have slowly risen but HB taking longer. I had PE until last
monday we got through 5 bags & then I started having rigors, chills &
severe nausea - the line was taken out immediately & I commenced on IV
antibiotics..
>
> Unfortunately I've got septicaemia - blood cultures came back positive
that I have 2 infections.
>
> There where lots of cold / flu viruses on the ward so it was thought
best to return home with meds as it was safer than catching more bugs..
so for now its 20 antibiotics a day, which Ive been advised may lower
the plates so fingers crossed all will be ok..
>
> I'm back next week for a check up... & will post an update xx
>
>
> I was that shocked with the platelet count I thought it was No 5 but
its relapse No 6.. so lets hope I have a few years in remission, as you
all know this has been a long one for me - since October so lets hope
its all sorted now..
>
> Thank you all for your support (as always) your all so very dear to
me, I'll post next week
>
> Until then my friends
> high plates & lots of love
>
> Jeannie xxxxxxxx
>
>
> ps: time for some sleep xx
>



Beyond Hotmail - see what else you can do with Windows Live. Find out more.

Reply | Forward
#20579 From: "mjreynolds0756" <mjreynolds0756@...>
Date: Mon Jul 13, 2009 6:21 pm
Subject: Re: Losing count No 5 was No 6 .... Jeannie reporting in 		mjreynolds0756
Offline Offline
Send Email Send Email
  


--- In thrombocytopenia@yahoogroups.com, "jeanetterb2002"

<jeanetterb2002@...> wrote:

>

> My dearest family

>

> How are you all??

>

> I hope you are all well :-)

>

> Well here I am home from the hospital, feeling very, very weak & tired

but I wanted to post a short update for you..

>

>

> I didn't feel too clever on 25th June & had the rash - only had three

bruises this time -

>

> went to get a FBC & plates where 45.. I was jaundiced too, I thought I

had a tan !!!

>

> Admitted immediatly, line fitted & plasma (PE) commenced that night...

the next day plates where 25...

>

>

> Plates have slowly risen but HB taking longer. I had PE until last

monday we got through 5 bags & then I started having rigors, chills &

severe nausea - the line was taken out immediately & I commenced on IV

antibiotics..

>

> Unfortunately I've got septicaemia - blood cultures came back positive

that I have 2 infections.

>

> There where lots of cold / flu viruses on the ward so it was thought

best to return home with meds as it was safer than catching more bugs..

so for now its 20 antibiotics a day, which Ive been advised may lower

the plates so fingers crossed all will be ok..

>

> I'm back next week for a check up... & will post an update xx

>

>

> I was that shocked with the platelet count I thought it was No 5 but

its relapse No 6.. so lets hope I have a few years in remission, as you

all know this has been a long one for me - since October so lets hope

its all sorted now..

>

> Thank you all for your support (as always) your all so very dear to

me, I'll post next week

>

> Until then my friends

> high plates & lots of love

>

> Jeannie xxxxxxxx

>

>

> ps: time for some sleep xx

>


Reply | Forward
#20583 From: Barb Delfino <barbdelfino@...>
Date: Wed Jul 15, 2009 3:31 am
Subject: Re: Losing count No 5 was No 6 .... Jeannie reporting in 		barbdelfino
Offline Offline
Send Email Send Email
 
Jeannie, My prayers are with you. please take good care of yourself and get lots of rest. Barb Delfino

From: jeanetterb2002 <jeanetterb2002@...>
To: thrombocytopenia@yahoogroups.com
Sent: Sunday, July 12, 2009 10:03:53 AM
Subject: [thrombocytopenia] Losing count No 5 was No 6 .... Jeannie reporting in

My dearest family

How are you all??

I hope you are all well :-)

Well here I am home from the hospital, feeling very, very weak & tired but I wanted to post a short update for you..

I didn't feel too clever on 25th June & had the rash - only had three bruises this time -

went to get a FBC & plates where 45.. I was jaundiced too, I thought I had a tan !!!

Admitted immediatly, line fitted & plasma (PE) commenced that night... the next day plates where 25...

Plates have slowly risen but HB taking longer. I had PE until last monday we got through 5 bags & then I started having rigors, chills & severe nausea - the line was taken out immediately & I commenced on IV antibiotics. .

Unfortunately I've got septicaemia - blood cultures came back positive that I have 2 infections.

There where lots of cold / flu viruses on the ward so it was thought best to return home with meds as it was safer than catching more bugs.. so for now its 20 antibiotics a day, which Ive been advised may lower the plates so fingers crossed all will be ok..

I'm back next week for a check up... & will post an update xx

I was that shocked with the platelet count I thought it was No 5 but its relapse No 6.. so lets hope I have a few years in remission, as you all know this has been a long one for me - since October so lets hope its all sorted now..

Thank you all for your support (as always) your all so very dear to me, I'll post next week

Until then my friends
high plates & lots of love

Jeannie xxxxxxxx

ps: time for some sleep xx



Reply | Forward
#20586 From: jeannie belfield <jeanniebelfield@...>
Date: Wed Jul 15, 2009 5:18 pm
Subject: RE: Losing count No 5 was No 6 .... Jeannie reporting in 		jeannierb2002
Offline Offline
Send Email Send Email
 
Thank you Barb xxxxx

The Trail Is Beautiful,
Be Still......
Dakota Indians

Do something amazing  .....  give blood
Tel: 0845 7 711 711
http://www.blood.co.uk/index.html



 


To: thrombocytopenia@yahoogroups.com
From: barbdelfino@...
Date: Tue, 14 Jul 2009 20:31:33 -0700
Subject: Re: [thrombocytopenia] Losing count No 5 was No 6 .... Jeannie reporting in



Jeannie, My prayers are with you. please take good care of yourself and get lots of rest. Barb Delfino

From: jeanetterb2002 <jeanetterb2002@yahoo.co.uk>
To: thrombocytopenia@yahoogroups.com
Sent: Sunday, July 12, 2009 10:03:53 AM
Subject: [thrombocytopenia] Losing count No 5 was No 6 .... Jeannie reporting in

My dearest family

How are you all??

I hope you are all well :-)

Well here I am home from the hospital, feeling very, very weak & tired but I wanted to post a short update for you..

I didn't feel too clever on 25th June & had the rash - only had three bruises this time -

went to get a FBC & plates where 45.. I was jaundiced too, I thought I had a tan !!!

Admitted immediatly, line fitted & plasma (PE) commenced that night... the next day plates where 25...

Plates have slowly risen but HB taking longer. I had PE until last monday we got through 5 bags & then I started having rigors, chills & severe nausea - the line was taken out immediately & I commenced on IV antibiotics. .

Unfortunately I've got septicaemia - blood cultures came back positive that I have 2 infections.

There where lots of cold / flu viruses on the ward so it was thought best to return home with meds as it was safer than catching more bugs.. so for now its 20 antibiotics a day, which Ive been advised may lower the plates so fingers crossed all will be ok..

I'm back next week for a check up... & will post an update xx

I was that shocked with the platelet count I thought it was No 5 but its relapse No 6.. so lets hope I have a few years in remission, as you all know this has been a long one for me - since October so lets hope its all sorted now..

Thank you all for your support (as always) your all so very dear to me, I'll post next week

Until then my friends
high plates & lots of love

Jeannie xxxxxxxx

ps: time for some sleep xx





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