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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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Messages 19302 - 19331 of 21499   Oldest  |  < Older  |  Newer >  |  Newest
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19302
sick on and off for more then 3 years now i decided to join the group finally.i wonder if lilach would like to talk to me since we share the same country.i'm...
bari_tina
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Feb 1, 2009
5:14 pm
19303
Hello Tina, my name is Tabatha and I have been battling this disease since aug of 08. I too am insecure about my body. I had gotten healthy and dropped 20 lbs....
tabatha cox
tmcox74
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Feb 1, 2009
5:55 pm
19304
tabatha thank you for your words,they are conforting,i got in in aug 05 and since then god has visited my life more then once and is permanent now in my...
bari_tina
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Feb 1, 2009
8:10 pm
19305
I am a new TTP patient who accessed this discussion group after my first episode a month ago for support & to hear other stories etc. I read several of your...
laurenike
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Feb 1, 2009
10:14 pm
19306
Like I said before I had got healthy and was going to lake and hiking 2-3 days a week. I had stopped simple sugars and caffeine. I thought at the beginning of...
tabatha cox
tmcox74
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Feb 1, 2009
10:26 pm
19307
well,it started with small headeaches that i was not used to,then i noticed on my legs these little red points,called purpura, but still i tought it's because...
bari_tina
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Feb 2, 2009
1:09 am
19308
Don't forget the kelly henson TTP foundation's web page is up and running! Come read, vote, sign the guest book and Donate toward either our 501(c) funding...
saved_kelly
Online Now Send Email
Feb 2, 2009
4:16 am
19309
I did for my first year and I plan to EVERY year. If I am off work I will take off...TTP has really shown me there is NOTHING more important than life and...
saved_kelly
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Feb 2, 2009
4:23 am
19310
not a joke i did it after 61/2 years in remission. just jumped out of a perfectly good airplane. glad i did have had 3 relapses since. just keep enjoying life...
Barb Delfino
barbdelfino
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Feb 2, 2009
4:45 am
19311
Glad to hear you're doing well my friend! Keep in touch and let us know how you're doing. HP! Juan...
juaninmiami69
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Feb 2, 2009
1:32 pm
19312
Hi Lauren Its Jeannie here I'm so sorry to hear about your diagnosis, your experiences are very typical of a lot of us on here I'm based in the UK so I cant...
jeannie belfield
jeannierb2002
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Feb 2, 2009
2:50 pm
19313
i to am sorry to hear about your first battle with TTP.  I have had this since 1999 and have had 6 to 7 relapses.  I do know that our diease shows up on the...
gwolverinebooth@...
wolverine200...
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Feb 2, 2009
3:06 pm
19314
I am not sure if I understand the question. Are you trying to get on permanent disability, or short term or long term disability from your place of work?...
Kia
computergodd...
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Feb 2, 2009
3:28 pm
19315
did for my first year and I plan to EVERY year. If I am off work I will take off...TTP has really shown me there is NOTHING more important than life and living...
saved_kelly
Online Now Send Email
Feb 2, 2009
7:46 pm
19316
Honestly...it may NEVER come back again. There is a very good chance that it will never come back again. Mine popped up every 4 to 5 years...3 times total...
bulldoggergal
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Feb 3, 2009
11:21 pm
19317
Wow! I just read your story and you have got to be one of the smartest people I have met! You were smart enough to know that something was wrong with your...
bulldoggergal
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Feb 3, 2009
11:30 pm
19318
===================== Posted through Grouply, the better way to access your Yahoo Groups like this one. http://www.grouply.com/?code=post...
tiffany7770
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Feb 3, 2009
11:33 pm
19319
My niece, Karley, passed away w/ ttp on aug. 23 2008. my sister, also, had luekemia and my grandmother died from blood clots in her legs. i can't help but to...
tiffany7770
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Feb 3, 2009
11:34 pm
19320
Tabitha, How old were you when you were diagnosed? My niece passed at 17 in Aug, 08...i guess the same time you were diagnosed. It was just unfortunate that we...
tiffany7770
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Feb 3, 2009
11:40 pm
19321
I am 34 and the hemo in my hometown was saying it was ITP but I just knew from the way I was feeling that when I got platelets my symptoms got worse. I am...
tabatha cox
tmcox74
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Feb 4, 2009
12:30 am
19322
Hello, hello.   WHILE I WAS HOSPITALIZED FOR TTP I ASKED THE SOCIAL WORKER ON STAFF TO HELP ME GET DISABILITY. I DON'T KNOW WHAT SHE WROTE DOWN OR ANYTHING...
carla bienaime
kuky_2008
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Feb 4, 2009
10:30 pm
19323
www.thefibromyalgiaguide.com/Fibromyalgia-Disability.htm Cut and paste to your browser. Great info guys. Its not about TTP but some of us do suffer from fibro...
carla bienaime
kuky_2008
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Feb 4, 2009
10:53 pm
19324
OK GUYS. I realized that the page I wanted you all to see is not working here. So I saved it to my desktop and attached it to this post. If you still cannot...
carla bienaime
kuky_2008
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Feb 5, 2009
5:56 am
19325
THANK YOU!!!!!!! ... TO HELP ME GET DISABILITY. I DON'T KNOW WHAT SHE WROTE DOWN OR ANYTHING BUT I GOT APPROVED. I NEVER HAD TO APPLY DIRECTLY MYSELF SO I'M...
laurenike
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Feb 5, 2009
1:42 pm
19326
i just had my interview with the social security today and my wife was on the phioone with me cause she is better at this then I am. they have reinstated my...
gary booth
wolverine200...
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Feb 5, 2009
3:13 pm
19327
Brian, Are you talking about her helping you to get permanent Disability through social security or from your job...long or short term? How long did it take...
bulldoggergal
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Feb 5, 2009
3:22 pm
19328
I just read this after I typed my reply...I must have been getting good vibes from you...CONGRATS!!! Prayer does work!!...
bulldoggergal
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Feb 5, 2009
3:24 pm
19329
One more thing to know about SSDI...you need to have enough work credits to get SSDI. I know someone who got approved but was shy 2 credits in her work...
bulldoggergal
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Feb 5, 2009
3:27 pm
19330
OMG!!!!!!! i'm so happy for you. that money is rightfully yours. So no lawyer was needed because it worked out right? Can you tell us what kind of questions...
carla bienaime
kuky_2008
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Feb 5, 2009
3:30 pm
19331
well they will be doing a review of all my records and i will be updating them on all of my coonditions since ttp and the mental disorder and the brain injury...
gwolverinebooth@...
wolverine200...
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Feb 5, 2009
3:36 pm
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