I know it's frustrating. I would pay most attention to your hematologist as he's the one who specializes in the disorder. If they are telling you that they...
There's only one birthday listed on the calendar for December. Regina- December 31st Happy early birthday Regina. Happy birthday to anyone else who has a ...
The point was brought up that the nephrologist and hematologist don't always see eye to eye on treatment. I know that my kidney doctor felt that I should have...
When my daughter was in last November I had a terrible time with who was actually in charge. My hema doc and nephrologist never saw eye to eye. It was the most...
when i first came down with ttp my hemo doc was in full control. only had to do kidney dialsys till my kidney function started back up. hemo doc wanted me to...
Determining who is in charge is really a simple matter, although when all the Dr's come by at different times and have different opinions it does become...
When during the year members TTP started, as well as, when time of year when relapses happened? The reason I ask is, I have not seen any info on seasonality...
Warren, A poll was created in 2004 asking that very question. Check it out <http://health.groups.yahoo.com/group/thrombocytopenia/surveys?id=139742\ 0> ... ...
Kia - that is perfect. I would suggest everyone that has not answered the survey please do so. The current survey has 90 responses, and our group now has 693...
Warren, Â Â I think that this is a great idea! I live in WV on the WV - VA border. I acquired TTP Aug of this year. I finished a summer semester at college...
I agree we should have an updated poll. I was diagnosed June 19, 2007 and relapsed August 20, 2007. Stacy "To live is to suffer, but to survive is to find...
I was dianosed in august of 1999 so it was in the fall to start of winter. Maybe seasons are the thing cold does wierd things to the body and it can take...
Enter your vote today! A new poll has been created for the thrombocytopenia group: what time of year it was when you were diagnosed and what time of year were...
thrombocytopenia@yaho...
Dec 1, 2008 6:06 pm
18961
My daughter was diagnosed in the fall (Nov '07) and is having another bout as we speak, she seems to have relapsed on Oct.31st. She did have a low platelet...
Hi Joann There is one test that will tell you if it is ITP or TTP - ADAMTS13. If your measures so little to no Von Willensbrand (vWF) protese and a high level...
sdirobbio, You are not alone. It is frustrating. But, please, be patient. TTP was a rollercoaster ride for my wife. I was there for all of it. I sat in...
My sister was very, very sick with TTP for a long time. That was four years ago. She has been just fine since. Working, playing, living her life - with a...
sdirobbio Completely understand your frustration, confusion, sadness and all the other emotions that you are going through. Keep in mind TTP is an extremely...
carla i do my best and that is all i can do so i know that things will turn out alright but in the times we are in now not so sure anymore there are hardly any...
Hi Warren, We are sure she has TTP, but because the incident this past summer seemed mild with no other symptoms than low platelet I thought maybe she could...
It's possible your daughter just had a flare up. During her relapse our daughter only showed low platelets and bruising. We caught it before the anemia...
I'm glad to hear your daughter is doing great! I will keep her in my prayers for a speedy recovery and a long remission. Â Also thank you for the info on the...
It's used to put you into remission. Usually as a second or third line treatment - PE'Steroid combo being 1st line. Can tell you for sure Ritux saved our...
Hey Joann, When I had received the Rituximab, I was also taking Prednisone but decreasing every week but there was a time I had to prolong the 2.5mg because I...
Michelle Remain on the look out. The body can begin producing B-cells 7 and 12 months following the first dose of Ritux. Our daughter relapsed 9 months to...
Butting in here - but I like to understand. If my understanding is incorrect, then please correct me. Warren, I surmise that your research indicates that the...
I am going to have to get a bit technical to answer your question. B-cells produce a certain type and population of antibodies that protect your body. It is...
FYI?FYA ... From: The Platelet Disorder Support Association To: garyandjoy@... Sent: Tuesday, December 02, 2008 9:42 PM Subject: Survey Sponsored by...
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