Search the web
Sign In
New User? Sign Up
thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Messages 18435 - 18465 of 21499   Oldest  |  < Older  |  Newer >  |  Newest
Messages: Simplify | Expand   (Group by Topic) Author Sort by Date ^
18435
Well, we only have one August birthday, which would be Joann on August 5th. Happy early birthday Joann. Also, happy birthday to any August babies that don't...
Kia
computergodd...
Offline Send Email
Aug 1, 2008
4:02 pm
18436
Happy Birthday Joann!!! HP to you!! Stacy "To live is to suffer, but to survive is to find meaning within that suffering." DMX ... From: Kia...
Red Dreddy
red_dreddy247
Offline Send Email
Aug 1, 2008
4:54 pm
18437
A very happy birthday to you and many many more. ... From: Red Dreddy <red_dreddy247@...> Happy Birthday Joann!!! HP to you!! Stacy "To live is to...
gwolverinebooth@...
wolverine200...
Offline Send Email
Aug 1, 2008
6:46 pm
18438
I was just writing to let everyone know that I've been doing good. Hope everyone is doing well also. I has been almost 5 months on Aug. 5th since I had my last...
Michelle Henderson
mhenderson404
Offline Send Email
Aug 3, 2008
8:47 pm
18439
Well I am back from Maui. What a wonderful trip. Very relaxing and lots of fun. Came back and did my blood work and everything is still looking great 270...
sharzzi17
Offline Send Email
Aug 3, 2008
9:50 pm
18440
Hi Michelle, Glad to hear you are doing well. I was wondering if you could answer a question for me. Did you have any side effects from the rituximab? I think...
Joann Dalzell
joannd96
Offline Send Email
Aug 4, 2008
12:27 pm
18441
Hi Michelle, Glad to hear you're doing well. What round of Rituximab is this for you? I had four treatments and they worked very well for me. I've been in...
Juan Lopez
juaninmiami69
Offline Send Email
Aug 4, 2008
12:49 pm
18442
Thank you Juan. I've heard that some people have lost their hair also. I am also interested in knowing how new this is for treating TTP. Is there anyone out...
Joann Dalzell
joannd96
Offline Send Email
Aug 4, 2008
1:26 pm
18443
That could very well be, but I didn't. I've read where those who have lost their hair was due to mostly the illness and not the Rituximab, but it could be a...
Juan Lopez
juaninmiami69
Offline Send Email
Aug 4, 2008
1:32 pm
18444
Hi Joann,  My name is Chelsie. I have been in remission since Aug-2003 and I had the rituxan along with the vincristine then. All has been really well for me...
MELVINLYNE TOLIVER
chelsie2233
Offline Send Email
Aug 4, 2008
1:46 pm
18445
I am glad you are all doing well i have never had that treatment before i was always the TPE and the spleen removal. But High platelets to you all and many...
gwolverinebooth@...
wolverine200...
Offline Send Email
Aug 4, 2008
1:58 pm
18446
Thank you all for your advice.  Chelsie, congratulations to you with your new baby daughter! That is very positive news.   As you can imagine with my...
Joann Dalzell
joannd96
Offline Send Email
Aug 4, 2008
2:40 pm
18447
Joann, I have taken Rituxan twice. The first time I had a series of 4. I did relapse 1 year and a half later. I then took 8 treatments of rituxan. I have...
Kristi Ott
kjcottmt
Offline Send Email
Aug 4, 2008
3:58 pm
18448
hi Joan my name is Melodie and I had TTP when I was fifteen. I will be 42 this month. I've never had a relapse,however there were a few problems I had to deal...
Melodie Byrd
toones40
Offline Send Email
Aug 4, 2008
5:55 pm
18449
Thank you Melodie, unfortunately for my daughter her first episode was in November '07 and she had a relapse June 20th '08. She is still on the road to...
Joann Dalzell
joannd96
Offline Send Email
Aug 4, 2008
6:41 pm
18450
Joann, Yeah I had very little reactions like hives in the beginning because they didn't know that I would need to be pretreated with that like plasmapheresis....
Michelle Henderson
mhenderson404
Offline Send Email
Aug 4, 2008
9:53 pm
18451
Joann, Yeah I had very little reactions like hives in the beginning because they didn't know that I would need to be pretreated with that like plasmapheresis....
Michelle Henderson
mhenderson404
Offline Send Email
Aug 4, 2008
9:54 pm
18452
Juan, Hey, I've only had 1 treatment of the Rituximab so far and knock on wood I continue that way. Im glad to hear that you have been in remission for 15...
Michelle Henderson
mhenderson404
Offline Send Email
Aug 4, 2008
9:57 pm
18453
Michelle, I am so happy that you are doing well. I will continue to keep you in my prayers! Joann, I had four rounds of Rituxan. At the time I didn't...
Red Dreddy
red_dreddy247
Offline Send Email
Aug 4, 2008
11:05 pm
18454
I'm sorry your daughter is going through this again. Until I found this sight I still thought TTP was very rare. In 1983 there was less than a 10% survival...
Melodie Byrd
toones40
Offline Send Email
Aug 5, 2008
1:02 am
18455
Reminder from: thrombocytopenia Yahoo! Group http://groups.yahoo.com/group/thrombocytopenia/cal joanne from mn birthday Tuesday August 5, 2008 12:00 am - 1:00...
thrombocytopenia@yaho...
Send Email
Aug 5, 2008
3:41 am
18456
The pastor entered his donkey in a race and it won. The pastor was so pleased with the donkey that he entered it in the race again, and it won again. The local...
Red Dreddy
red_dreddy247
Offline Send Email
Aug 5, 2008
6:31 am
18457
happy birthday and many many more to come ... From: thrombocytopenia@yahoogroups.com Reminder from: thrombocytopenia Yahoo! Group Title: joanne from mn...
gwolverinebooth@...
wolverine200...
Offline Send Email
Aug 5, 2008
10:00 am
18458
Everyone, Thank you so much for your help and support. We go to the drs today and hopefully will get some good news. HP to all of you. Joann ... From: Melodie...
Joann Dalzell
joannd96
Offline Send Email
Aug 5, 2008
1:44 pm
18459
I was given 4 doses of Rituxan back in August 04. It was pretty new back then I believe. They weren't sure if the rituxan put me in remission or the 47...
sharzzi17
Offline Send Email
Aug 5, 2008
7:30 pm
18460
Happy Birthday Joanne!!! ... From: gwolverinebooth@... <gwolverinebooth@...> Subject: Re: [thrombocytopenia] Birthday Reminder To:...
carla bienaime
kuky_2008
Offline Send Email
Aug 6, 2008
1:23 am
18461
Reminder from: thrombocytopenia Yahoo! Group http://groups.yahoo.com/group/thrombocytopenia/cal Sandy Sunday August 10, 2008 12:00 am - 8:00 am All Rights...
thrombocytopenia@yaho...
Send Email
Aug 10, 2008
3:42 am
18463
Happy Belated birthday Sandy. Sorry that i didn't list you on the original August birthday post. I hope you had a fantastic day...
Kia
computergodd...
Offline Send Email
Aug 11, 2008
1:55 pm
18464
Happy Belated Birthday Sandy and many more! HP to you, Stacy "To live is to suffer, but to survive is to find meaning within that suffering." DMX ... From:...
Red Dreddy
red_dreddy247
Offline Send Email
Aug 11, 2008
8:38 pm
18465
Here is a link from www.wrongdiagnosis.com explaining rituxan/ rituximab. Watched "RITUXAN: NOT JUST FOR CANCER?" video. It will tell you what it does for TTP....
kuky_2008
Offline Send Email
Aug 11, 2008
11:54 pm
Messages 18435 - 18465 of 21499   Oldest  |  < Older  |  Newer >  |  Newest
Advanced
Add to My Yahoo!      XML What's This?

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help