Good progress indeed. A platelet count of 150 is quite safe for him - it is the low end of "normal". Please don't be discouraged by what I am about to write....
sorry for my delay. i rarely ever use yahoo. my son is 13. it is definitely ttp and not hus. initially they thought that it was hus but changed their minds. he...
My kidneys were failing when I was diagnosed. So yes, kidney problems can be associated with TTP ... definitely ttp and not hus. initially they thought that...
I had a follow up drs appt with my hematologist on June 18th and had blood work done at that time, which consists of the normal stuff plus my ADAMTS13 blood...
Subject: Your Help Wanted for IVIG Reform Your Action Wanted for IVIG Reform for Medicare Patients Rockville, MD, July 2, 2008 - We have a small opportunity to...
Heather this disease is a little different with kids than adults. Our daughter,8, was originally diagnosed with ttp in dec of 07. Although she is clinically in...
Reminder from: thrombocytopenia Yahoo! Group http://groups.yahoo.com/group/thrombocytopenia/cal Bev Thursday July 3, 2008 12:00 pm - 1:00 pm (This event...
thrombocytopenia@yaho...
Jul 3, 2008 3:43 pm
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Happy birthday Bev! Today is Bev's birthday. I hope it's a good one. The other July birthday is Kuky on the 14th. I hope that your day is terrific too. If...
Hi Christine, Seems like I have a California neighbor. I'm in Napa Valley. This is why I ended up at UCSF for a diagnostic workup for my TTP. I could...
Tam, So glad to hear your Dad is in recovery mode now. Good for you for not letting the doctors give up. TTP is one of those wierd conditions that often...
Hey Christine, I am also a California Neighbor. I am just up past Sacramento in Rocklin. I grew up in Millbrae and after I got married moved to Foster City...
Hi Ellen, Just wanted to say hello and things are doing great here. I went on vacation for a week to Lake Almanor. What a great relaxing beautiful peaceful...
Sharon, So happy to hear your body has decided to cooperate and go into remission. Now let's keep it that way. I am 2 years and counting since my last...
Hi Sharon Great to hear that you are in remission and you are on vacation from everything that has with TTP and hospitals to do.Just that kind of places give...
Thanks so much Anneli Sharon ... everything that has with TTP and hospitals to do.Just that kind of places give you the peace in your mind and gives you your...
I am glad to hear that he is doing better. Never let a doctor give up remind them it is there job to take care of us and if they do nto know tel them to hit...
Wow, wouldn't it be great if we had a drug that can treat us. It probably won't cure us, but it can be the first step toward a cure for ttp. What do you think?...
Wow I read this and then went to their site. It really does sound promising. Kristi ... From: kuky_2008 To: thrombocytopenia@yahoogroups.com Sent: Monday,...
That would be fantastic! I hope it does all that it says that it can do. I also hope that the FDA doesn't pussyfoot around once when it comes to allowing it...
I agree sometimes it can take forever for the FDA to approve something. Kristi ... From: Kia To: thrombocytopenia@yahoogroups.com Sent: Tuesday, July 08, 2008...
Dear friends VERY HAPPY NEWS!My hemadoc send me a letter and told that all my values are great and no signs of hemolysis and no LD upgoing trend and no signs...
WAY TO GO ANNELI!!!! I am so happy for you. We all know how much you have battled with this disease of ours. You my friend are truly on TOUGH cookie!...
I am so happy for you Anneli! You have been through so much sweetie! Keep fighting the good fight! HP to you, Your friend, Stacy "To live is to suffer, but...
Dear friends I feel proud of myself to have maange to go trough these last 6 years with both this alien and with my bad marriage and have come out on the...
I have been really busy at work so i am sorry that i have not been on here that much i have been reading the messages and I am glad that barb is in remission...
... You are a wonderful warm person and I wish you all the happiness the world has to offer you. I hope you can distant youtself from your ex and just enjoy...
Dear Gary Thanks for you words and I feel so happy when I hear that you sound like a man in the business again-full speed and happy times.It is just...
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