Hi Ellen, The pain clinic has decided not to do the cortisone shot. They don't think it will work for my neck injuries. Instead they want to do a medial branch...
Hi Alifa, I was looking through the messages and came across yours. It's been awhile since I've looked at them, please excuse the delay in posting this...
Yes, back in 2003 (after my 5th relapse) my Dr. had my blood samples went to Dr. Tasi in NY for testing on the Adamts13 / Von Willebrand factor. If you check...
So, I had a follow-up appointment today and got my blood work done. Later, my doctor called me and alerted me to the fact that my platelet count is now 686....
Hope all of you are having a good morning. Just sad about the storms and the deaths everwhere. I guess we will have a toronado drill here at school soon. I...
Its funny how we all have the same frustrations. I am also on meds. I asked if the meds were permanent and they said things should settle down. I hope they...
Good day to everyone! Looking for a support group in the DFW area. My 21 yr old daughter suffered thru TTP after her baby was born last January. Hers was...
Hello Susan If you find anyone eles let me know I live in Meridian Tx.Or it can just be us dosnt matter to me i have been looking for a long time to share my...
I know that there is a lot of fear about this diease. But remember we are still alive and kicking. Be thankful for that. Yes it is alright to have fear it is...
TO GARY IF IT WAS FOR SOME OF YOUR ADVICE I BELIVE I WOULD HAVE SLOWED WAY DOWN A WHILE BACK BUT I DID NOT BECAUSE OF YOU SO PLESE KEEP IT GOING WE NEED ALL...
Dear Susan Thank you for letting me know how much help I can be. so as of right now I am searching for a job that lets me help people with dissabillities and...
Dear Friend Wellcome to our awsome family of TTPers and relatives-everyone is wellcome here and just like you ask for here you always find a shoulder to lean...
Hello to all. Gary glad to hear from you I think you have helped this group or me a lot. Welcome to all newcomers sorry it had to be this way to meet. I too...
Hi Susan Sorry to hear your daughter is going through such a rough time. My prayers go out to you and your family. I am from Texas was raised in Longview, I...
Sharon, What fun to have your daughter into something so different as cup stacking. I have indeed seen it on TV and think it is a real ART form. Good for her...
Hello, Just wondering if anyone has had any problems with there haemoglobin being low yet there platelets holding steady? Gary do you know anything about this...
Ok Susan As of right now I know that when i first got it that my hemoglobin was lowand my platelets stayed normal and I went to look at what I could do to get...
Dear friend Trying to help you as much I can.Sorry but I canīt remember when you did have your relaps but if it was not so long ago low hemoglobinvalues can...
Thanks Anneli I appreciate the info. They are going to test me again in a couple of weeks to see where they are at. The levels have been fine since last June...
Susan, My hemoglobin was low for awhile and my platelets were high. My doctors said it would even out after a while, and they did. They are back to normal now....
my hg was really low when i was diagnosed...after my platelets came up and were steady it was still very low.....after the finished my pharesis they gave me 10...
Hope all is having a great week. Well it is hump day and down hill the rest of the week. I think the kids here at school need a break as well as us. I hope...
Hi all... just wanted to let you know I have updated the website... http://www.geocities.com/e_c_peterson_99/TTPsurvivor.html if you are a new member of our...
Hi all.. am sorry I haven't been around... there has been so much going on here lately... I just haven't found the "courage" to give support as it has been...
Dear Friends Send you this heartbreaking story.Maybe someone of you overthere is living nearby and can get in contact with the family. Send you lot of love and...
Dear Susan My ironlevels were okay 2003-2006 in autumn but my hemoglobin had been getting lower a bit for bit whole 2006 so I was only little bit anemic when...
My dear friend Where are you and how are you and the brown boys?I miss you so much. I hope you feeling okay and not are sick or have relaps.Let me know dearest...
Dear MIke I miss you...where are you.HOw is you hearing coming better.Tell me how you have it.No YOu and No Cara I feel so lonely and I miss you. Like I told...
http://www.goedwardsville.com/site/news.cfm? newsid=18049807&BRD=2291&PAG=461&dept_id=473648&rfi=6 There is a copy right... so I can't copy and paste... but.....
Dearest Anneli.. am sorry to have made you worry... I did put a post up this morning.. as to what all is going on here... and where I have been etc.... Maybe...
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