TO ; STACY IM SORRY TO HEAR ABOUT WHAT ALL YOU WENT THUR BUT I WENT TO 4 DOCTORS BEFOR I WENT TO SOMEONE THAT THOUGHT OF TTP SO I WISH YOU ALL THE LUCK AND I...
Hope all had a great weekend. I have decided that I am not going to see my hemo doc today. I am fine and he has no answers when I ask questions. I feel I...
Stacy, My name is Christie and i had TTP 3 years ago but besides that i am alos an RN so i may be able to help with this a little. Please never think that...
Cara, Thanks for your concern. I am actually doing great. Coming up on one year remission from TTP relaspe last October. Keeping my fingers crossed and...
Stacy, Sorry to hear about all you went through. I think personally many of us probably would like to file lawsuits but whether it is appropriate or not, I...
Personally I think my TTP is related with stress also. I think I am going to hold off on any surgery if possible for a little while longer. Thanks for sharing...
HI Joyce.. Is great to see you back to your morning posts.. I am not always where I can post back.. but they always help to lift my spirits.. I wish I had your...
Sharon.. it is great to hear that you are doing so well.... What type of bladder surgery are they looking at?.. Reason I ask.. is because there is a minimally...
HI guy.. Is good to see you posting.... seems like forever since we talked... I miss our chats.... Am glad your job is going good..... How was dinner for...
I had a question for the group. Has any of you donated blood after having TTP? I went to the Red Cross with wife today and didn't see it on the list of...
Eric I have always been told to not donate no matter what.Dr.'s don't want to take A chance and it is the best thing to do I think.It is not worth the risk to...
Eric, I was told by my Drs. and the people at the red cross that I could donate a year after my last pheresis treatment. I plan on doing it once that year is...
Cara, I believe that is the same surgery they want to do on me. The bladder is held up by a sling. They did tell me they put me out for it though but I would...
Well Gary I am glad to see you back at work and doing ok. Thing not to god here.I just finished my 6th Rituxan treatment and it's not to good. My counts were...
Hi all...I hope all is well. Man...have I been busy, so I have not posted anything in awhile. I am currently in my 9th month of pregnancy (37 weeks)and...
Good morning and I hope all is well with each of you and I hope you all have a great day. Did not go to see hemo doc yesterday. I called and talked with the...
HI again.. I can relate to the age thing.. I am only 39... but was so afraid of going out in public, for fear of accidents. Mine was pretty bad.... releasing...
Hi Asha... that is GREAT news !!.. You will be a great success story for sure.... Am so glad to hear that everything is going good, and they are watching you...
Asha. that is great to hear. I was never able to carry to term. My platlets started to bottom out...and the precentages on the blood test always started to...
Good to hear that you have had great time.I wonder little bit about your not going to the appointment with your hemadoc.Maybe he doesn´t have the answers but...
To Stacy I am sorry to hear your heartbreaking story.I don´t want to say anything about what to do or not to do I think you in USA are better in that.But I...
I HAVEN'T POSTED FOR AWHILE. EVERYTHING IS GOING GOOD. HERE IN MINNESOTA, WE HAVE TWINS PLAYOFF FEVER. I WAS ABLE TO GO TO THE GAME ON SUNDAY. AND BOY WAS...
Hello Asha, so very pleased to hear that you are 37 weeks pregnant and that all is well. Gillian had an emergency C section (at 37 weeks) 17 Sept 06. A...
Hi Sharon It is me Anneli again.I want to put on some words from my story to this too.First time I was diagnosed hemolytic anemia and got transfusions and so...
My doctors have all said NOT to donate. Jaime ... could donate a year after my last pheresis treatment. I plan on doing it once that year is up because it is...
To Cara,Mike,Gary,Asha,Alifa and all brothers and sisters in our great awsome family Want to say I pray for you all every night. Dear Cara I have been on the...
Anneli I would gladly give you my platelets.I have been down close to the bottom of the bucket before.on platelets and I am still here.So if you need em you...
I'm with Jaime on this one. I have been told that I cannot even stock up my own plasma because it has the same components when ill or in good health. When you...
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