One year ago, I was in the ICU clinging to life. Yesterday I was so grateful to be home and to be able to toast with my son at midnight. For me, its just the...
AOL EmailNettie, How are you doing? I also had a relapse after 2 years. I was in the hospital 9 days and had 7 pharesis. I had two doses of rituxan while...
Hi Melinda, This is wonderful news! I am so happy that you and your family have finally been rejoined. It looks like you will definitely have a very happy new...
Melinda, your family is beautiful! I am so happy that you found them. What a wonderful Christmas gift :) Jaime ... hopkins<mailto:bama_not@y...> ; Angel ...
Thanks for the information that Cyclosporine may be a front line med soon for TTP relaspse. So glad to hear research is ongoing in this area as this drug is...
I also am from Ohio and being treated at OSU and we probably have the same hematologist lol. I too am on cyclosporin and actually was the first person to...
Joyce, Sorry to hear about your relaspe. Glad you have found us. We are a great group of TTPers that give each other support. We have all been through it and...
hello to everyone , so over joyed to find this group, always thought that i was left in the dark when it came to talking to someone of the same disorder but ...
Hi Bev I´m happy that I could help you with the article.Amazing story wasn´t it.I´m a loner too here in Sweden.I have not found anyone else with TTP so I...
Hi Anne, I'm so glad you contacted me . You have made my day again . Once with the article on brave Molly and now again by returning my e.mail. Today I don't...
Dear Friends! How I've missed you all! My computer was useless, OK now, so I'm back, at least for now. :-) I hope everyone had a blessed Christmas and a...
Dear Stephanie & Cara, I hope both of you are doing better now! You are both in my prayers. I too have been having stomach problems...they are the exact...
Dear littlerayoflite, Hi! Welcome to our family! You feel like most of us when you finally find this site...like "HOME FOR ME!!!" It IS a blessing. You...
Dear Friends, First, welcome to you, jj! Glad to hear from a new member. I'd like to thank all of you for the fascinating info on Cyclosporin! TTP puts us...
Dear Melinda, What a blessing for you! Thank God you have been rejoined with your loved ones...as you said With God, ALL things are possible. Thank you for...
Dear Cara, Read your letters! How are you doing now? I've had scares before, with some brusising right along the small veins in my arms...of course I thought...
Dear Anneli, How are you, my ff? Been catching up on the letters, and I see you weren't feeling very well? How are you now, my friend? I pray all is well,...
Wonderful news Melinda !! I am so happy for you.... I can only imagine the excitement and feelings of "completeness" you are experiencing. I myself have two...
Thanks Jeannie.. Is really hard to think that a possible relapse is my future... but am trying hard to fight all the ill feelings I am having... Not knowing ...
Am sorry tp hear you haven't been feeling well either... I just hate this mess. The feelings are so similar to what I was experiencing before my diagnosis. I...
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